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14 yr old
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A coeliac diet is really healthier than a normal diet
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antiendomsial antibody tissue transglutaminase
Anti-tTG blood test shows 1 in 80 celiac in population
any advice for a new mom dealing with celiac
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anyone can explain me about production ethanol from mollasws
anyone can explain me about production sulphated ash fro
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can celiacs eat whey powder?
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Find a recipe for an eight year old birthday cake (homema
Find a recipe for an eight year old birthday cake (homemade)
Fish and Chips...
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Help me please
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I HAVE CEIAC DISEASE I.B.S ALSO C.T SCAN PANCREAS
I would like to suggest that..
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iam a chef
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Just found out that i am allergic to Gluten
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knowing what it all taste like
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Millet Bread Recipe
Millet Flour
my mum has been diagnosed with CD for almost 23 years
my um has been diagnosed with CD for almost 23 years.
Necessary to be so strict??
need help too skinny
New Message Board
new to gluten free
new to this.............
No choc chip cookies?
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novelty chocolate cake
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Obscure Foods not Gluten Free
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rash on chin
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Recently Diagnosed with CD
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suet
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Teff
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Tips to survive eating gluten prior to Endoscopy
to Liam - Not Gaining Weight
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UK Gluten Free Beer
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What to eat
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Wheat and yeast free bread
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Wheatfree = Gluten Free
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Whey
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Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intoleranceactioning query
| Re: gluten and dairy free
| Posted by Andrew Peake
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Thank you for your help. I realise now that I have not really changed my eating habits sufficiently and will do as you suggest. I do not have a cooked breakfast nor a proper meal at lunch time. I will start to have a cooked breakfast and a proper meal at lunchtime
| Post a reply to this message, or post a new topic |  |
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| eating gluten by accident
| Posted by amz
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With CD, I have been on a very strict diet for nearly 2 months and did respond well to going gluten free. Most of my symptons were easing off, especially the stomach upsets!! However, I was trying to be so careful over the festive period but following either overindulgence in eating out and a few more drinks than i would have during my normal working week, I've suffered from a terrible flare up of symptons and feel terrible.
I'm desperate for some advice with regards to what should or can I do to try and get back to a normal self?? I start back teaching on Mon and can't afford to still be running to the loo
| Post a reply to this message, or post a new topic | |
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| eating gluten by accident
| Posted by Peter
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People on a gluten-free diet suffer viral and bacterial stomach upsets just like anyone else. However you are more likely to suffer from the effects of excess alcohol.
You should make sure that you stick to your diet, and avoid any irritants like peppers, curry, tea, coffee and alcohol.
Make sure that you drink plenty of fluids.
In case it is a viral infection you should avoid returning to school for 48 hours after the symptoms have cleared up.
| Post a reply to this message, or post a new topic | |
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Jen
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I went to the doctor because I was having severe stomach pains, blood in my stools and bloating. My doctor wasn't sure what I had, but suggested I get a blood test for gluten sensitivity. It came back positive. Assuming I had Celiac, she then sent me in for colonoscopy and endoscopy biopsies to confirm. The celiac obiopsy came negative (no damaged villi) but they found UC in my lower intestine. This is where things got really confusing because my gastro doctor said I didn't have to be on a gluten free diet since I had UC and she did not think I had Celiac. However, that early blood test did show that I had a gluten sensitivity so my primary care doctor recommended I still try the gluten free diet. So, I started a strict gluten free diet and my UC symptoms were greatly reduced. I still ended up in the hospital with a flare up last summer so I haven't been completely cured, but the gluten free diet sure makes me feel 90\% better most of the time. I don't know why doctors can't get on the same page with this
| Post a reply to this message, or post a new topic | |
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Lauren
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Hey, I was just wondering, if anyone has put on weight from having a gluten free diet? I have just been diagnosed with a gluten and dairy intolerance and for some reason although ive cut all gluten and dairy out of my diet im really bloated! im just hoping that its my body trying to get used to the change as ive only been following the diet for a few days, can anyone shed any light on this?
Thanks lauren
| Post a reply to this message, or post a new topic | |
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Peter
|
It can take weeks for the digestive system to heal the damage caused by gluten, so don't expect everything to be right straight away.
There are also many traps for the unwary - hidden ingredients in manufactured foods.
The best diet to start with is fresh fruit, vegetables, fish, meat, potato and rice, and avoid all manufactured foods until your digestive system settles down.
Once your digestive system has healed it is possible to put on weight on a gluten-free diet
| Post a reply to this message, or post a new topic | |
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| Re: gluten and dairy free
| Posted by Lauren
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Hey all, I've just been diagnosed with a gluten and dairy intolerance, and i'm just confused about a few things, at the moment(only been on the diet for a few days) i feel very bloated! im hoping this will go away, did anyone else get this when cutting things like dairy and gluten out of their diets? im trying my best to compromise and find things that i can eat and trying to eat as much fruit and veg as i can. I'm terrified of putting on weight? is this common when you cut gluten and dairy out of your diet? does anyone have any nice easy recepies? im also veggie, so my diet seems to be very limitied at the moment! is it bad to eat too much potato? if anyone could get back to me i'd be so grateful :)
Thanks all, Lauren
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| Re: gluten and dairy free
| Posted by Peter
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You are unlikely to put on weight on a vegetarian gluten-free and dairy-free diet unless you are adding spreads or oil to your potato. The extra fat tends to come from the spreads, not from the potato.
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Pedro
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I have heard and read so many things on what I should eat and shouldn't eat. I "officialy" have had UC for 1 1/2 years and recently had a violent flare up. During the flare up I was getting worse and couldn't figure out why. I was eating crackers, bread and water. I supposedley have no gluten Intolerance and was told in the past I can eat whatever I want. After doing some research I decided to go on a gluten free diet, since nothing else seemed to be working. I have gotten a lot better but I have had a very restrictive diet since then.
I see many gluten free recipes that included spicy things, which I know I can't have. I also have read in the past I should not have fresh fruit or vegetables because of the UC. That all vegetables must be cooked and to stay away from certains ones. Can someone provide a list of foods/recipes that would work for someone with UC and wants to be gluten free? Thank you in advance.
...also I currently have an infection in my urine and my doctors can not figure out where it is coming from. I have had bad pains in my kidney area and recently did a renal sonogram and am waiting for the results. Any thoughts
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Peter
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Since you have had a positive reponse to a gluten-free diet, I would go forward with the hypothesis that the ulcerative collitis is the result of gluten allergy / intolerance.
I would continue to avoid spicy foods, coffee, alcohol, and soya, but introduce more fruit and vegetables into your diet. If the improvement continues you can broaden your diet while keeping it gluten-free.
Infections plus kidney pains suggest a diagnosis by the professionals is essential, but possibly made worse by adverse reactions to food and a restricted diet
| Post a reply to this message, or post a new topic | |
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| non-coeliac gluten sensitivity
| Posted by geri
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Hi1
I've just had the biopsies for suspected coeliac--blood tests were negative. My consultant thinks it won't be coeliac as i don't have the classic symptoms but he thinks it's an intolerance to wheat. Can you tell me it an intolerance is treated with a gluten -free diet. many thanks
| Post a reply to this message, or post a new topic | |
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| non-coeliac gluten sensitivity
| Posted by Peter
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Yes, an intolerance to wheat should be treated in exactly the same way as the coeliac condition with a completely gluten-free and wheat-free diet
| Post a reply to this message, or post a new topic | |
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| Re Gluten intolerance and Pain
| Posted by Susan
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I had ulcerative colitis and learned that I should not eat gluten. Can gluten cause inflammation in colon and sharp pain in colon (also upset stomach
| Post a reply to this message, or post a new topic | |
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| Re Gluten intolerance and Pain
| Posted by Peter
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Ulcerative colitis is simply a label for your symptoms.
