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Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance

 Polenta  Posted by Peter on 2010-03-13 (message id=4708 )
If you look at the top left of this page you will see a search box. Type in Polenta, and it will find you lots of references to polenta, and using polenta in gluten-free cookery

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 Polenta  Posted by susanbrooks on 2010-03-13 (message id=4707 )
Please could I have info re gluten free recipes using polenta. I know very little about this, and I understand it can be used for people with coeliac disease.



Thankyou



Susan Brooks

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 Re: Wedding Cake HELP  Posted by bijou on 2010-03-13 (message id=4706 )
san marco patitsserie 514 7275401

in montreal makes gluten free wedding cakes.and vegan ..very good

i allways order there . there famous for there wedding cakes

they can make anything

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 Re: Sorghum and Garfava flour in the UK  Posted by Ann on 2010-03-12 (message id=4704 )
I have seen that people have done gluten tests on some of the sorghum flour sold in the Asian shops and it does NOT pass the gluten test. Whilst the flour itself is gluten free obviously the method/manufacture process is not.



Does anyone know of sorghum sold in the UK that is actually guaranteed to be gluten free?



Just thought I should warn people if they are coeliacs and relying on using the flour from the ethnic shops

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 Glutenfree recipes for Feeding Children  Posted by Jacquie on 2010-03-11 (message id=4703 )
Hello

My Little girl was diagnosed with Coeliacs at 2 1/2 Biscuits are pretty much a no no unless you go for free from bscuits sainsburys have a great range including animal shaped biscuits prefect for little ones Walkers crisps are pretty much ok but check the flavours for example I think barbecue has gluten in it

Good luck

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 Re Millet Bread Recipe  Posted by Joey on 2010-03-10 (message id=4702 )
Hi Rendi, here's a recipe that might work for your daughter. I grind the grain and nuts in my high-powered blender. If you don't have one, you can probably use a food processor.



Millet Muffins yield app. 1 dozen



1 cup coconut or nut meal / flour

1 cup millet flour

2 tsp baking powder, gf

1 tsp sea salt

1/2 tsp baking soda



blend above together in bowl. (I make the entire batter in my blender. I put all dry ingredients in and pulse until flour consistency. Then I add the wet, blend everything together and pour the batter right into the muffin tins.)



3 -4 egg yolks ( I use 2 whole eggs. You can try substituting arrowroot or flax meal mixed with water as an egg replacement, but I haven't tried that yet.)

3 tbsp pure maple syrup

2/3 cup almond milk or coconut milk mixed with 1/2 tsp raw apple cider vinegar

1 1/2 tbsp olive oil or grapeseed oil

1/2 cup grated carrot, zucchini or yellow squash (optional)

or 1/2 cup applesauce or fruit or veggie puree



Mix wet ingredients in large bowl. Add dry mix. Stir. Scoop into paper-lined muffin tins. Bake in a preheated oven 375 for about 15 -20 minutes or until tops are nicely browned an a toothpick inserted in the center comes out clean.



Remove from pans and cool.











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 Sorghum and Garfava flour in the UK  Posted by IndianMart on 2010-03-10 (message id=4701 )
Hi

Visit our website www.indianmart.co.uk and you can find lots of gluten free flours. we also do free* next day delivery throughout UK.

Look forward to serve you.

Indianmart Team

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 Re: gf bread using breadmaker  Posted by Toria on 2010-03-09 (message id=4700 )
Please help. I'd also like gf and wheat free recipes for the bread maker. Is anyone able to email ne with dome. Plus advice on how to get a good loaf from a bread machine and which bread machine is best. Gotta buy one you see.



Many thanks it's very much appreciated



toria

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 Vegetable suet  Posted by Peter Rice on 2010-03-08 (message id=4698 )
Hello,



We make vegetable suet with Rice flour rather than wheat flour. We are BRC and in the process of going "gluten free" (i.e 20ppm) but at the monent our Rice Flour product can be bought from Community Foods who suppply a number of health food shops around London area.



If you let me know where you are based I can let you know your nearest supplier.



Regards,



Peter

Prima Foods UIK Ltd

www.primafoods.co.uk

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 Re gf bread using breadmaker  Posted by Luisa on 2010-03-06 (message id=4697 )
Hi!

I would love to have those gf recipes for the breadmaker. I am fed up of feeding the bin with my bread

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 Re: What you must not eat  Posted by christel on 2010-03-04 (message id=4695 )
If you look on the back to packets it should indicate whether the crisps are gluten free. Also check the ingredient list, some are ok but not all

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 Re: What you must not eat  Posted by Christel on 2010-03-04 (message id=4694 )
I have to agree. Am newly officially diagnosed although have suffered for many years. It's great to have a diagnosis after so many years, gp's at times make you feel like you are wasting their time so you just don't go back.



Just like you if I have cheese I have a raction within an hour. Same sadly with chocolate, I thought it was just me so am glad you have mentioned this. Will now also keep this off my growing list of no-no's.



Good luck

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 Re: How long for GF diet to work  Posted by sherry kaskey on 2010-03-04 (message id=4693 )
I have gluten intolerance and was improving with a gluten free diet, then my old bad symptoms reappeared. I discovered that the problem was in the soy milk I had started drinking. I hadn't looked at the label carefully enough: it contained wheat and barley extracts

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 gluten-free teething cookies  Posted by Jodi on 2010-03-03 (message id=4692 )
Hot Kid Baby Mum Mum biscuits are organic rice rusks and gluten free. My 10 month old has been having them for months and yes, they dissolve. They are wonderful...he can hold them too

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 Re: rash on chin  Posted by Misty on 2010-03-01 (message id=4690 )
I have been getting this clusterlike rash on my chin maybe twice a year for the past 3 years. Before anything is visible, it will itch extremely bad. I will wake up with this gross cluster of clear fluid filled bubbles. I went to my dermatologist 2 years ago and he said that he thought it was a fever blister. Me and all immediate family members have never had a single fever blister ever. I did however have a Hepatic Adenoma that erupted and blew out half of my liver 4 years ago. The reason I'm telling you this is because of the massive amount of blood I received before my operation. My dermatologist said that I possibly could have gotten some infected blood during my transfusion. That blew my mind...to think I have gone all my life without fever blisters and wham, all of the sudden now!

Each time I get one of these on my chin, I treat it as a cold sore. I have taken Valtrex and tried every remedy out there on the web! They ooze, then crust over and shrink up. What else could they be? They are so embarassing

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 bananas  Posted by lisa on 2010-02-27 (message id=4686 )
I have been recently working out and trying to stay on a gluten free diet, I am gluten sensitive. Well I don't eat a whole lot, I ate once a day for years, but when I started working out I found I was hungry more often so I started having a banana in the morning for awhile, I started having cramps and bloating up and couldn't understand why. I was eating things i'm allowed to eat what is going on, then one day I had a banana and with in 10 min. I started having cramps and then it just clicked, bananas.Do you have any thoughts on why that might be

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 yorkshire pudding mix  Posted by Peter on 2010-02-26 (message id=4685 )
Well done Heidi for doing your homework.
Unfortunately I have never seen a good gluten-free Yorkshire pudding recipe. I would go for a good range of roast vegetables round the joint. As well as the roast potato, I do parsnip, carrot, a large onion and half a squash

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 Re: Maltodextrin  Posted by julia platt on 2010-02-26 (message id=4684 )
I have recently been diagnosed with celiac disease. I have been overweight for most of my adult life and havn't been able to explain it. I have suffered with severe constipation, severe hair thinning, itchy skin, bloating and stomache cramps. Since going gluten free these have stopped. My doctor started me on calcium tabs with vit d in them and had sever wind/cramps that lasted about 12 hrs. I didn't take them the next day and was fine. After taking them again and getting the same symptoms i looked at the list of ingredients and maltodextrin was listed. I have now noticed that anything containing maltodextrin has the same effects. I have read on the internet that maltodextrin sourced in the EU is probably made from wheat whereas in the USA it is made from corn, potato or rice.http://celiacdisease.about.com/od/faqs/f/Maltodextrin.htm

Check it out. There is so much conflicting info that it baffles the brain

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 yorkshire pudding mix  Posted by Heidi on 2010-02-26 (message id=4683 )
HELP!!!

