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deleted
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Find a recipe for an eight year old birthday cake (homema
Find a recipe for an eight year old birthday cake (homemade)
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Help!! Desperate.
Help me please
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I HAVE CEIAC DISEASE I.B.S ALSO C.T SCAN PANCREAS
I would like to suggest that..
iam a chef
iam a chef
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Just found out that i am allergic to Gluten
knowing what it all taste like
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my mum has been diagnosed with CD for almost 23 years
my um has been diagnosed with CD for almost 23 years.
Necessary to be so strict??
need help too skinny
New Message Board
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new to this.............
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Teff
TEFF GRAIN AND FLOUR
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Tips to survive eating gluten prior to Endoscopy
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Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intolerance
| Re: TEFF GRAIN AND FLOUR
| Posted by Margret on 2009-07-01 (message id=4191 )
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Two weeks ago I placed an order with Tobia Teff for more teff flour and they told me that they now sell extruded teff breakfast cereals, so I ordered a bag of their Teffios and a bag of their flakes Wow!!! absolutley brilliant, Highly Recommended! their website is www.tobiateff.co.uk
See more of this discussion:Re: TEFF GRAIN AND FLOUR
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| epilepsy, seizures and gluten
| Posted by Marianne Hauck on 2009-06-26 (message id=4189 )
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Dear Karen,
Our daughter is 8 and she started having seizures when she was 4. We have been thru everything!!!
We went to CHOP for a few years and found that they take a very narrow view....not the whole picture of the child....and were asking us what we thought we should do with her case!!!
We now see a doctor in New York how is more open minded.
I just started doing the gluten-free diet and swear it is already helping. For several days she has had no seizures and not complaints of her stomach hurting....which she usually complains about every day!
Keep you posted
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| Celiac disease and polycystic ovary syndrome
| Posted by Peter on 2009-06-25 (message id=4188 )
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I have located one paper on this topic:
Celiac disease and polycystic ovary syndrome
N. K. Kuscu, , a, S. Akcalib and N. T. Kucukmetinc
a Department of Obstetrics & Gynecology, School of Medicine, Celal Bayar University, Manisa, Turkey
b Department of Microbiology and Clinical Microbiology, School of Medicine, Celal Bayar University, Manisa, Turkey
c Department of Gastroenterology, School of Medicine, Celal Bayar University, Manisa, Turkey
Received 29 May 2002; revised 18 July 2002; accepted 24 July 2002. Available online 3 October 2002.
Author Keywords: Celiac disease; Polycystic ovary syndrome
Article Outline
• References
Celiac disease, a malabsorptive gastro-intestinal system disorder with intolerance to gluten, was found in 1 in 70 pregnant women. It has been recently reported as a cause of irregular menstruation, infertility, delayed puberty and early menopause [1], as well as obstetrical complications. Polycystic ovary syndrome (PCOS), is an intriguing phenomenon with irregular cycles and infertility. As celiac disease is reported to underlie menstruation disorders and infertility, we aimed to search celiac seropositivity in patients with PCOS.
Fifty-two patients with PCOS and 50 age-matched control women with regular menses were recruited in the study. PCOS was diagnosed by combining the symptoms, ultrasonographic imaging of the ovaries, and hormone analysis. Gliadin (IgA and IgG) and endomysium (IgA) antibodies were determined by ELISA method (Immunolab GmbH, Germany). Seropositive patients underwent endoscopic analysis for a duodenal biopsy. The χ2-test was used for statistical analysis, P<0.05 was accepted as significant.
Eight patients from the study group and one patient from the control group were positive for IgG gliadin antibody (P<0.03). No positive results were obtained for IgA gliadin and IgA endomysium antibodies. Six of the seropositive patients underwent endoscopic analysis, but none of the them were found to have celiac disease on histopathological report.
Celiac disease is not well known among obstetricians, but recently papers about obstetrical problems and unexplained infertility in celiac patients have been published. Endomysium antibodies are more sensitive and specific than gliadin antibodies, and they were measured in women with recurrent pregnancy loss, unexplained infertility and infertility with a known cause [2]. No difference was noted among the three groups, but undiagnosed celiac disease was considered to be common in women. The authors suggested to screen infertile patients and patients suffering from recurrent miscarriages.
The prevalence of celiac disease in infertile women was reported to be three-fold [3], and higher incidence of subclinical celiac disease was reported in patients with unexplained infertility [4]. The authors concluded that silent celiac disease should be considered in these cases.
In our study, we hypothesized that the incidence of celiac disease could be higher in patients with PCOS. Although we found significantly higher ratio in these patients by measuring IgG antibodies, we could not verify this result with duodenal biopsy. None of our patients was seropositive for IgA endomysium antibody, and the sole positive result for IgG gliadin antibody might not warrant further investigation. We conclude that PCOS does not seem to be associated with celiac disease.
