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actioning query
 Coeliac Research  Posted by Hayley
I'm doing Home Economics GCSE, and for my coursework I am researching Coeliac Disease. If you could spare the time, could you please fill in the following questionnaire for me. It shouldn't take more than five or ten minutes. When you've finished, could you email it back to coeliacresearch@hotmail.com

Thanks for all your help.

Thank you for deciding to fill out my questionnaire.
When answering i-iii can you please enter your answers after the question.
When answering questions 1-12 can you please delete all possible answers except your chosen answer.

i) The country in which you live
ii) Your age
iii) If you are a lifelong celiac or not

1) When shopping in the high street, do you find the availability of gluten-free foods to be
a) Very poor
b) Poor
c) Reasonable
d) Good
e) Very Good

2) When purchasing gluten-free foods, do you think the price of such foods to be
a) Cheaper than other similar foods that contain gluten
b) Similarly priced to other similar foods that contain gluten
c) Slightly more expensive than other similar foods that contain gluten
d) Significantly more expensive than other similar foods that contain gluten

3) Where/how do you purchase your gluten-free foods?
a) Online
b) In high street food suppliers (e.g. supermarkets)
c) Prescription
d) Other (please list)

4) In your regular supermarket, is there a section devoted to gluten-free foods?
a) Yes
b) No
c) Non-applicable as I do not buy my gluten-free foods from supermarkets


5) If your supermarket does have a gluten-free section, does this save you considerable time when shopping for appropriate foods (i.e. that you don’t have to search for individual items across the store as most are stocked together)?
a) Yes
b) No
c) Non-applicable

6) When shopping for gluten-free foods in supermarkets, have you found that supermarkets try to support people with celiac disease (and other food allergies/intolerances) by providing them with necessary information about products (e.g. food lists)?
a) No, I find that you have to search for gluten-free products on your own with little or no help from the supermarket staff
b) There is some helpful information but not a lot
c) Yes, as a general rule there is information available from leaflets, signs and staff
d) I do not buy my gluten-free foods from supermarkets so the question is non-applicable

7) Approximately how long do you spend checking product suitability when shopping?
a) 0-1 minutes
b) 1-5 minutes
c) 5-10 minutes
d) 10 minutes +

8) When eating out in restaurants etc., how would you describe the range/choice of appropriate foods?
a) There are often little or no gluten-free alternatives on the menu that provide a filling meal
b) There is usually a small variety of options on offer for coeliacs
c) There is a good varied range of gluten-free foods on the menu to give coeliacs a choice


9) When eating out do you find that cook-to-order restaurants and cafes, for example, provide a better choice (and quality) of gluten-free foods than places selling ready-prepared foods (e.g. burger bars)?
a) Yes, cook-to-order places provide a better choice and quality of gluten-free foods
b) No, ready-prepared food places provide a better choice and quality of gluten-free foods
c) I find very little difference in the range and quality

10) How would you describe the flavour/texture of gluten-free foods in comparison with those containing gluten?
a) Less flavour/texture
b) They taste about the same
c) The flavour/texture is better than that of foods containing gluten
d) I am a lifelong celiac and so the question is non-applicable

11) How easy do you find it to use gluten-free flour in comparison to ordinary flour?
a) It has much less elasticity and is therefore harder to work with
b) The ease-of-use is very similar
c) It is easier to work with than ordinary flour

12) Do you find that being a coeliac limits the savoury foods that you can eat or the sweet foods that you can eat the most?
a) Savoury
b) Sweet
c) Both


Thank you once again. Your help is very much appreciated.

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 Coeliac Research  Posted by Ted fuhrman
I recently attended a GF seminar presented by a medical internal physician, who has spent many years investigating and researching the celiac disease. During his presentation he noted that oats has always been thought of as containing a protein similar to that in wheat and could cause a celiac reaction. For this reason oats has always been placed on the "do - not -consume" list.

He stated that research has now proven that this is not the case and that oats has been taken off the GF listing. He highly recommended that those with celiac disease to eat oats. This adds to the grain fiber in ones diet. He had no qualms in stating this and went on to say that even in severe cases, oats was fine.

I have been on a GF diet now for 23 years and obviously come from the old school relative to eating oats. Is there a journal artical or organization I could contact to get confirmation of the statements made during this presentation.

If this is now true, has anyone developed recipes utilizing oats?

Any information would be greatly appreciated.

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 Coeliac Research  Posted by Nicole
Ted, I'm not sure of the numbers but my mother found some research in which they made a blood test for oat gluten (the standard blood test for gluten uses wheat gluten) and tested a selection of untreated coeliacs.

A large \% tested positive to oat gluten and a small \% tested negative.
Unfortunatly the test for oats was a research tool only and has not been developed comercally.

I will ask for the links and exact information.

Also personally I 'challenged' myself with oats and found I 'tolerated' 1 meal but became very sick after 3 meals in 3 days containing oats, so I would be disappointed if oats became acceptable in glutenfree labeling.

BTW If you want to cook with oats, when a receipe calls for rice flakes use oats instead and carefully read labels on wheat free products...

Regards
Nicole

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 Coeliac Research  Posted by Päivi Markkanen
Hello,Ted



I live in Finland and I have a coeliac disease. I can eat so called out pure outs. It's special outs, which haven't have the smallest amount of wheat,

rye, barley. Pure outs have been specially handed from planting and harvesting to production to avoid contamination from other grains ( wheat,

rye, barley ). It's more expensive than normal outs, though. But it's normal with gluten-free products. Especially I like pure outs biscuits.



Regards, Päivi











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