IVE GOT A SPANISH EXCHANGE STUDENT COMING FOR 6 DAYS WHO HAS A GLUTEN FREE DIET.

I have a family of 5 and we live on benefits as husband is on incapacity, so we are on a limited budget. i would like to feed all six of us the same food so i dont have to prepare twp meals everyday. i have got a variety of traditional english meals of your website and they are a brillent help buy i was wondering if you have a yorkshire pudding recipe? as i would like to show her a traditional sunday roast lunch

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 Re: rash on chin  Posted by Jenny on 2010-02-23 (message id=4682 )
Well I am joining the list! I have had this rash for 15 years! Same thing, small red bumps that fill with fluid then scab. Very painful, been to too many dermatologists to count! Been on everything known to man! Had biopsys, allergy tests. If it's out there I've tried rubbing it on, tried not eating it, tried not using it etc....!!! This crap is sooooooo annoying I can't tell you the frustration! If anyone knows or has any advice please---I am at the end of my rope

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 Re UK Gluten Free Beer  Posted by Stuart Evans on 2010-02-21 (message id=4681 )
Annhauser Busch(Budweiser) produce Redbridge in the USA,Its widely available through Walmart

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 Re Facial rash  Posted by Heather on 2010-02-20 (message id=4680 )
I was diagnoses with celiac disase about 5 years ago, i had this really bad rash on my nose and under both of my eyes across my checks its commonly known as the "butterfly" rash. I had it so bad it looked like i had second or third degree burns on my face, it was very itchy and painful. i was in and out of the doctor and no one could tell me what it was... i used so many different prescription cream and nothing seemes to work. fianlly my doctor suggested washing my face with selsum blue ( dandruff shampoo) i did this every morning for a week and it work! I have never had it again as bad as that time but once in a while i will get it. And it seems to be when i am under alot of stress

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 Birthday Cakes  Posted by jessica on 2010-02-19 (message id=4678 )
hi im jess

i have a little girl hows 1st birthday is coming up next month and it needs to be gulten and dairy and lactose free

many thanks6cs7x9

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 Re: TEFF GRAIN AND FLOUR  Posted by Sue Rigby on 2010-02-18 (message id=4677 )
We have had many enquiries about Teff since Roley's products disappeared from supermarkets. I am happy to inform you that Teff flour (white and brown) and Teff grain is available via our website (mail order only I'm afraid) or the flour is ACBS approved so can be obtained via NHS prescription.

Visit www.innovative-solutions.org.uk to download a prescription form and you pharmacist can order direct.

Hope this helps

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 wheat intolerance? Advice  Posted by christina on 2010-02-17 (message id=4676 )
To you not feel good an doctor thinkn there nothing wrong dont give up I to had lot of these days for 2 years tell i got tested an it came out i am allergic to wheat eggs chicken grapes garlic. an to alot of meds . I went throu alot of doctors. some just thought i was crazy i was having fast heart rates, swelling, feeling sick all the time. an now i feel better an i lost 50 pounds. dont give up

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 Re: Breakfast cereals  Posted by christina on 2010-02-17 (message id=4675 )
does any body no if caned juce have grapes in it. I cant have wheat or grapes and I go to the organic section an everything has caned juce. so it makes it harder for me i also cant have eggs or chicken. help

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 Re: TEFF GRAIN AND FLOUR  Posted by Phillipa on 2010-02-17 (message id=4674 )
Roley's have stopped importing it I gather because of the value of the £/euro. Waitrose have 'suspended' it from their list which I gather means it is not a permanent withdrawal.

Roley's will only sell it using SEPA for which the banks charge £30

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 gravy  Posted by sue on 2010-02-16 (message id=4672 )
I would like to find gluten free gravy. Bisto use to have gluten free on i's label till reasantly but now says it is made on a kine that may contain wheat? Do you think I will be ok to continue eating it,



Sue

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 Re: Fish and Chips  Posted by Jon Price on 2010-02-15 (message id=4670 )
Hi Janelle,



Where abouts is your fish bar??? I live in Brynmawr and all 3 of my Children are Coeliac and would love to go have fish and chips from a chip shop! (Sounds really odd but when you're 9, 7 and 4 years old the thought of fish and chips from a real chippy really excites them!)



Thanks!!



Jon

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 Re What you must not eat  Posted by elizabeth on 2010-02-13 (message id=4667 )
try almond milk. I like it and it is great sub for milk

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 Re gf bread using breadmaker  Posted by dave ring on 2010-02-11 (message id=4664 )
i would love all the recipes for wheat/gluten free products as my sister has to have them and a lot of the products are expensive for her to buy and i would like to bake them for her. i am quite prepared to pay if necessary.hope to hear from you

regards

dave

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 14 yr old  Posted by tracy on 2010-02-09 (message id=4662 )
the only way to improve mood swings is to avoid 100\% gluten containing foods.

i suffer terribly when i have even the smallest amount so i think im hyper sensative.

it always helps to have people around that are supportive when an alllergy reaction occurs. dealing with it alone is hard to cope with.

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 ambrosia devon custard  Posted by ann manson on 2010-02-08 (message id=4658 )
please advise if Ambrosia Devon Custard is gluten free it says on the label no artificial additives.

I am a carer for a lady with gluten intollerance just recently and would appreciate any info

thanks

Ann Manson

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 alcohol  Posted by Trevor on 2010-02-06 (message id=4655 )
Tesco Old Kent Road. £2.79 for 500ml. 4.8\%vol. Not bad taste.Bit bitter but

nice with a splash of lemonade. Taste different I suppose like most gluten-free

stuff

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 KIDNEYS? What you can eat on a gluten-free diet  Posted by Humberto on 2010-02-06 (message id=4654 )
Hi There,



After a couple of months of serious illness that happily ended with my gluten intake, last year I discovered that I am celiac. The learning process was hard and I kept poisoning myself, but after a couple of months of trial-and-error and reading useful websites like this (thank you!) I managed to keep 100\% gluten-free. I am doing quite well now, feel 10 years younger, and do not miss any gluten-based food.



However, two weeks ago I prepared lamb kidneys and, surprisingly, managed to poison myself with gluten. The symptoms were unequivocal and I am 100\% sure that did not eat gluten from other sources as I cooked everything at home. Apart from the kidneys everything was “food as usual”.



I washed the kidneys well and removed the inner bits as required, but suspect that there were traces of lamb urine (sorry if this sounds disgusting). Would it be possible that this urine contained some gluten from the animal food? What are the risks of eating gluten from offal?



Thank you for your answer!



PS: I am also happy to help whoever has gluten-related questions!

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 Re: MIGRAINE  Posted by Patricia Brazil on 2010-02-05 (message id=4652 )
I searched for a dietary cause for my severe migraines and discovered that a wheat free diet meant no more migraines for me.

I now know that I am coeliac as my IBS also stopped and a blistery rash I would often get on my buttocks also disappeared. I believe this is called DH.

For the last twenty years I have followed a gluten free diet and been well.