An adverse reaction to gluten can cause inflamation anywhere in the digestive system, from the mouth, throat, through to the colon and rectum.
So gluten can be a cause of ulcerative colitis
| Post a reply to this message, or post a new topic | |
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| Re Gluten Intolerance and Ulcerative Colitis
| Posted by Nina
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I live in South Africa and suffer from gluten entheropathy, very bad if i just have a bite of gluten. The white maize meal is a staple food for most South - Africans. It is a great replacement for gluten rich foods, you can put it in meatballs and patties to bind it, eat it in the mornings make savoury tarts with it( called Paptert) eat it with milk and sugar and even make a maize bread with it
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| Re: Does whey have gluten in it
| Posted by Marissa
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Thank you!!!!!!!!
I love tootsie rolls, and a coffee ice cream, and they have whey!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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| Re: Wheatfree = Gluten Free
| Posted by littletamale
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Your story is all too familiar to mine, and I was wondering if you found any help!!
I have PCOS, and have not been diagnosed with gluten intolerance, but I get severe cramps/bloating/gas when I eat anything related to bran(especially),oats, grains, beans, ect. I, too, find that rice is much better for my stomach, but this only exacerbates the PCOS. I feel like I can't eat anything except meat, fruit, and some vegetables....which makes it complicated when you are always on-the-go
| Post a reply to this message, or post a new topic | |
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by tg
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My son is 8 years old and was diagnosed with UC a year ago. He was not able to tolerate asacol or pentaza due to severe side effects that made him sicker than UC. He takes VSL3 probiotics, fish oil, and herbal tea prescribed by the herbalist and approved by the gastroenterologist. We eliminated all cow products including beef and substitue with goat dairy. We allow him to have spelt products. Since we started on this regimen, he has regular formed bowel movements daily and pain is gone. We can see occasional bloody threads in his stools and are thinking of spelt elimination. I hope this helps
| Post a reply to this message, or post a new topic | |
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| Cider & Gluten Free Beer
| Posted by Sheona
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Hi Karen,
Both of the following companies produce gluten free beer:
www.glutenfreebeers.co.uk
www.stpetersbrewery.co.uk
Suggest that you/your son contact them directly and ask them for the names and addresses of London pubs supplied by them - that way your son can visit those pubs and enjoy a gluten free beer!
There are lots of gluten free options in Copenhagen - and in this case would suggest that you visit http://www.coeliaki.dk (Danish Coeliac Society). You might like to contact them directly and ask for details of restaurants/cafes/bars/products available etc.
Hope that your son has a great time in the UK and Denmark.
Sheona (www.drossa.co.uk
| Post a reply to this message, or post a new topic | |
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| gluten free crisps
| Posted by mobo
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The only crisps I know of that say they are suitable for coeliacs are Walkers Salt & Shake. Ingredients: Potatoes, sunflower oil (35\%). Salt (in sachet
| Post a reply to this message, or post a new topic | |
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| Is Barbecue safe (Gluten free
| Posted by Keith
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I'm wanting to use KC Masterpiece barbecue sauce. The listed ingredients are: High fructose corn syrup, Tomato puree, Tomato paste, Water, Molasses, Natural hickory flavor, Natural Flavors, Vinegar, Modified food starch, Salt, Xanthan gum, Sodium benzoate, Onion, Garlic, Carmel Color. Thanks for your reply Keith
| Post a reply to this message, or post a new topic | |
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| Is Barbecue safe (Gluten free
| Posted by Peter
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Modified food starch should always be avoided. It may be wheat starch.
Natural flavours and Caramel Colour are doubtful - barley is used quite a lot as a flavouring and should be avoided
| Post a reply to this message, or post a new topic | |
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| Re: UK Gluten free suet
| Posted by Sue Aplin
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I dont know how long ago this message was posted but just found gluten free suet in Marks and Spencers in Swindon. June 2008
| Post a reply to this message, or post a new topic | |
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| Re: Gluten Free dining
| Posted by tracy gates
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ide like to find out where i could purchase diatry cards please pontefract area
| Post a reply to this message, or post a new topic | |
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by leila
|
hi there,
I posted quite some time ago, had a really rough ride with my uc, and was on the verge of surgery. Then I found this website, and decided to give going gluten free a go! Has been nearly two years now, and have had no symptoms, have reduced most of my meds (now on 50 mg 6mp, and 1200mg meazavant xl; the equivalent of 3x2 asacol tablets per day) and along with a few supplements (cod liver oil, l-glutamine and seacure tablets) have been able to resume a perfectly normal life, where as I once thought that would not be possible. I eat healthier now than ever, and even eat raw fruit and salads again!
Thank goodness that this site exists, otherwise I would have taken a lot more painful and traumatic route. Good luck to everyone who goes for the gluten free approach, I hope that it works just as well for you.
ps, saw gastroenterologist recently, who said my remission was not to due to my gluten free diet, that it was just a coincidence! Typical!
Leila
| Post a reply to this message, or post a new topic | |
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Jessica
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My partner has Ulcerative Colitis and the asacol only helped lessen the severity of symptoms. It wasn't until she started "The Maker's Diet" that she found complete relief of all GI issues. I was skeptical of this diet style, but a trusted friend recommended it to me. I was skeptical b/c it is partially based on the bible. However, the doctor offered good scientific explanation for most of his recommendations, also. I thought it would be helpful to make this dietary change together, and we are both amazed at the results. She still takes her medication, but it has changed our lives so much. Since changing my eating, I got a full blood workup and it was all perfect. Good luck to you all on your journeys to health.
~Jessica
| Post a reply to this message, or post a new topic | |
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| Re: UK Gluten Free Beer
| Posted by Philip Le Roux
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So far the "Against the Grain" beer is the only gluten-free beer I have found that actually tastes like a beer. I do hope and pray they will after this cautious and successful testing of the market, bring out more GF beers into general circulation.
All the rest so far have been revoltingly sickly sweet. Like drinking rendered down treacle with an alcohol content off the scale, and to thoroughly add insult to injury extortionately priced .
My partner blinked when she saw me tip a pint of one of them away, asking "who are you and what have you done with my boyfriend" sort of thing.
| Post a reply to this message, or post a new topic | |
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| gluten free crisps
| Posted by colin
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hi if you look on walkers crisps you will see suitable for coeilacs on most of them also pom-bear snack are gluten free
| Post a reply to this message, or post a new topic | |
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| gluten free crisps
| Posted by Sheona
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Hi Kerry,
Rice Bites, manufactured by Wide Faith Foods of Thailand
Rice Bites (registered with the UK Coeliac Society and licensed to depict the Cross Grain symbol on their packaging) are GF. Baked, not fried. Transfat free. Cholesterol free. Low in fat. Six flavours.
If you'd like further information please e-mail me directly.
Best wishes.