Many doctors in my experience do not connect CD to Migraine

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 Re Fatigue  Posted by Judy Coleman on 2010-02-01 (message id=4649 )
Has anyone suggested to you that you may have Lyme disease? It is worth looking into. Don't be put off by doctors who are not familiar with Lyme. I don't know what area of the country you live in, but someone with Lyme needs to see a dr. who specializes in it, and I don't mean an infectious disease dr. The tests for Lyme are often negative when the person actually has it. Do you ever, or have you ever, had any rash or rashes? Do you know of a tick bite before you got sick? If not, don't let that put you off the possibility of Lyme as about half the people with Lyme disease don't remember a tick bite, and only about 30 percent of Lyme patients get a rash. It's a helpful tip, tho, if you have had the rash. So you must find a dr. who knows the specialty tests that will tell you for sure if you have Lyme disease or one who will make a clinical diagnoses based on symptoms, and you do have the symptoms. Treatment is an extended treatment of antibiotics. And not all antibiotics work for each case, as there are diffferent strains of Lyme that respond to different antibiotics, and it is sometimes a trial and error thing of getting the right meds. I am familiar with Lyme as my whole family has had it, and it can get very serious if not treated. My oldest daughter had untreated Lyme for 8years, and she was very sick and it took about 4 years of treatment for her to get over it. Many people if not treated early can suffer from it for a lifetime. Get on the internet and find out about Lyme. Go to www.lyme.org or www.lymenet.org. There are many other websites out there also. Good luck

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 Re What you must not eat  Posted by rita on 2010-01-29 (message id=4644 )
What did you find out about white wine? Can we drink it? I miss the wineries

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 Re: Maltodextrin  Posted by susan King on 2010-01-28 (message id=4642 )
maltodextrin makes me very ill... and as I read this I see that it just came on the market 2008... I thought i had some kind of food poiosioning.. Maldodextrin is made from echoli and that is exactly how ill I get.. as if I have food poisioning.

Does anyone have a list of current and popular foods that are now using it ??

My last exposure was the Welch's dark grapejuice... full of it !! Guess I won't be able to take communion anymore... hahaha

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 Re: Maltodextrin  Posted by Maria Z on 2010-01-28 (message id=4641 )
I too have gotten to the point where I can not move with out my whole entire body aching in pain.....symptoms of Fibromyalgia just like with what happens with Aspartame. I am going to stop using Splenda and see if my symptoms go away. Every muscle in my body aches and I truly think its the Splenda. A couple of months ago I ran out and was using regular sugar for about 3 weeks and looking back now.....I realize that my symptoms were not as bad and my depression lifted considerably. Lets face it.......we keep hoping for the perfect replacements for REAL foods and its just not gonna happen. If its not REAL FOOD than its not good for us

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 Re: Sorghum and Garfava flour in the UK  Posted by SM on 2010-01-24 (message id=4637 )
Just thought I should let you know as a coeliac you shouldn't be eating East End products there not gluten free thanks to contamination from processing, I phoned to check. Ive been looking for Sarghum/ Jawur for a while but although I can find it I can't find specific GF brands Natco I think do but I have no idea where there stocked (and neither do they

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 Re: Soy Sauce  Posted by H Jenkins on 2010-01-24 (message id=4636 )
Hi Racheal



I get my gluten free soy sauce from Waitrose in the free from section, they always have it.



I hope this helps

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 Breakfast cereals  Posted by Cindy on 2010-01-20 (message id=4634 )
General Mills Corn Chex, Cinnamon (corn and rice) Chex, and Honey Nut Chex are gluten free. Hope this helps

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 Re: Gluten intolerance and Pain  Posted by Margaret Pickering on 2010-01-15 (message id=4629 )
Hi, My daughter was diagnosed with RA but she did a food elimination diet and was much improved. However, due to a lot of weightloss she now is eating all the foods she shouldn't. My question is, did anybody actually feel worse before feeling better when eliminating gluten. I seem to remember that when she first eliminated gluten she was in so much pain but then it went away.



Any help would be gratefully received, plus help with other foods to eliminate such as aspartame.



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 The Coeliac Condition  Posted by Peter on 2010-01-12 (message id=4625 )
Reply to Catherine 9th jan

The ultimate test is that you are returning to being fit and healthy on a gluten-free and dairy-free diet. When the response is so clear cut there is little reason to take gluten again, as the results of a subsequent test can be inconclusive, and your response to larger amounts of gluten may be much more severe than you have had before.

You could stick completely to the new diet for a couple of months, and review the situation then. If your health continues to improve then stick with the diet!

Ultimately it is your decision what you do. You know your symptoms better than the doctor. Listen to their advice, but make up your own mind

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 Austria Mayrhofen eating out  Posted by Peter on 2010-01-12 (message id=4624 )
We booked with Inghams, and stayed in one of their snow houses. We were very pleased with the quality of the accommodation and the gluten-free breakfast. Gluten free Schar roles, jam, a selection of cheese and wurst.

Eating out in Mayrhofen is easy, but we are a little restricted by our gluten-free diet.

Our highest recommendation is the Grillkuchl, A-6290 Mayrhofen. They took the trouble to understand our dietary requirements, served two meals between three of us, and hot water without charging for it. Thankyou for some excellent meals.

The Kramerwirt Hotel also served excellent food with some low price options, and served hot water without charge. Again thankyou for an excellent meal.

The restaurant Edelwiess served us our hot water to drink - but then charged us 4.2 Euros for two cups of hot water. Very big black mark there!

We sat down in the Neue Post Hotel, 400 Hauptstrasse Mayrhofen, but the non smoking part of the restaurant was very smokey, and they wouldn't serve tap water with a meal, hot or cold, so we walked out.
I do take a laminated card with my dietary requirements in English and German

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 Gluten, wheat and dairy free Cakes and Wedding cakes  Posted by Charlotte on 2010-01-11 (message id=4588 )
Hi!



I make any type of gluten, wheat and dairy free cakes, including wedding cakes. Please email me if I can be of assistance - I am London based and can ship - very reasonable prices too!



Many thanks,



Charlotte



Email:char8491 -at- aol.com

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 Re: gluten and clinical depression  Posted by Sharon MacDiarmid on 2010-01-11 (message id=4587 )
I have read that often people who have celiac disease also have sentitivites to foods like corn, fructose, dairy, yeast, soya and I've found all of these affect me in some way. Maybe you're eating more of something now and that is causing the depression

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 Re gf bread using breadmaker  Posted by tara on 2010-01-10 (message id=4586 )
Margaret

I just bought a bread maker with the gluten free setting, would love any recipes you have that work well.

Thank you

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 Basic Bread  Posted by Kim on 2010-01-10 (message id=4585 )
I tried Doves Farm bread flour and made a loaf in my machine. It smelt lovely and tasted just as good. It is denser and heavier than normal bread but was very, very edible. It also slices beautifully and does not crumble. If I could work out how to get it lighter I would be sorted

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 Malaysia and Singapore - Help  Posted by Mary on 2010-01-09 (message id=4584 )
Hi there - i promised the NZ Coeliac society some feedback as they had limited info for me - here is my input.
As promised I have done a bit of research about eating in Singapore.

Being gluten free in Singapore causes some problems when you want to eat out cheaply at the local food centres or Hawker markets as they are called. Cheap meals are abundant at these Hawker centres Singaporean style food halls usually around $3.50 $5.50. These are popular places for locals and visitors to eat. They are also everywhere some catering more for the locals than visitors but both have their good points. Unfortunately they are predominantly Chinese cuisine so soy, oyster or fish sauce and wheat are in almost everything. You can sometimes find Indian, Thai or other Asian foods here too.

Luckily, for me, my husband was able to ask the Chinese language teacher if she could write something for me to show at the hawker centres. This has been a blessing on a few occasions when I have been stuck, even at the local where I have my chicken rice order understood, it helped them understand. They looked at the note and nodded away and then it was great. Showed it to a Malaysian waitress once by mistake did not work, but she found the Chinese employees. What it can also do is get you talking to the right person a chef or waitress/waiter who has better English or understands ingredients. I have a laminated copy of this note permanently in my wallet unfortunately the sharp edges of the cut lamination cut through a Singapore $10 note this is now invalid tender! Small price to pay for being able to eat more. Have attached a scan of it for you.

Other advice would be to say that you get very sick if you eat gluten the very sick part is understood. If you say what you can eat e.g. I can eat, vegetables, meat, garlic, oil, sugar, rice and rice noodles then the no soy or sauces it can help. You can get a fried rice meal or an omelette in this manner that is GF. It is hopeless to ask what is in different dishes as they dont always understand you and they will say yes or no to anything. If in doubt move to another stall holder. The English of the food hawker stall operators can be limited. If you say no wheat or wheat flour they may well respond with No, its plain flour.

Chicken Rice a special Singaporean dish is often at Hawkers I tend to ask for chicken and plain rice, though the special chicken rice tastes superb, I have been upset by some of these meals so there may well be traces of soy sauce or powdered stock in the liquid / flavouring in the cooking process of that special rice. I have got into the habit of saying plain chicken, plain rice and no sauce- no soy, oyster or fish. If I have greens to go with it I say the same thing or just steamed vegetables no sauce or soy sauce. Having said that now that I have been once or twice to local hawker centres they know and say it to me to confirm the order! Great to go back to the same places!

Indian food is usually safe and the Indian stall holders English is often better than the Chinese. Little India, an area in Singapore, has a large number of restaurants serving yummy food at good prices. My advice is to try a dosa or dosah it can be called. These are like a large thin pancake and can be stuffed with a filling or plain. They come with dipping sauces/chutneys usually a coconut, chilli or tomato and dhal. The dosa is made out of fermented rice and millet. They are good for those who like mild to no heat and all GF.

The Lau Pa Sat food hall a huge Hawker centre, at the Cross St, Robinson Rd and Shenton Way intersection has an outstanding selection of Indian restaurants/stalls to choose from.

There are many restaurants that have more of the western cuisine though these are often expensive, definitely more expensive than in NZ. I still here say no sauces unless it is abundantly clear that the person understands the gluten thing well. Once again going to local or returning to restaurants that cater for your needs is a great way to ease the difficulties. Having said all that there is a very reasonably priced steak and seafood restaurant handy that i sa nice change from spices.

Supermarkets have a few items. Some franchises more than others. You do have to look around everywhere they dont seem to have quite the same order to them as other grocery stores. Cold Storage has a number of gluten free items such as corn-thins and a range of products from Orgran and other brands. Check the health sections of the stores. Fair Price has a few items but less than Cold Storage. I believe Giant has GF as well. I say buy when you see (it may not be there next time you go!) and keep a supply of snack foods you can throw in your bag for when you get stuck and you do! You can bring any food you want into Singapore so do bring essentials. Im bringing back GF flour and tamari sauce!

There are areas of Singapore that are populated more by ex-pats, Europeans Holland village is one of them. These places tend to have more western food alternatives and more GF products in the supermarkets.

A handy snack is tapioca chips that are cheap - look a bit like potato chips, which are dear here. They are a harder in substance than potato chips so more chews per chip, but they are a great snack and often found in market place areas. These are far better, in my opinion than the light fluffy tapioca chips that look like polystyrene and melt into nothing.

Fruit and vege are not as yummy and fresh as NZs so be prepared. Bananas are a great stand by and always less than $2 per kg.

So be prepared for a bit of an adventure (have your own supply for a day or 2 while you sort out places) if you dont want to eat expensively. You can certainly eat in the more expensive restaurants. Hawkers and Little India offer a variety of reasonably priced and tasty meals. You also mix with the locals which is great. Id suggest if you are here for a few days find a good hawker centre and frequent it or head to Little Indian.

Now that we have settled here and the local food outlet operators understand my dietry needs meaning that I can eat a variety of cheap meals with everyone else. We are also getting to know more and more suitable hawkers centres to eat at. Friends and acquaintances are always on the look out for me even shared some GF liquorice with me. I am happy to answer any further queries from any one. I found it quite disheartening initially trying to find food I could eat and not being understood by the stall holders so if I can minimise other peoples frustration I am only too happy to.
Have a Chinese note written with you it makes things easier!

happy to help anyone travelling here as i know how hard it can be.

Cheers
Mary

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 What finger foods can you give a baby over 6 months who must  Posted by Lindsey on 2010-01-09 (message id=4583 )
Yes.... Farleys do a gluten free version of rusks... I seem to remember getting some from tesocs

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 What you can eat on a gluten-free diet  Posted by lisa on 2010-01-09 (message id=4582 )
I get the flour and wheat, the big stuff. It's the other stuff that I'm not sure on. When you look at ingredients they have these big words that you have never heard of and you can't pronounce! How do you know what is ok

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 Re: What you must not eat  Posted by lisa on 2010-01-09 (message id=4581 )
I have been diagnosed with gluten sensitivity. I am finding it very hard.I hate the stores and am having a hard time to take the time to read labels. I basicly eat vegetables and salads and I am getting tired of them. Financially it is hard cause I hate to spend money on myself and justifying the difference in what I eat and my family eats is hard for me and my family likes the way they eat now. we've never eaten alot of junk per say, but we like our pasta! And the gluten free stuff is expensive. At least in Canada it is. I would love any input

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 Re: Breakfast cereals  Posted by on 2010-01-09 (message id=4580 )
All Chex cereals are gluten free...there are several flavors. I personally LOVE the honey nut Chex

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 The Coeliac Condition  Posted by Catherine on 2010-01-09 (message id=4571 )
Hi Peter,

I came accross you answering questions on another site and wondered if you can answer mine.

I've been worn out tired all the time, for five years. I saw the doctor and she couldn't help.

Then two years ago I developed aching hands and feet, no sleep...waking all night thirsty and would drink at least a pint of water overnight, my feet turned purple if I stood still for ten minutes, food made me nausious, I became alergic to everything including perfume I'd used for years, synus problems etc.

By the summer of this year I felt I was going mad and saw the doctor again, she couldn't help.

I've since seen two nutritionists who have both come up with the same results of no grain and no dairy.

I felt fantastic after 3 days, I couldnt believe it! I found it really difficult to stick to the diet, especially when staying with friends, but each time I had things on the naughty list, my symptoms started to return.

Going on the celiac site, I've done things the wrong way around to be diagnosed and have read I have to go back to my old way of eating for six weeks to test positive. To me this seems like madness, what should I do?

Many thanks

Catherine

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 Re gf bread using breadmaker  Posted by Paul on 2010-01-09 (message id=4570 )
Hi Margaret

I've been using my SD253 to make gluten free bread successfully for a year. I use the recipe on my preferred flour "Doves Farm" and it makes consistently excellent loaves and add variety using different seeds and spices (cumin really works well). However my wife has now developed a yeast intolerance and I would be very interested in your yeast free recipes.

Kind regards

Paul C

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 GF/DAIRY/EGG FREE BREAD  Posted by Laura on 2010-01-09 (message id=4569 )
Has anyone got any recipies for this - I am paying through the nose for silly little loaves!