Sheona (Drossa
| Post a reply to this message, or post a new topic | |
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| Re UK Gluten Free Beer (Re - USA queries
| Posted by matt clark
|
Hi to the people asking about GF beer in the USA.
I was recently there visiting friends and found 3 beers (fairly) available.
One was out of stock in the (independent) shop i was in, but there was a great one called "Redbridge" - it's brewed by Anheuser Busch. Pretty damn tasty. This one was also available in Price Chopper.
There was another which I can't remember the name, it was a black label with a gold bat-like shape on it. I didn't like it as much, so thats probably why I don't remember the name. Go for Redbridge!
I was impressed by the availability and PRICE ($7.99 for 6 bottles) in the states (this was NY, upstate). I recommend try all your local liqour stores, you might be surprised what you find if you've not looked before.
A selection of beer is also available in Risottoria (including big bottles of Greens), a pizza place on Bleecker Street in NYC - yes the pizzas are also gluten free and awesome, and they also have pie, brownies, cake and bread sticks. Go. Now. (they have a website, i think...)
Good luck.
Matt
| Post a reply to this message, or post a new topic | |
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| gluten free batter
| Posted by Aad Merceij
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http://www.glu2go.co.uk/
On this website you 'll find all adresses where you can buy this batter
| Post a reply to this message, or post a new topic | |
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Nick
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Just Wondering....
If UC is a disease involving the large intestine and gluten affects the small intestine does anyone know how a gluten free diet would help? I would think Gluten free would help cure Crohns and not colitis
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Peter
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Gluten affects all region of the intestine, and can also affect many other body systems.
The coeliac condition is where gluten causes damage to the villi of the small intestine, but antibody testing now shows that both Crohns and colitis my be closely linked to gluten. Note that this only applies to some cases. There are many other causes of Corhns and colitis
| Post a reply to this message, or post a new topic | |
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| gluten free flours/chapattis
| Posted by fozi
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I notice i can use a lot of different flour alternatives and there are many manufacturers. Just a couple of questions which i would appreciate advice with.
1) Do i need to be careful about brands of these flour and are some manufacturers more likely to be contamination free. I bought various flours to do baking and now am not sure re milling process/contamination. Is this really an issue with rice flour, millet flour etc or should they be ok. im particularly thinking about asian foods and even things like rice noodles produced by companies who also produce wheat noodles. If any one has trused brands i would appreciate your comments.
2) Being a new coeliac, with a south asian diet, im not sure what to make chapattis/roti with, i read e using millet , juwar flour, anyone with any good recipes please help! Thanks v much
| Post a reply to this message, or post a new topic | |
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| gluten free flours/chapattis
| Posted by Stephanie
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You should try the chia seed flour from nuchiafoods.com. It is certified gluten-free and is made in a facility that only produces gluten-free products. You can order online for only $6.89 for a 22oz bag. It can replace traditional wheat flour 1:1. Good luck
| Post a reply to this message, or post a new topic | |
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by lynn
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Yes, you may be right about the oats. Unless the grower and manufacturer of the product test the oats for gluten they may be contaminated by other gluten crops grown in the same fields or near by or in the processing plant. Although oats are not considered a gluten containing food, some people still cannot tolerate them even if the product has been proven gluten free by testing. If you are using oats that have been tested and are gluten free, then I would suggest your daughter cannot tolerate oats. I am gluten intolerant and use a product from the US, Bob's Red Mill Natural Foods. They have gluten free hot cereal called Mighty Tasty GF Hot Cereal and they also have GF Oats. If interestesd check out the web site, www.bobsredmill.com I hope this helps
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Toby
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Hi, I am a 25 yr old female with Ulcerative Colitis. I have been flaring for the past half a year but only over the past 6 weeks have started to get it under control after being hospitilized. I am on medications such as 6-MP (an auto immune suppressant Drug), Asacol, Prednisone, Cortisone and other enemas. It seems as though my flaring has ceased. I don't know if it's the meds or the foods that I eat which are causing these horrible symptoms. Doctors are telling me not to eat dairy, now they say no gluten...and a whole other list of no-no's. What then, is there left to eat
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Peter
|
I have now been on a gluten-free dairy-free diet for 28 years. I buy fresh fruit and vegetables, meat, fish, with potato and rice as the main carbohydrate.
I also get out and get plenty of exercise, and have stayed fit and healthy.
It is well worth the effort
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| gluten free bread
| Posted by Noel
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I read your e-mail about the gluten free breads not tasting like the breads you were used to. I am on a gluten free diet and have been for many years. I know what you mean about the difference in the taste. The best bread that I have found is Sami's bakery millet and flax seed bread. They also make wraps, hamburger buns, hot dog buns, and pizza crust. Hopefully that will help if you have not already tried it yet.
Noel
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| Re: gluten and clinical depression
| Posted by m
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Sounds like your cortisol excretion is out of whack!
I had the same problem. Going off gluten helped a lot but I still had the sleeping problems, due to weakened adrenals (which happened because my body was fighting the gluten). Try googling for "adrenal fatique", this should help you
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| Gluten Free Fish and Chips
| Posted by Ian Mead
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Hi
I have recently returned from a few days in Dorset and would strongly recommend Alf's Fish & Chip shop at 2 Lynch Road Weymouth 01305 783342 where I had cod and chips cooked in the chip oil, so no possibility of contamination. Absolutely marvellous. Mostly take-away but Alf has two tables for anyone eating in the shop
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Nikki
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Wow I have just started gluten free 3 weeks ago, after the doctors just ignoring my tiredness etc and after many different medicines, I have become quite depressedand my cloitis is at its worst, after reading your story I cried with excitement, I am sure it is most of my problem and I am about to start some supplements from my naturopath so I am quite hopeful it will help. I use to run and go to the gym but the last 4 weeks have lapsed into hopelessness and depressed and moody and feel I will never feel happy again but you have given me encouragement, well done for you although I guess if you had of found out earlier it could of saved you from the operations. My brother had severe crohns for many years and is now in remission but lost half his bowel in the process, I have only had colitis for 3 years, most of the time it has been active and bloody frustrating, but I look forward to my diet now. Thanks Nikki
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Nikki
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Gluten free and go to a naturpath who has experience in the field, get a blood analysis done from the naturpath, I have been at my wits end I have been depressed and felt like dying had enough, works out I have low iron not absorbing Vit. B12 which causes depression and fatigue and food allergies , being tested in melbourne next week(aussie) I am, I know exactly how you feel I have had enough I just want the happy energetic me back. Nikki
P.S. Good Luck
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| Gluten Free Fish and Chips
| Posted by maybe
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You can buy wonderful gluten free fish and chips in Hawes.North Yorkshire . Also cooked in separate fryer and a sitting in cafe with great staff. Good area to go for camping holidays or weekends away. There is also a gluten free freezer shop which supplies cakes,puddings, pastry,pork pies. steak pies and too many other goodies to mention
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Christian
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Just browsing and came across this topic. I had a year and a half long Ulcerative Colitis flare and it seemed like no matter what I tried I could not get it under control. I started experiencing pain furthur up in the intestinal tract that didn't feel like Colitis. After speaking with my doctor, he decided to test for Celiac Disease and sure enough, it turned out I had that as well. After a couple of months on a gluten free diet, my flare subsided and have been basically healthy for the past three years. I did catch the stomach flu, which triggered a small Colitis flare, but was able to keep it small and get back to normal in a couple of months. Not the easiest diet to follow, but well worth the results. You really start wondering how many people with Colitis also have Celiac Disease. It certainly made getting Colitis under control much easier on a gluten free diet
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| Re Gluten Free Fish and Chips
| Posted by saarh edwards
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Just had absolutely delicious gluten free fish & chips from Youngers fish bar at 73 Caerphilly Road,Birchgrove,Cardiff, they cook gluten free fish &chips on the 1st and 3rd monday in the month,this was my first fish &chips for six years since being diagnosed with coeliac's and it was wonderful
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| GLUTEN FREE... and Delicious at BBC Good Food Show, Olympia
| Posted by Sheona (Drossa
|
For the first time ever the BBC Good Food Show, London, will have a dedicated GLUTEN FREE section.