Also can anyone recommend a bread machine that could cope with this? Seen some that will do gluten free but all want dairy and egg!



Help!

Regards

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 Re What you must not eat  Posted by ann on 2010-01-09 (message id=4568 )
I enjoy Goat's Milk, and find it in cheese's also

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 Gluten intolerance  Posted by Peter on 2009-12-30 (message id=4566 )
Aubrey

There is quite a high possibility that all your problems have a single cause. They can all be the result of an intolerance to gluten, and the adverse reactions to soy and milk are typical of this as well.
It is very important that you have the blood tests before you start as gluten-free diet, but as soon as these are done you could start a gluten-free diet - it must be completely gluten-free to be effective.

The tests may be negative, but you may still find the gluten-free diet very effective.

There is another condition called the 'leaky gut syndrome' which can also produce this typical range of symptoms. It is partly the result of too much fine grains of food being absorbed by the gut lining without proper digestion, and causing inflammation and autoimmune response throughout the body. Avoid products made from fine flour when you try the GF diet. Eat potato, rice, quinoa, sweetcorn rather than GF bread, cake and biscuits

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 Re Gluten Intolerance and Ulcerative Colitis  Posted by Aubrey on 2009-12-30 (message id=4565 )
YOu sound like me! I too have ulcerative colitis and ankylosing spondylitis as well as thyroid problems. I had my colon removed, had an ileostomy bag for a year and was then reconnected with a J-pouch procedure. I am now wondering if I have underlying celiac disease... I have had stomach problems since infancy--was allergic to soy and milk. Anyway, I am looking for answers and open to suggestions. I am about to start Enbrel injections for the artritis. Can anyone tell me about this medicine? I think I am suppsoed to do weekly injections

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 Gluten Intolerance and Ulcerative Colitis  Posted by Aubrey on 2009-12-30 (message id=4564 )
I have had ulcerative colitis for 15 years and suspect a gluten intolerance/allergy. I do't know that I have ever been tested for it, but I also wonder whether a gluten sensitivity is the underlying cause for my colitis (and other autoimmune problems--thyroid, skin, ankylosing spondylitis/arthrits). I plan tp request a blood test at my next dr appt. I am thinking of trying the GF diet myself to see if it helps. Although I would be relieved to kno0w the cause and have hope for improvement, it would also be frustrating since I have had a total colectomy (removed entire large intestine and part of the ileum), I had an ileostomy bag for one year, and a J-puch reconstruct. All of these surgeries are in addition to years of pain and low quality of life, many hospitalizations with flare ups. If it does turn out to be gluten--I know I will wish I had known years ago and could get those years back (I have 3 young children). Good luck! I am interested to hear more

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 Gluten intolerance  Posted by Aubrey on 2009-12-30 (message id=4563 )
I am checking out info on the web about celiac disease. I have never been tested but plan to ask my doc to do this. I have had ulcerative colitis/crohn's disease, thyroid diseas (Graves), losing skin pigment in symmetrical pattern all over the body (vitiligo) and I have just recently been diagnosed with ankylosing spondyltis (type of arthritis). Doctors have also suspected Lyme's disease and I was told that I probably have fibromyalgia as well. My endocrinologist has concerns about persistent vitamin deficiencies that show up in my bloodwork, but my colon doc says that it is probably just a poor diet... I am wondering is it possible that I actually may have celiac disease or gluten intolerance that is an uderlying cause of all my autoimmune problems? Is it possible that I have not ever been tested? I find it hard to believe that my doctors may not have ever tested me for this prior to all of my intestinal surgeries, etc (including the total removal of my large intestine, an ileostomy bag and J-puch reconstruction). WOuld be great if I could feel better through a gluten-free diet and I am considering just trying it on my own, but I am not sure if there is a reason to get a diagnosis first... ANy guidance or advice would be appreciated. I am 35 and have 3 children but most days I feel like I am in my 80s. SOunds like many can relate to this feeling unfortunately

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 Eating out  Posted by on 2009-12-28 (message id=4562 )
The branch La Tasca is brilliant for eating out. All the tapas on the menu state beside them wether they are gluten free or not, many options on the menu available and i really enjoy going there

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 Garfava flour in Calgary and Edmonton  Posted by Jean-Marc on 2009-12-28 (message id=4561 )
Hello Nel Jones:

If you are looking for Sorghum, Garfava flours in Calgary, the place to go is Planet Organic, they are at: 4625 Varsity Drive NW (at Shaganappi Trail) Calgary, AB, T3A 0Z9 403-288-6700 www.planetorganic.ca.

I have found quite a few difficult to locate items here and the staff are very helpful.

Merry Christmas

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 epilepsy, seizures and gluten  Posted by Tara on 2009-12-27 (message id=4560 )
There's a lab that does good work with celiac testing - www.enterolab.com



My daughter has CD. At age 14, she had her first grand-mal seizure and another one 3 weeks after the first. We took her off gluten (made our household entirely gluten-free) and she had no seizures for 4 years - until she went to college. She roomed in an apartment on campus with 4 girls - sharing a kitchen. We believe the cross-contamination caused another seizure because we subsequently moved her into her own place and she's been good for the past year. She's never been on any medication. The neurologist believes she has a very low tolerance threshold for gluten.



It is easy enough to get the testing and try the diet. I think the stool tests are most sensitive and its easy to verify the presence of the HLA DQ2 and or HLA DQ8 gene - a simple swab of the inside of the cheek.



In my experience, most physicians know very little about CD. They still think it presents as only a digestive disorder and that very few people have the disease. Dr. Fassano has done some really good research and wrote a good article in the August 2009 Scientific American magazine. Also, the book "Dangerous Grains" is a very good read.



I think gluten induced seizures are much more common than people think and in the near future - the medical community is going to FINALLY figure this out and get these children off these dangerous medications and put them on gluten free diets

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 epilepsy, seizures and gluten  Posted by Tara on 2009-12-27 (message id=4558 )
There's a lab that does good work with celiac testing - www.enterolab.com



My daughter has CD. At age 14, she had her first grand-mal seizure and another one 3 weeks after the first. We took her off gluten (made our household entirely gluten-free) and she had no seizures for 4 years - until she went to college. She roomed in an apartment on campus with 4 girls - sharing a kitchen. We believe the cross-contamination caused another seizure because we subsequently moved her into her own place and she's been good for the past year. She's never been on any medication. The neurologist believes she has a very low tolerance threshold for gluten.



It is easy enough to get the testing and try the diet. I think the stool tests are most sensitive and its easy to verify the presence of the HLA DQ2 and or HLA DQ8 gene - a simple swab of the inside of the cheek.



In my experience, most physicians know very little about CD. They still think it presents as only a digestive disorder and that very few people have the disease. Dr. Fassano has done some really good research and wrote a good article in the August 2009 Scientific American magazine. Also, the book "Dangerous Grains" is a very good read.



I think gluten induced seizures are much more common than people think and in the near future - the medical community is going to FINALLY figure this out and get these children off these dangerous medications and put them on gluten free diets

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 Re TEFF GRAIN AND FLOUR  Posted by Sue Rigby on 2009-12-21 (message id=4555 )
Hi Ghislaine,

You don't say where you live, but if you are in the UK and are entitled to free prescriptions then you can get brown or white Teff flour via our website. www.innovative-solutions.org.uk, simply download the prescription form and take it to your GP. You can also buy Teff grain from us, but not via the NHS, it does not yet have ACBS approval. Hope that helps. Good luck!

Sue

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 Gluten Intolerance and Ulcerative Colitis  Posted by Adam Paul on 2009-12-21 (message id=4554 )
Yes! I have been a UC suffered for over 20yrs and have found only recently that with my flare ups, has been from Gluten and MSG ! After moving to HK and China noticed a daily flare up and found it to be the gluten in the found and also the daily intake of MSG in all the chinese dishes..



I firmly believe these 2 products been the cause of my long problem.



After 20yrs of finding out what caused it, I am relieved now what causes my flare ups!



I really hope this works for all your readers as it has for me who suffer severe pains and bleeding.



AP

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 Re TEFF GRAIN AND FLOUR  Posted by Sue Rigby on 2009-12-21 (message id=4553 )
Hi Ghislaine,

You don't say where you live, but if you are in the UK and are entitled to free prescriptions then you can get brown or white Teff flour via our website. www.innovative-solutions.org.uk, simply download the prescription form and take it to your GP. You can also buy Teff grain from us, but not via the NHS, it does not yet have ACBS approval. Hope that helps. Good luck!

Sue

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 Re: tempura batter  Posted by Brian Wotton on 2009-12-17 (message id=4549 )
Since when has Stella Artois been GF? I wish, but it just ain't true I'm afraid. Suggest you back to the drawing board on this one

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 Re TEFF GRAIN AND FLOUR  Posted by ghislaine ossieur on 2009-12-16 (message id=4548 )
Can you inform me where I can buy teff flour ?

I would be very gratefull ?

Kind regards

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 Flour Mixes  Posted by stephen on 2009-12-15 (message id=4547 )
thanks for the mixes I will try a few



been making christmas cakes for many years



found that if you just use Gram flour (Ground chick peas)

you get just as just a good results as normal flour



in fact I make all my Christmas cakes this way, most people can not tell the diffrence as the flour is such a small proportion of the mix



give the mixe a few hours to rest before baking though as the flour seams to need time to abosorb the moisture



The flour is also good for parkoda and savoury pancakes as well





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 Heart Fibrillation  Posted by francesca on 2009-12-13 (message id=4545 )
Just arriving at these same conclusions....doing bioidentical hormone replacement therapy.....hormones drive the bus, so it seems. If we are out of progesterone and estrogen, adrenal glands work 'overtime' and CAN also cause the glucose intolerance. MSG, chocolate, coffee, wine (sulfites), and heaven only knows what else....my episodes can last 3 days....if I eat chocolate the day after an episode stops, I don't have symptoms....it builds up, as you are suggesting.....7 days, 10 days, and then the Afib starts...body seems to then 'detox' during the episode and then all is quiet..until cycle starts up all over again. Check out the amazing site of Hans Larsen www.afibbers.org

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 Where to buy the ingredients  Posted by hazel davis on 2009-12-12 (message id=4543 )
br>



Dear sir/madom,



I have newly diagnosed with having coeliac disease and im finding it hard to come to terms with the new way of life and new diet, and ive got two children which I will have to tested because they could have it aswell. And to top it all Im finding it hard to find any of the flours you need to make breads,cakes and pastrys. I wondering if you can help me please.





Yours sincerly



Hazel Davis

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 Re: Coeliac and wheat intollerance  Posted by Maree on 2009-12-10 (message id=4541 )
Delighted to find this site and discovering so many other people with the same problems as me. I have been suffering with bloatedness and pain in left side of abdomen for years and always told it's IBS. Recently I had been having to run to the loo after every meal and then had a bleed after stomach pain on one occasion. Dr sent me for a colonoscopy as the symptoms matched bowel cancer. But fortunately nothing was found. My daughter is a nurse and she suggested I could be intolerant to something. So I went wheat free for 10 days. What an amazing change. No more running to the loo, and the painful tummy is now only slightly tender. I also noticed that the hot flushes have stopped. I had got used to them as I am a woman of 58 and have been putting up with them for more than 10 years. My Dr is now going to do a blood test to prove that we've found the solution. I found that gluten free stuff at the supermarkets is dearer and high in fats and sugar which is annoying. Thanks for all the info. Good luck with your new diet everyone

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 Re: Gluten Intolerance and Ulcerative Colitis  Posted by Karen on 2009-12-10 (message id=4540 )
I guess if you've had the disease and the gluten free works then it must have something to do with it don't you think. My sister has UC, she went gluten free and potato free and she hasn't felt better in the past 3 years. My brother also got it and he refused to go gluten free and he almost died from a hemorage from his bowel that burst from the disease and now has a bag for the rest of his life. So hey if it's working then go for it. I swear it saved her from what my brother went through and he got it after her. Putting steroids into your body until you puff up like a balloon with blisters weeping from your face or changing your eating habits and live normally. Hmmmm that's a hard one.....not

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 possible Coeliac  Posted by hannah on 2009-12-08 (message id=4538 )
hi, i was wondering if i could get some adivice...

about 3 months ago i was admitted to hospital with severe abdominal pain, no1 knew what it was. since then. every time i eat i get horrific tummy pain, and bloating. really bad bloating. i feel anxious and i dont want to do anything. i also feel tired all the time and generaly grumpy. my doc has referered me to a gastroenterlogist and im waiting 1 MONTH for the appointment...in the mean time, i have started cutting out all wheat and gluten...and i feel FANTASTIC. no more bloating and awful pain.

i still have a dull constant pain but the pain and discomfort i get after eating has gone completly! im so happy!

however, i think this may meen i have coecilac disease. il explain all this to the doc when i get the appoinment. does it sound like i have coecilac or could it be something else

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 Glutenfree Cakes andbuns  Posted by Annette MacLennan on 2009-12-06 (message id=4537 )
GLUTEN FREE FAIRY/BUTTERFLY CAKES



Ingredients:



100g butter/spread

100g caster sugar

2 eggs separated

100g Doves Farm Gluten & Wheat Free Self-raising flour

1 tablespoon of lemon juice

1 tablespoon of boiling water



Method:



Pre-heat the oven to 180C/355F (fan oven 160C/310F) or Gas Mark 4.



Cream the butter and sugar together with a folk, add the egg yolks (keeping the egg whites in a separate bowl for whisking later) then slowly add all the flour bit by bit mixing well with a wooden spoon, mixture will feel quite stiff.

Now add the tablespoon (or splash) of boiling water and the lemon juice, this will soften the mixture



Meanwhile, now whisk up the egg whites until mixture will stand in peaks,and add egg mixture to cake mixture and mix in well.



Place approx. 15 baking cases on a bun oven tray, putting approx. a dessertspoon of cake mixture in each baking case.



Place cakes in pre-heated oven for 15 20 mins until golden.



Place cakes on a rack to cool. Cakes are tasty and can be eaten plain or for butterfly cakes



Please note that this is the first time I have measured the ingredients, you may want to use a little less sugar or add another egg to make them lighter. I havent tried to make a Victoria sandwich cake yet. I got the idea for this recipe from an old magazine for a normal coffee & walnut cake, where they whisked the egg whites separate.



________________________________________________________________







RECIPE FOR GLUTEN FREE

MOUTH MELTING SCOTTISH BUTTER SHORTBREAD





Ingredients;



Gluten-free Flour - 4 ounces/113g (I use Doves Farm Gluten free plain flour but I am told Glutafin Pastry works well as it has less raising agents).

Butter (softened) 6 ounces/170g

Cornflour - 2 ounces /57g

Icing sugar - 2 ounces/57g

Caster sugar for dusting.



Method:

Pre-heat the oven to 180C/355F (fan oven 160C/310F) or Gas Mark 4.

Cream together the butter and sugar until nice and fluffy add the cornflour then finally the gluten free flour..