Eleven Manufacturers and Importers have come together to offer a wide range of Gluten Free and delicious foods – from pickles, pastas and pestos, spices and sauces to breads, pizzas, flours, gnocchi, sausages, chocolates, cakes, biscuits, breakfast cereals, liqueurs, and Gluten Free meals.
The BBC Good Food Show will take place at London’s Olympia, from Friday 14th November until Sunday 16th November 2008.
Not only will some 200 different delicious Gluten Free foods be on offer, from at least ten different countries, but the show’s organisers have arranged a special on-line reduced booking rate for Coeliacs and their families. The normal price for entrance at the door is £18.50. Coeliacs and their family members can book on line, in advance, and pay just £15.00 per ticket. A saving of almost twenty per cent!
For further information on the show visit www.londonbbcgoodfoodshow.com
For ticket sales, visit:
www.ticketswitch.com/tickets/web_finder.buy/goodfoodlondon
The special code number for Coeliacs and their families is ……..(number has been provided to Coeliac UK and to Coeliac UK voluntary Group Leaders)
Visitors to the BBC Good Food Show can also enter the Gluten Free and Delicious section’s FREE DRAW.
There will be three Free Draw Hampers worth more than £300. One for each of the three days of the Show!
Details of these wonderful hampers to be posted separately. Entry to the Free Draw will be open only to personal visitors to the BBC Good Food Show, London
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| UK Gluten Free Beer
| Posted by tony kerr
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Google st peters brewery for a crackin gluten free beer
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Jeremy
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I have been suffering from the syptoms for about a year, Just got diagnosed with UC about 4 months ago. Have pretty much been getting steadily worse and have not had any "remission" in over 6 months. The doc's have me on the steriods 30 mg a day and 9 colazal a day. I also take probiotic pill twice a day, as well as an aloe vera pill twice a day. None of this seems to be helping. Found your site while surfin the net for info. This makes some sense to me because about a year and a half ago I movede in with my girl friend and she is a big " health nut" and got me to cut back on the meats and pot. eat more of the wheats and grains. since my problems started after that, I have decided to try this gluten free diet out. Is there any info about how long till I start to get some relief? I started eating Low/no GLutens two days ago. Am planning on going No Gluten, just haven't gotten to grocery store yet or found everything I need. Any advice or hints you can give me would be helpful. I don't have the bad pains some of you talk about, just mild cramping and constantly RUNNING to the bathroom. This is awful hard since I am a farrier and am constantly in barns, alot of which don't contain bathrooms. It is seriously cutting into my income and life. So any advice you all have would be appreciated. Thank you. 38 year old male, ohio, usa
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| Gluten Intolerance and Ulcerative Colitis
| Posted by E
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My boyfriend was diagnosed with Ulcerative Colitis his sophomore year of high school. They put him on an exorbitant amount of pills and drugs that only seemed to sort of help. He lost a ton of weight and then gained a ton of weight when they put him on steroids. About 4 years ago he decided to experiment with diet. He's a research junkie and after reading about gluten intolerance he decided to give it a try. He's been gluten free (for the most part) and mostly symptom free since then. Just with in the past few days he's noticed some symptoms so I've been doing some research. His cousin was actually misdiagnosed with UC and then later they found out it was Celiac (by the same doctor). So he is going to get some more blood work done this month. This is all very interesting to me
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Jeremy
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Just an update. Have went No/Low gluten for 14 days now and swear this has lessoned symptoms by at least half. If not more. Only possible gluten I cn think of that I have had is Maybe if there is any in "carmel color" or heinken beer. Seems there is some debate about heineken beer. It seems to be better than the bud lite though. Not taste wise but my gut wise. As for carmel color.... I haven't had that but once in 14 days. Really think this is working. And am really glad I found this site
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Jeremy
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Another update.... Have been living No/low gluten for 20 days now. Everything is going well. ALso been Living spinach/sunflower seed diet for 4 days and things are going great.... down to two BM's today. And last one was actually formed. Let me back up.... I found this site 20 days ago and gave it a try, After 14 days, My symptoms lessoned by half on this gluten free diet. I also found another board, and alot of people on there were tryin this spinach/sunflower seed thing. I figured since neither of those interefered with the gluten free I was trying that I would try both. And I'm not tryin to Highjack this thread or Promote another site. I just am happy that all seems to be working and want to share. I will keep giving updates as I go in case some one else can be helped.
THe spinach/sunflower seed part comes in as.... When flaring you must eat one can of spinach ( about 13 oz ) a day and 4 to 7 handfulls of de-shelled sunflower seeds a day. Am not going to get all technical because its alll out of my league. It has to do with the magniesum and betocaraten in the diet. It all made some sense to me because I used to suffer with severe gout attacks and one of the natural anti inflamitory foods I had heard of was sunflower seeds. I used to eat those exclusively with cherries or cherry juice when having a gout attack. and since they both are inflamitory diseases. it made sense to try it. The spinach has to do with mag and cell to cell communication or some such, this is where I get out of my realm.
All I can say is that this added diet meshes well with the no gluten part I was already doing and it seems to be working wonders. The one thing they did say about the seeds was to make sure you chewed them up REALLY well, that way as to not irritate you colon.
Like I said I'm only on day 4 of the added, no gluten got me half way or better there, this might be what takes me the rest of the way. I will post more as time goes on.
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| Gluten Intolerance and Ulcerative Colitis
| Posted by
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Imagine if you were allergic to poison ivy or poison oak and you rolled around in it daily for most of your life. What would your skin look like? What kind of skin would you have? Bleeding? Extreme pain?
Wheat is a grass. Many of us have allergies to grasses, all kinds of grasses.
Celiac Disease is not the same thing as an allergy to wheat.
I have UC it is actually pan colitis. This means my entire colon is, when in a "flare", inflamed. I lost 75 pounds over the course of 5 months and ended up in a hospital and was there diagnosed.
I was put on asacol 400mg 12 pills a day divided in 3 equal doses. The max allowed per day for this med.
I disliked some of the effects of asacol and eventually developed tinnitus, ringing in the ears. This is common with chemicals derived from salicylic acid like asacol and aspirin. I also thought there could be a "natural" way or a way with less side effects to control this "disease". After extensive research I figured out I was allergic to wheat.
I must point out here that when presented with the idea that this is a chronic, "life long", condition I refused to believe that and wanted to find out all I could about the condition and what I could do to get rid of it.