Mix together then finally kneed with your fingers until mixture comes away from the bowl

Half the mixture in two and kneed onto 2 lightly greased round cake tins using your knuckles to spread shortbread mixture out leave about a centimetre from the edge of tins to let shortbread expand,,, use your thumb and for-finger to make shortbread petticoat edge, prick all over with a fork to let the air out and put in oven and bake until golden

Once out the oven, leave for a few minutes to cool, then cut/mark with a knife then sprinkle the shortbread with caster suger.. dont leave to cool for too long before cutting or shortbread will just crumble!!!

To get them off cake tins, turn onto a clean dish towel upside down, in your other hand hold a couple of pieces of doubled up kitchen roll to swap shortbread onto, place both pettiecoat tails on a wire rack to cool



And enjoy :o)



These 2 recipies I made for my late mother who had celiacs disease, I stood in a supermarket Q with her one day and they couldn't find a code for 6 tiny wee muffins, mum needed to go to the ladies room so we could not wait.. so next day I baked from my heart and it worked...





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 Re: Fish and Chips  Posted by Janelle Thomas on 2009-12-06 (message id=4536 )
We have just introducted a monthly coeliac night and its proved extremely popular and we have had supurb feedback. Our telephone number is 01495 304574and we aim to contunue this every month being the first wednesday of every month (with the exception of january 2010).



We are located in Ebbw Vale.



Look forward to seeing you

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 Re gf bread using breadmaker  Posted by Beth on 2009-12-04 (message id=4535 )
Hi there,



I am thinking of buying a bread maker for my son for Christmas as he is trying to eat whole foods and organics. He loves bread but is trying to stay off of yeast. Do you have gluten free and yeast free recipes that can be made in a bread maker? Also, is one bread maker just as good as another do you know?? I know if he makes it fresh he will love it and he is getting pretty creative for a 19 year old boy. Thanks for your help in advance. Please put yeast free bread recipe in the headline so that I know it is not spam. Have a good day.



Beth

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 Re: Fish and Chips  Posted by laura richards on 2009-12-01 (message id=4533 )
Anyone know of any gluten free fish n chips in the Basingstoke Area?



There's a great fish n chip shop in Newquay, Cornwall called Mounts Bay Fish and Chips, really nice and experienced staff who do everything properly, and very tasty

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 Re gf bread using breadmaker  Posted by Simon on 2009-11-29 (message id=4530 )
My Girlfriend has just been told she isn't allowed gluten, wheat or and especially yeast. Has anyone got any good recipes they could send me

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 Christmas Pudding  Posted by Ciana Campbell on 2009-11-27 (message id=4528 )
Thanks for recipe. In relation to an alternative to suet, I use butter. You need to freeze it first and grate it quickly to avoid it melting in your hands. It gives a lighter texture and a good flavor. I am not sure whether it loses some shelf life as a result of dispensing with the suet. I usually make my puddings about 5/6 weeks in advance

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 How long for GF diet to work  Posted by Brandi on 2009-11-25 (message id=4526 )
I am wondering what good for my son I have been doing. There's no gluten in his diet, but his father will still take him out for pizza and fries. I am good with all the foods I give to him, with the exception to his dad. For five days now I can say I know exactly what he's eating there was no gluten. Before that it's been two weeks of foods without. My question is how long untill I know he's free in his system. Also this something I just tried because he has ezcema and wanted to find out if it was gluten.



Thanks

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 Blood test alone diagnosis  Posted by Michele on 2009-11-24 (message id=4525 )
Hi,

I had the same blood test as you, with the same result ,and have since had a biopsy of the lower intestine too. The biopsy is complete confirmation for a coeliac as they can see under a microscope any damage done to the villi, caused by coeliac disease.

As I am still waiting for my results, I asked the doctor who did the biopsy how accurate the blood test for coeliac is, (in the hope that maybe I wasn't coeliac after all), and he told me that the blood test is 90\% accurate, and that the biopsy is to be completely sure that you have it before you need to go on this restrictive diet for the rest of your life.

Hope this helps, take care

Michele Roberts

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 Re Breakfast cereals  Posted by Toni on 2009-11-22 (message id=4524 )
Where can I but General Mills Cocoa Puffs in the UK? My som had them in the US and now has a craving for them her but I can't find them in the stores.



If anyone can help I'd appreciate it! Thanks, Toni

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 Re: Gluten intolerance and severe joint pain  Posted by Peter on 2009-11-21 (message id=4523 )
Author(s): Bourne JT ; Kumar P ; Huskisson EC ; Mageed R ; Unsworth DJ ; Wojtulewski JA
Title: Arthritis and coeliac disease.
Source: Annals of the rheumatic diseases (Ann Rheum Dis) 1985 Sep; 44(9): 592-8
Additional Info: ENGLAND
Standard No: ISSN: 0003-4967 (Print); 1468-2060 (Electronic); NLM Unique Journal Identifier: 0372355
Language: English
Abstract: We report six patients with coeliac disease in whom arthritis was prominent at diagnosis and who improved with dietary therapy.

Joint pain preceded diagnosis by up to three years in five patients and 15 years in one patient. Joints most commonly involved were lumbar spine, hips, and knees (four cases). In three cases there were no bowel symptoms. All were seronegative. X-rays were abnormal in two cases. HLA-type A1, B8, DR3 was present in five and B27 in two patients. Circulating immune complexes showed no consistent pattern before or after treatment. Coeliac disease was diagnosed in all patients by jejunal biopsy, and joint symptoms in all responded to a gluten-free diet. Gluten challenge (for up to three weeks) failed to provoke arthritis in three patients tested. In a separate study of 160 treated coeliac patients attending regular follow up no arthritis attributable to coeliac disease and no ankylosing spondylitis was identified, though in a control group of 100 patients with Crohn's disease the expected incidence of seronegative polyarthritis (23\%) and ankylosing spondylitis (5\%) was found (p less than 0.01). Arthritis appears to be a rare manifestation of coeliac disease. This relationship may provide important clues to the role of gastrointestinal antigens in rheumatic diseases

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 Re: Gluten intolerance and severe joint pain  Posted by Peter on 2009-11-21 (message id=4522 )
Slot O ; Locht H
Affiliation: Department of Rheumatology, Copenhagen County Hospital Gentofte, Hellerup, Denmark.
Title: Arthritis as presenting symptom in silent adult coeliac disease. Two cases and review of the literature.
Source: Scandinavian journal of rheumatology (Scand J Rheumatol) 2000; 29(4): 260-3
Additional Info: NORWAY
Standard No: ISSN: 0300-9742 (Print); 1502-7732 (Electronic); NLM Unique Journal Identifier: 0321213
Language: English
Abstract: We report 2 cases of adult silent coeliac disease (CD) presenting with arthritis of a knee and a sacro-iliac joint, respectively. In both patients the arthritis was relieved on a gluten free diet. The literature on arthritis in adult CD is reviewed

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 Re: Gluten intolerance and severe joint pain  Posted by Peter on 2009-11-21 (message id=4521 )
Hans ZJ
Affiliation: Yankton Bone Joint & Sports Medicine Center, Yankton, SD, USA.
Title: Celiac disease: its implications for orthopaedic nursing.
Source: Orthopaedic nursing / National Association of Orthopaedic Nurses (Orthop Nurs) 2008 Sep-Oct; 27(5): 291-4; quiz 295-6
Additional Info: United States
Standard No: ISSN: 0744-6020 (Print); 1542-538X (Electronic); NLM Unique Journal Identifier: 8409486
Language: English
Abstract: Celiac disease (CD), also known as gluten-sensitive enteropathy, is an inherited autoimmune disease that can lead to multisystem effects. Left undiagnosed and untreated, it has severe orthopaedic implications involving osteoporosis and unnecessary treatment of joint pain, which could be avoided. The orthopaedic nurse may have thought that CD was primarily an abdominal disorder. We need to be aware of the potential practice implications in orthopaedics by understanding the disease, its diagnosis, and treatment. Furthermore, orthopaedic nurses can contribute to current research by studying the relationships between CD and orthopaedic problems

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 Re: Gluten intolerance and severe joint pain  Posted by Peter on 2009-11-21 (message id=4520 )
Author(s): Holtmeier W ; Caspary WF
Affiliation: Medizinische Klinik I, Johann Wolfgang Goethe-Universitt, Theodor-Stern-Kai 7, 60590 Frankfurt am Main, Germany. W.Holtmeier@em.uni-frankfurt.de
Title: Celiac disease.
Source: Orphanet journal of rare diseases (Orphanet J Rare Dis) 2006; 1: 3
Additional Info: England
Standard No: 1750-1172 (Electronic); NLM Unique Journal Identifier: 101266602
Language: English
Abstract: Celiac disease is a chronic intestinal disease caused by intolerance to gluten. It is characterized by immune-mediated enteropathy, associated with maldigestion and malabsorption of most nutrients and vitamins. In predisposed individuals, the ingestion of gluten-containing food such as wheat and rye induces a flat jejunal mucosa with infiltration of lymphocytes. The main symptoms are: stomach pain, gas, and bloating, diarrhea, weight loss, anemia, edema, bone or joint pain. Prevalence for clinically overt celiac disease varies from 1:270 in Finland to 1:5000 in North America. Since celiac disease can be asymptomatic, most subjects are not diagnosed or they can present with atypical symptoms. Furthermore, severe inflammation of the small bowel can be present without any gastrointestinal symptoms. The diagnosis should be made early since celiac disease causes growth retardation in untreated children and atypical symptoms like infertility or neurological symptoms. Diagnosis requires endoscopy with jejunal biopsy. In addition, tissue-transglutaminase antibodies are important to confirm the diagnosis since there are other diseases which can mimic celiac disease. The exact cause of celiac disease is unknown but is thought to be primarily immune mediated (tissue-transglutaminase autoantigen); often the disease is inherited. Management consists in life long withdrawal of dietary gluten, which leads to significant clinical and histological improvement. However, complete normalization of histology can take years

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 Re: Gluten intolerance and severe joint pain  Posted by Tina on 2009-11-21 (message id=4519 )
I can not believe I found this information. I have twins, one with autism, soon to be 8 years of age. Tried to use the GF/CF diet at 4 years of age. Unable to continue this because of the texture aversion and very limited foods. I continued to let my child eat what would go into his tummy. He began severe toe pain over a year ago. 2-'09 I took to a new pediatrician and she said Plantar Fasciitis ( pain would be in heal of foot from this). Wanted feet x-rays, mentioned arthritis and broke bones. Pedia. told me this toe pain and rubbing toes and screaming in pain from my child was all aggressive behaviors, told her my son went the opposite way and has never had aggressive behaviors. Told me that she saw my son jumping on his feet while at her office with my husband and that if he had toe pain he wouldn't be able to jump. I replied that well if you think that then what makes you think he may have broke bones in feet and requesting x-rays? I made her angry at me by saying this and she wrote me a nasty 3 page letter stating that I had a psychiatric disorder and sent copy to our new pedia. and we had a one hour conversation with him in which he told us he thought previous pedia. was stating maunchausen. My son recently began to have full blown allergic reactions after eating boxed cake mix. I took to allergist who said allergies have nothing to do with toe pain. Last week I got x-rays by podiatrist and his feet and bones are perfect. I am sick to my stomach that this doctor has done this maunchausen thing against me. I really don't care what they think of me , I just want my child to be pain free. I can deal with the autism. Because my child is non-verbal and unable to describe his pain with words is why we have been treated this way. Can someone please tell me where to find the scientific researched info. for joint pain in children with gluten intolerance. I am so grateful to the person's who posted this information

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 4 month old baby and gluten  Posted by Candice on 2009-11-21 (message id=4518 )
I am so glad i found this sight.. I have just had my 4th baby and found that everytime i ate something homemade like slice or cupcakes he would be up all night screaming.. I baked a few things myself to experiment to see what it could be in the recipe and could only come up with self raising flour.. I did suspect it could be gluten so i tried the same recipe with a gluten free flour and he still screamed all night.. I spoke to older mothers around me and none of them could understand it.. But i know something was upsetting him.. So after reading some of these stories i know i am not going crazy and i feel as though it does make sense now.. I reckon its the wheat .. Thanx to the original person that posted the question and to all of you that answered it.. It certainly has helped me and I am sure many others

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 Re What you must not eat  Posted by James on 2009-11-20 (message id=4517 )
Hey,



This may not help, but recent medical guidance is that, for an adult, prior to the test and to give an accurate result. 4 slices of bread (or equivalent) must be consumed daily for 6 weeks prior to the test to avoid a false negative.



I went through this too so hang in there as they can diagnose on symptoms alone, I had been gluten free for weeks, more by accident than anything else. They can also look for factors like calcium levels, vit B12 and folic, but as i say i am a male in mid 30's so how much applies to a child i don't know



all the best

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 Childrens Party Ideas  Posted by brenda hoolahan on 2009-11-18 (message id=4514 )
how do you make gluten free jelly please thank you x

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 Re: Fish and Chips  Posted by David on 2009-11-16 (message id=4511 )
Hello, i have been going to the wakering fish bar in great wakering for nearly 3 years now. The standerd of food was on board average however lately the service has been going down hill. On a few occasions i have had to pick hairs out of my food, even tho this is not often it is still something that i do not wish to do.



I hope that if you are hoping for my custom in the future you sort this out.

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 Re: chocolate  Posted by Elaine on 2009-11-16 (message id=4510 )
Mars bars contain barley so you are advised not to eat them. They are not on the gluten free list you get if you contact mars direct

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 Where to buy the ingredients  Posted by peter on 2009-11-13 (message id=4509 )
I've had great success with the good folk in the link below. They're based in Rochdale, Lancashire.They specialize in gluten free products, including Teff flour, Hemp flour and Tapioca flour (which is considered to be a fair substitute for sago flour by some!)

There are other gluten free products which may be of interest.







http://www.innovative-solutions.org.uk

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 Re Gluten intolerance and Pain  Posted by Janette Ingham on 2009-11-12 (message id=4507 )
THANKS for this support!



My (previously healthy) 15 yo daughter has just been through 6 months of suffering beginning with a stomach wog, then prescribed Flagyl (antibiotics), then they discovered Blastocystis Hominus a relatively common amoebic creature, so she was treated with 5x loads of antibiotics inserted as an enema. Her symptoms only worstened, cramps, reflux, undigested bowel movements. Then I found the symptoms of gluten intolerance online (no doctor came up with it) and (praise God) after 4 days off it the pains have gone away. However, she's sad her diet has to change, I'm hoping it won't be permanent.



Regards, Janette

Date Nov 2009

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 Birthday Cakes  Posted by on 2009-11-11 (message id=4506 )
Bettycrocker as a gluten free cake mix. Go to a cake supply store and buy an openend start tip ,writing ,leaf tip, cupler and a 10in. bag. Some icing cloroing or food cloroing. This will with your decorating problem and some little toy.they will do eatable pic too. You lay the pics on the cake after it's frosted. You will be surpized at what those 3 tip can do.Ducan Hienes have gluton free frosting e-mail them and they will send you a list.



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