I have read here in previous posts that "dramatic changes in diet are dangerous" and that "it is a pain to alter ones diet". I know that people are lazy and if you do not have or can tolerate the symptoms , the pain, bloating, bleeding, associated with colitis then I guess you can afford to become complacent.
I have found out that long term exposure to any allergen and continued inflammation, even if it is minor, can lead to other conditions that may be fatal or at the very least disruptive, kind of like colitis.
I think that to eliminate the inflammation in the body, especially if it is caused by an allergen in your food, is extremely important.
I am now pill free. I have not had a flare for about a year. The last flare I had was while I was still on the medication and still eating products of wheat. I know that it is not uncommon for people to have "flare free" times of up to a year or several years. I have medicine ready if I need it.
I think it is important that everyone know that you need to take a controlling and educated roll in your health. Get facts instead of opinions about things. Everyone is different and your dietary needs are not the same as mine or anyone else.
I eat pretty much everything I used to eat minus the wheat. I eat breads and pastas and pancakes and pizzas. I have hamburgers and cookies every once in a while. All without the wheat.
and I seem to be doing fine
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| Re: 5 month old baby(gluten free
| Posted by Maria
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Hello, I'm going to start feeding my baby solids when he turns 6 month. I've found Gluten free Rice Cereal but I was told to alternate rice cereal and oatmeal. Does anyone know of a gluten free infant oatmeal? Also, baby food jars?? I would like to have him gluten free
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| Re UK Gluten Free Beer
| Posted by Matt
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You can buy it at many regular liqour stores in the US ask for Redbridge which is actually made by Budweiser and even if they do not carry it in stock they can often order it for you
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Erica Shecter
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You guys might try looking into the once-a-day drug Lialda. It's FDA approved in Amierica as of 2007 or 2008 but I don't think it's out in Europe yet. if it works, it improves quality of life a lot. Also consider thorough testing for food allergies
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Jeremy
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My doctor just switched me to lialda about a week ago. So far so good. Not sure what is putting me into remission, the drugs or the gluten free or the spinach. Maybe a combo of all three. I am on day 6 of lialda, day 47 of gluten free, and day 33 of added spinach/sunflower. But I am getting better daily and loving it
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| eating gluten by accident
| Posted by Gail
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I take probiotics to stop a gluten or gluten-like reaction. I get them from any pharmacy here in the U.S., in the vitamin aisle.
I recently discovered that I am having a reaction to soy flour. Taking 1 or 2 probiotics stops the gas formation in short order!
Good luck!
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| Re: gluten free chappatti flour
| Posted by Steve B
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With regard to the post about the Chicago CS, the poster is ill informed and to make such a sweeping statement based on one reference is misleading and a major dis-service to the readers of this site looking for informed advice. May I refer you to this article, first published in 1999, which offers a far greater insight to its benefits and drawbacks:
http://www.enabling.org/ia/celiac/buckwht.html
By the way we have just started using buckwheat, and if any readers are of Japanese decent you may want to check for allergic reactions, I have so far found it to be an excellent wheat substitute when mixed with other flours. Regards Steve
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| Re UK Gluten Free Beer
| Posted by Chris Atkinson
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Just in case any one is interested in having a bash at brewing their own beer, try this link, and search the recipe pages for gluten free at;
www.jimsbeerkit.co.uk
I've tried half a batch of the 'Four Star' and 'Red Diesel' which are both gluten free beer recipes, and have been impressed.
I've PM'd the person who has put together the recipes, and he's had many attempts to pull together these recipes (being a coeliac himself).
Latest attempt is a brew of stout so I'll find out what that's like in a few days/weeks, buts it's certainly been fermenting well.
Don't be put off by the list of ingredients (tea bags, chocolate essence, bovril !!), it works, and I'm hooked...
Also, in response to a quiry earlier in this post, you can buy GFA from hambletons direct. Last lot I purchased just before Xmas 08 was £1.60 a botle, although they were predicting a price rise. Wirth buying in bulk at this price if you like it (the new recipe is much nicer that the last one).
For info, the ale recipes work out at around £15.00 for 20 litres (so around 75p a pint
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| Re: gluten and dairy free
| Posted by Sheila
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I have products, I was looking for stats on cecliac disease when I came across this site, the producys are gluten, yeast, dairy,and soy free. The name is sonshines mixes (my web site is sonshinesbread.com) there is hemp seed bread, sweet bread, pancake, pastry/ cookie, pizza and brownie. Being diabetic you could have the hemp seed,the pancke, the pizza and the pastry/cookie mixes. Just use agave nector for sweetener it is diabeticly friendly. My products are only in Ontario right now but I will be expnding.I am not trying to advertise you would have to get back to me and I could send you samples, I care that your having a hard time finding somethings to eat
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Karen Johnston
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My sister has had ulcerative colitis for about 4 years now. She sticks to a gluten free diet but finds that potato starch is a real problem, including the potatoes. Dairy and chocolate seem to agrivate it too. My brother had it for not quite a couple of years before the steroids almost killed him. He lost his colon and we almost lost him. He, however, didn't want to listen to her about going gluten free and paid the ultimum price. She suffered a couple of hospital stays and bloated up like a balloon from those disgusting steroids. They are poison. They may serve their purpose temporarily but her face was blistered and swollen. She now keeps in under control. Sometimes she goes a bit astray and pays the price. It shows up in her face first. See how you go when you eat potatoes and check all ingredients when buying your groceries. I have a intolerance to rice which gives me dermititis on my face, similar to hers from potato and wheat. I too can't eat wheat as it causes great cramps but I don't have coeliacs or ulerative colitis thank god. Hope this helps
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| Re: gluten and clinical depression
| Posted by joan
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hi i have very bad sleep problem .i can fall asleep watching tv but when i go to bed wide awake has well has cealiac i was just diagnosed in dec i have anxiety due to losing my sister best wishes joan
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| Re: Wheatfree = Gluten Free
| Posted by Dr. Trina Doerfler
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Any allergen can produce excess fluid in the inner ear, which is where balance operates from..I commonly see balance problems with allergic exposures, whatever the allergen. The body produces the fluid as a protective mechanism, which then causes the balance issues....going gluten free should help, but also perhaps seek out someone that does a preocedure called an endonasal, where the practitioner tugs on the inside of the throat where the eustachian tube exits. This can drain the fluid into the throat and resolve he issue. Good luck
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| Re sticking to gluten free diet
| Posted by olivia
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My daughter had a bad case of gastro-enteritis some years ago,which left her with a 'leaky gut' and was advised, when eating afterwards to eat easily digested food, so she had pasta. Now, any food containing gluten causes bad reactions, bad stomach cramps,vomiting, diahoreah (I can't spell that!) and feeling rotten for days afterwards. If she avoids it she is fine, but sometimes if she wants to indulge (in profiteroles for example), she takes Buscopan first to help negate the reaction
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| Re sticking to gluten free diet
| Posted by Peter
|
Your daughter seems to be developing a very strong adverse reaction to gluten. Unfortunately the Buscopan may be simply masking the symptoms, and not protecting her from damage.
There is quite a serious risk of developing anaphalactic shock reaction to the food if she persists.
Your daughter should stick to a gluten-free diet.
Advice I have seen for leaky gut syndrome is to avoid all highly refined flour and food. Eat fresh meat, fish fruit and vegetables, eggs,
potato but not potato flour
rice but not rice flour, and brown rice rather than white rice.
The intention of this is to force the food to be properly digested and absorbed slowly, rather than undigested particles being able to be taken up by the gut wall.
Cornflour doesn't seem to cause the same problems as other flours as it forms a jelly with water much more easily and can be used to make sauces and thickeners
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Vinnie
|
Peter & Leila,
Wow...reading you posting has given me some hope. I was diagnosed with UC about 5 years ago and have been suffering the worse flare-up the past 15 months now. Three trips to the hospital more failed medications and now Remicade, which worked for 9 days and then stopped! I am going to be having a consultation with another GI doctor in NYC about a colectomy, but recently (today) started a gluten free diet. I am 100\% Italian and this will be an adjustment, the no regular bread and pasta thing, but one that I am willing to accept. Also about a week ago I started taking B-12, Omega 3 and vitamin C. Hopefully, the gluten free diet combined with these vitamins will avoid the trip to the surgeons table. Has anyone ever heard of cleansing your system with a natural herbal cleanse? I met a woman yesterday who told me that this will also help by removing toxins from my system?
Any advise you all could pass along or even gluten free food recipies would be greatly appriciated. I will post again in a week to tell everyone who things are going with the gluten free! Thanks
Vinnie
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| gluten free bread using breadmaker
| Posted by patricia braithwaite
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Has anybody made a gf loaf using the Glutafin gf multipurpose white mix because mine does not seen to have risen I followed the instructions one by one sent by glutafin but still not a success. Thanks
Patricia
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| Gluten free and mirganes
| Posted by Caroline
|
hi, hope all is well i'm new to this fourm and it looks really good, can eating gluten make people ahve mirgains i suffed from mirganes sence i was 15, and there got worse over the last 2-3 years last months evern worse i having mirganes once a month and it dont go for days and make me really ill, so can gluten free our mirgains?
what do you all think?
thanks caroline
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| Gluten free and mirganes
| Posted by Peter
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Migraines can be caused by gluten in the diet.
I won't do any harm to follow a gluten-free diet for three months to see if your migraine symptoms change. Note that a completely gluten-free diet is essential to see if this is the cause. half measures won't do
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by aimee
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Hey Vinnie I have had uc for 14 years. Also on Remicade which only worked for a few months. I am also 100\% Italian. We seem to have alot in common. I have been on a gluten free diet for approx. 22 days.Have not seen any progress yet. I sure hope to. Good Luck to you
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| Re: Wheatfree = Gluten Free
| Posted by jess
|
Maria (my daughters name),
I also have wheat/gluten intolerances. I use to have serious problems during PMS. I would have a lot of pain near my gallbladderstomach area.€ Now, I don't have that problem anymore, when I stopped eating wheat. Tried to link wheat intolerances to female problems but I didn't see anything that linked
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| Does whey have gluten in it
| Posted by Ann McReynolds
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If a product that actually has no gluten is made in a kitchen where breads, cakes etc have been made, it cannot be advertized as gluten free.
I was told to never use a bowl if flour had even once been in the bowl, as you cannot get rid of the residue.
I am supposed to use my own plate, silverware so they cannot be contaminated
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| Re: gluten free chappatti flour
| Posted by shabana
|
hi
My mother in law has just been told that she has coeliac disease - she cant tolerate gluten & wheat - she is trying to get used to it, but misses her chapatis obviously. The note above gave me some indictaion on how to make chapatis from buckwheat - but im still not sure. Is buckwheat still wheat though? And how can she make chapati's with this
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| Re: gluten free chappatti flour
| Posted by Peter
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Buckwheat is the see of a rhubarb like plant. Nothing to do with wheat
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| Re: UK Gluten Free Beer
| Posted by vicky
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Schnitzer Brau is a new gluten free beer, brewed in the black forest in Germany and it tastes great, it is organic and made from millet malt. To order some, e-mail vicky -at- naturesmaid.com
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| GLUTEN FREE OATMEAL
| Posted by Claire
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My friend is Coeliac and iv been looking for oatmeal for ages for friend but was wondering if u kno where i can find Bounty chocolate bars for coeliac that dotn have soya in also?? Please
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Rich
|
I had UC for many years until I had to have my colon removed and now have a j pouch. About 2 years ago my pouch was diagnosed with moderate to severe pouchitis. I was on a course of antibiotics almost 2 weeks after I went off. Not wanting to get a bag, I went gluten and dairy free. Also, added SCD yogurt everyday. I found that I feel much better and hardly ever get irritation like I used to WHEN I stay on this program. The challenge is not eating off this program. There is a book about the SCD(specific carbohydrate diet). I found this to be too restrictive, so I just went gluten and dairy free. I also monitor how i react to foods.
I am convinced from personal experience that gluten 'sensitivity' is very real and effects physical as well as mental/emotional issues
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| Re: Gluten intolerance and severe joint pain
| Posted by beatrice
|
I am so happy you posted this.
I was diagnosed with all kind of arthritic diseases and prescribed all kind of heavy meds. A genius rheumi doctor from Russia thought of running a genetic test for celiac disease as all the blood tests I ran in 30 years were always negative. It was an overnight relief (per say, compare to the years of suffering) getting rid of debilitating joint paint as my diet went gluten free.
I wish more doctor were aware of the link, my life has turned around and I can now make plans again, work, skip naps, travel etc
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| Re: UK Gluten Free Beer
| Posted by Kevin Doyle
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I have been drinking cider lately but it is no substitute for beer is it? Imagine my joy on tasting Hambletons GFL. I have never been a lager drinker and to describe this wonderful drink as lager does it a grave injustice. GFL reminds me of Deuchars IPA but it is slightly stronger. It is so tasty that I am sure that lager drinkers won't like it. Also, I have had the whole Greens range now and have been impressed but GFL has that real British hoppy quality. I can't wait to get my hands on a GFA next.
I bought mine from ASDA in Portsmouth.
Cheers
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Loye
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Thanks to everyone who has posted in this discussion. I was diagnosed with UC about 4 months ago. Had urgency issues, and uneasy stomache for about a year and a half before I went to a GI. He did colonoscopy and said I had UC confined to the distal end, so more like proctitis. Prescribed Canasa (mesalamine) suppositories. No real improvement after 2 months. Then, he added Proctocort suppositories. Still no real improvement.
Here's the kicker. My dad has had definitely diagnosed CD for the past 25 years. This GI doctor refused to run celiac testing because I am overweight! He said if I had it, I would be a stick. I don't believe him, not with all I've read on the internet from reputable sites (Mayo Clinic, GI sites,etc.)
I have my next appointment with him in 3 months. I am going strickly gluten free until my next visit. We shall see what happens. After reading some of these messages, I have real hope that I can manage this. I have the advantage that I understand the GF diet very well, having cooked for my dad for years
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| Gluten free suet
| Posted by Barbara Probert
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For G/f suet go to www.naturallygoodfood.co.uk it's made by a company called Community who have a shop in Leicestershire. Hope this helps
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Loye
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Update: I've been gluten free for nearly a month, and what a difference. I can't say I haven't had a "bad day", but I'd say I am already 90\% there! I am using the Canasa and Proctocort, alternating days, and after another month or two more on the gluten free diet, I'll try to do without them.
I can't wait to tell this doctor in December. He'll brush it off, but I don't care. We need to be our own advocates. I wouldn't say my doctor doesn't care, I just think a majority of doctors don't care enough to look into what is working for people, even if they didn't learn it in medical school. As long as it does no harm, it's the results we're after isn't it
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| Re Gluten Intolerance and Ulcerative Colitis
| Posted by Jessi
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I was diagnosed with ulcerative proctitis and just last week diagnosed also with inactive colitis. I insisted on a blood test for celiac which came back negative but that I have read isn't surprising.
I don't believe in relying on drugs to mask these symptoms so I started on a gluten free diet 4 days ago and I haven't felt this good in 3 years! I totally believe that I am gluten sensitive or have celiac. I believe that this undiagnosed sensitivity has caused the colitis. Even though I am just new to this gluten free diet I am so happy and proud of myself.
In my opinion doctors don't "want" to test and diagnose for celiac or gluten sensitivity because there is no drug that they can prescribe because its all about diet. It's easier for them to label it IBS or colitis
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Tom Contini
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Hi,
I've been in a bad way, ever sence 93' active duty army, v.a. called it different stuff, but it was figered out in 2000 that it was ulcerative colitis by a civilian doctor. I was put on asacol and think that its great, but it relieves the pain and relapes.( up to 12 pills a day)but I dont think i can live on this so to make this short im o pos blood and eating for my blood type no gluten no recordable results yet but feel better and loss of pounds. but i do beleve it is true ate wheat bread allways, and its in everything
thanks good by
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| Re Gluten intolerance and Pain
| Posted by Janette Ingham
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THANKS for this support!
My (previously healthy) 15 yo daughter has just been through 6 months of suffering beginning with a stomach wog, then prescribed Flagyl (antibiotics), then they discovered Blastocystis Hominus a relatively common amoebic creature, so she was treated with 5x loads of antibiotics inserted as an enema. Her symptoms only worstened, cramps, reflux, undigested bowel movements. Then I found the symptoms of gluten intolerance online (no doctor came up with it) and (praise God) after 4 days off it the pains have gone away. However, she's sad her diet has to change, I'm hoping it won't be permanent.
Regards, Janette
Date Nov 2009
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| Re: Gluten intolerance and severe joint pain
| Posted by Tina
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I can not believe I found this information. I have twins, one with autism, soon to be 8 years of age. Tried to use the GF/CF diet at 4 years of age. Unable to continue this because of the texture aversion and very limited foods. I continued to let my child eat what would go into his tummy. He began severe toe pain over a year ago. 2-'09 I took to a new pediatrician and she said Plantar Fasciitis ( pain would be in heal of foot from this). Wanted feet x-rays, mentioned arthritis and broke bones. Pedia. told me this toe pain and rubbing toes and screaming in pain from my child was all aggressive behaviors, told her my son went the opposite way and has never had aggressive behaviors. Told me that she saw my son jumping on his feet while at her office with my husband and that if he had toe pain he wouldn't be able to jump. I replied that well if you think that then what makes you think he may have broke bones in feet and requesting x-rays? I made her angry at me by saying this and she wrote me a nasty 3 page letter stating that I had a psychiatric disorder and sent copy to our new pedia. and we had a one hour conversation with him in which he told us he thought previous pedia. was stating maunchausen. My son recently began to have full blown allergic reactions after eating boxed cake mix. I took to allergist who said allergies have nothing to do with toe pain. Last week I got x-rays by podiatrist and his feet and bones are perfect. I am sick to my stomach that this doctor has done this maunchausen thing against me. I really don't care what they think of me , I just want my child to be pain free. I can deal with the autism. Because my child is non-verbal and unable to describe his pain with words is why we have been treated this way. Can someone please tell me where to find the scientific researched info. for joint pain in children with gluten intolerance. I am so grateful to the person's who posted this information
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| Re: Gluten intolerance and severe joint pain
| Posted by Peter
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Author(s): Holtmeier W ; Caspary WF
Affiliation: Medizinische Klinik I, Johann Wolfgang Goethe-Universität, Theodor-Stern-Kai 7, 60590 Frankfurt am Main, Germany. W.Holtmeier@em.uni-frankfurt.de
Title: Celiac disease.
Source: Orphanet journal of rare diseases (Orphanet J Rare Dis) 2006; 1: 3
Additional Info: England
Standard No: 1750-1172 (Electronic); NLM Unique Journal Identifier: 101266602
Language: English
Abstract: Celiac disease is a chronic intestinal disease caused by intolerance to gluten. It is characterized by immune-mediated enteropathy, associated with maldigestion and malabsorption of most nutrients and vitamins. In predisposed individuals, the ingestion of gluten-containing food such as wheat and rye induces a flat jejunal mucosa with infiltration of lymphocytes. The main symptoms are: stomach pain, gas, and bloating, diarrhea, weight loss, anemia, edema, bone or joint pain. Prevalence for clinically overt celiac disease varies from 1:270 in Finland to 1:5000 in North America. Since celiac disease can be asymptomatic, most subjects are not diagnosed or they can present with atypical symptoms. Furthermore, severe inflammation of the small bowel can be present without any gastrointestinal symptoms. The diagnosis should be made early since celiac disease causes growth retardation in untreated children and atypical symptoms like infertility or neurological symptoms. Diagnosis requires endoscopy with jejunal biopsy. In addition, tissue-transglutaminase antibodies are important to confirm the diagnosis since there are other diseases which can mimic celiac disease. The exact cause of celiac disease is unknown but is thought to be primarily immune mediated (tissue-transglutaminase autoantigen); often the disease is inherited. Management consists in life long withdrawal of dietary gluten, which leads to significant clinical and histological improvement. However, complete normalization of histology can take years
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| Re: Gluten intolerance and severe joint pain
| Posted by Peter
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Hans ZJ
Affiliation: Yankton Bone Joint & Sports Medicine Center, Yankton, SD, USA.
Title: Celiac disease: its implications for orthopaedic nursing.
Source: Orthopaedic nursing / National Association of Orthopaedic Nurses (Orthop Nurs) 2008 Sep-Oct; 27(5): 291-4; quiz 295-6
Additional Info: United States
Standard No: ISSN: 0744-6020 (Print); 1542-538X (Electronic); NLM Unique Journal Identifier: 8409486
Language: English
Abstract: Celiac disease (CD), also known as gluten-sensitive enteropathy, is an inherited autoimmune disease that can lead to multisystem effects. Left undiagnosed and untreated, it has severe orthopaedic implications involving osteoporosis and unnecessary treatment of joint pain, which could be avoided. The orthopaedic nurse may have thought that CD was primarily an abdominal disorder. We need to be aware of the potential practice implications in orthopaedics by understanding the disease, its diagnosis, and treatment. Furthermore, orthopaedic nurses can contribute to current research by studying the relationships between CD and orthopaedic problems
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| Re: Gluten intolerance and severe joint pain
| Posted by Peter
|
Slot O ; Locht H
Affiliation: Department of Rheumatology, Copenhagen County Hospital Gentofte, Hellerup, Denmark.
Title: Arthritis as presenting symptom in silent adult coeliac disease. Two cases and review of the literature.
Source: Scandinavian journal of rheumatology (Scand J Rheumatol) 2000; 29(4): 260-3
Additional Info: NORWAY
Standard No: ISSN: 0300-9742 (Print); 1502-7732 (Electronic); NLM Unique Journal Identifier: 0321213
Language: English
Abstract: We report 2 cases of adult silent coeliac disease (CD) presenting with arthritis of a knee and a sacro-iliac joint, respectively. In both patients the arthritis was relieved on a gluten free diet. The literature on arthritis in adult CD is reviewed
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| Re: Gluten intolerance and severe joint pain
| Posted by Peter
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Author(s): Bourne JT ; Kumar P ; Huskisson EC ; Mageed R ; Unsworth DJ ; Wojtulewski JA
Title: Arthritis and coeliac disease.
Source: Annals of the rheumatic diseases (Ann Rheum Dis) 1985 Sep; 44(9): 592-8
Additional Info: ENGLAND
Standard No: ISSN: 0003-4967 (Print); 1468-2060 (Electronic); NLM Unique Journal Identifier: 0372355
Language: English
Abstract: We report six patients with coeliac disease in whom arthritis was prominent at diagnosis and who improved with dietary therapy. Joint pain preceded diagnosis by up to three years in five patients and 15 years in one patient. Joints most commonly involved were lumbar spine, hips, and knees (four cases). In three cases there were no bowel symptoms. All were seronegative. X-rays were abnormal in two cases. HLA-type A1, B8, DR3 was present in five and B27 in two patients. Circulating immune complexes showed no consistent pattern before or after treatment. Coeliac disease was diagnosed in all patients by jejunal biopsy, and joint symptoms in all responded to a gluten-free diet. Gluten challenge (for up to three weeks) failed to provoke arthritis in three patients tested. In a separate study of 160 treated coeliac patients attending regular follow up no arthritis attributable to coeliac disease and no ankylosing spondylitis was identified, though in a control group of 100 patients with Crohn's disease the expected incidence of seronegative polyarthritis (23\%) and ankylosing spondylitis (5\%) was found (p less than 0.01). Arthritis appears to be a rare manifestation of coeliac disease. This relationship may provide important clues to the role of gastrointestinal antigens in rheumatic diseases
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Karen
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I guess if you've had the disease and the gluten free works then it must have something to do with it don't you think. My sister has UC, she went gluten free and potato free and she hasn't felt better in the past 3 years. My brother also got it and he refused to go gluten free and he almost died from a hemorage from his bowel that burst from the disease and now has a bag for the rest of his life. So hey if it's working then go for it. I swear it saved her from what my brother went through and he got it after her. Putting steroids into your body until you puff up like a balloon with blisters weeping from your face or changing your eating habits and live normally. Hmmmm that's a hard one.....not
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Adam Paul
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Yes! I have been a UC suffered for over 20yrs and have found only recently that with my flare ups, has been from Gluten and MSG ! After moving to HK and China noticed a daily flare up and found it to be the gluten in the found and also the daily intake of MSG in all the chinese dishes..
I firmly believe these 2 products been the cause of my long problem.
After 20yrs of finding out what caused it, I am relieved now what causes my flare ups!
I really hope this works for all your readers as it has for me who suffer severe pains and bleeding.
AP
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| Gluten intolerance
| Posted by Aubrey
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I am checking out info on the web about celiac disease. I have never been tested but plan to ask my doc to do this. I have had ulcerative colitis/crohn's disease, thyroid diseas (Graves), losing skin pigment in symmetrical pattern all over the body (vitiligo) and I have just recently been diagnosed with ankylosing spondyltis (type of arthritis). Doctors have also suspected Lyme's disease and I was told that I probably have fibromyalgia as well. My endocrinologist has concerns about persistent vitamin deficiencies that show up in my bloodwork, but my colon doc says that it is probably just a poor diet... I am wondering is it possible that I actually may have celiac disease or gluten intolerance that is an uderlying cause of all my autoimmune problems? Is it possible that I have not ever been tested? I find it hard to believe that my doctors may not have ever tested me for this prior to all of my intestinal surgeries, etc (including the total removal of my large intestine, an ileostomy bag and J-puch reconstruction). WOuld be great if I could feel better through a gluten-free diet and I am considering just trying it on my own, but I am not sure if there is a reason to get a diagnosis first... ANy guidance or advice would be appreciated. I am 35 and have 3 children but most days I feel like I am in my 80s. SOunds like many can relate to this feeling unfortunately
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| Gluten Intolerance and Ulcerative Colitis
| Posted by Aubrey
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I have had ulcerative colitis for 15 years and suspect a gluten intolerance/allergy. I do't know that I have ever been tested for it, but I also wonder whether a gluten sensitivity is the underlying cause for my colitis (and other autoimmune problems--thyroid, skin, ankylosing spondylitis/arthrits). I plan tp request a blood test at my next dr appt. I am thinking of trying the GF diet myself to see if it helps. Although I would be relieved to kno0w the cause and have hope for improvement, it would also be frustrating since I have had a total colectomy (removed entire large intestine and part of the ileum), I had an ileostomy bag for one year, and a J-puch reconstruct. All of these surgeries are in addition to years of pain and low quality of life, many hospitalizations with flare ups. If it does turn out to be gluten--I know I will wish I had known years ago and could get those years back (I have 3 young children). Good luck! I am interested to hear more
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| Re Gluten Intolerance and Ulcerative Colitis
| Posted by Aubrey
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YOu sound like me! I too have ulcerative colitis and ankylosing spondylitis as well as thyroid problems. I had my colon removed, had an ileostomy bag for a year and was then reconnected with a J-pouch procedure. I am now wondering if I have underlying celiac disease... I have had stomach problems since infancy--was allergic to soy and milk. Anyway, I am looking for answers and open to suggestions. I am about to start Enbrel injections for the artritis. Can anyone tell me about this medicine? I think I am suppsoed to do weekly injections
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| Gluten intolerance
| Posted by Peter
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Aubrey
There is quite a high possibility that all your problems have a single cause. They can all be the result of an intolerance to gluten, and the adverse reactions to soy and milk are typical of this as well.
It is very important that you have the blood tests before you start as gluten-free diet, but as soon as these are done you could start a gluten-free diet - it must be completely gluten-free to be effective.
The tests may be negative, but you may still find the gluten-free diet very effective.
There is another condition called the 'leaky gut syndrome' which can also produce this typical range of symptoms. It is partly the result of too much fine grains of food being absorbed by the gut lining without proper digestion, and causing inflammation and autoimmune response throughout the body. Avoid products made from fine flour when you try the GF diet. Eat potato, rice, quinoa, sweetcorn rather than GF bread, cake and biscuits
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| Re: gluten and clinical depression
| Posted by Sharon MacDiarmid
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I have read that often people who have celiac disease also have sentitivites to foods like corn, fructose, dairy, yeast, soya and I've found all of these affect me in some way. Maybe you're eating more of something now and that is causing the depression
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| Re: Gluten intolerance and Pain
| Posted by Margaret Pickering
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Hi, My daughter was diagnosed with RA but she did a food elimination diet and was much improved. However, due to a lot of weightloss she now is eating all the foods she shouldn't. My question is, did anybody actually feel worse before feeling better when eliminating gluten. I seem to remember that when she first eliminated gluten she was in so much pain but then it went away.
Any help would be gratefully received, plus help with other foods to eliminate such as aspartame.
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| Re UK Gluten Free Beer
| Posted by Stuart Evans
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Annhauser Busch(Budweiser) produce Redbridge in the USA,Its widely available through Walmart
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