References
1. K.S. Sher and J.F. Marberry , Female fertility, obstetric and gynaecological history in coeliac disease. Digestion 55 (1994), pp. 243–246. View Record in Scopus | Cited By in Scopus (60)
2. K.L. Kolho, A. Tiitinen, M. Tulppala, L. Unkila-Kallio and E. Savilahti , Screening for coeliac disease in women with a history of recurrent miscarriage or infertility. Br J Obstet Gynaecol 106 (1999), pp. 171–173. View Record in Scopus | Cited By in Scopus (38)
3. G.F. Meloni, S. Dessole, N. Vargiu, P.A. Tomasi and S. Musumeci , The prevalence of celiac disease in infertility. Hum Reprod 14 (1999), pp. 2759–2761. Full Text via CrossRef | View Record in Scopus | Cited By in Scopus (49)
4. P. Collin, S. Vilska, P.K. Heinonen, O. Hallstrom and P. Pikkarainen , Infertility and coeliac disease. Gut 39 (1996), pp. 382–384. Full Text via CrossRef | View Record in Scopus | Cited By in Scopus (83
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| Celiac disease and polycystic ovary syndrome
| Posted by taz on 2009-06-25 (message id=4187 )
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I have been searching also for links between gluten/ wheat intolerances and pcos, I was diagnosed with PCOS last year, I have multiple cysts am 24 yrs old, I have not yet been diagnosed gluten intolerant, I always feel bloated and constipated, my insulin levels are normal. I was sure there was something else going on and searched my symptoms and found gluten intolerance. have started experimenting with cutting out gluten and wheat, it is already making a difference and I am wondering if a gluten intolerance could have caused my pcos since I have never suffered pcos symptoms before last year but have had gluten sensitivity symptoms my whole life. I'm not a doctor, but doesn't it make sense? if your body is having a reaction to something every day it's going to throw your hormones out of balance which in turn results in pcos for some of us?? thoughts
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| Re: GF restaurants
| Posted by Tracyann on 2009-06-24 (message id=4186 )
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The Newport Rib Company has a separate gluten/casein free menu. The food and service was great. The proprietor diligently works at keeping the gluten/casein free food pure. I ate the gluten free cornbread, barbeque chicken, and fries. They even have a separate fryer for the gluten free fries. I did not get sick! It's condiments are gluten/casein free too. (margarine, salad dressing, ketchup
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| Re: Maltodextrin
| Posted by Trudy Hall on 2009-06-20 (message id=4185 )
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I'm a young 65-year-old female who figured out from the internet about my intolerance to maltodextrin. After having to call 911 and being hospitalized for two days about a year and a half ago going through heart tests, an esophageal scope and dilation, and still having the same symptoms four months later, I was so happy to find postings from people like you which helped me self-diagnose my problem. I looked at the ingredients in Slim-Fast which I was drinking every morning, and there was maltodextrin!
When I eat something with maltodextrin, there's a bad pressure in my chest, and it feels like someone's pressing on my adam's apple (if women have adam's apples). Real ice cream (not ice milk), custards, and puddings have a similar reaction, but I'm ok with other dairy products. Even back to the age of 19 I've had IBS (back then they termed it "spastic colon").
I was visiting with my dogs' vet about their allergies and told him I recently discovered I'm allergic to maltodextrin, and he said it happens mostly in people who have an allergy to corn. Since I was a kid, my nose severely itched when I chewed gum (with corn syrup), had fried chicken (cooked in corn oil), ate corn on the cob, ate bread (with corn meal) or was served egg nog with "corn" liquor. The vet's been the only "doctor" who's known anything about the maltodextrin allergic reactions.
After eating a packaged brownie night before last, I again ended up in the E.R. yesterday undergoing heart tests (which came out fine) all because the allergic symptoms of excessive sweating, chest pain, and nausea are so similar to symptoms of heart attacks. I'm as frustrated as all of you in the proliferation of the use of maltodextrin in so many products.
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| gluten free chocolate
| Posted by jenny hughes on 2009-06-20 (message id=4184 )
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br>Hi Lana,
Galaxy is gluten free but not ordinary dairy chocolate or Mars bars. You can buy gluten free chocolate in most health stores and some supermarkets in the special foods section but none that I've tried are as nice as Galaxy.
good luck
jenny hughes
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| Re: Overweight coeliac
| Posted by jo on 2009-06-20 (message id=4183 )
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i read your story with great sympathy, i too am coeliac gaining weight, i have battled diabetes for years, and had a two year bout of depression , i am on the mend now but it takes alot of hard work. take time out for yourself if you can find something that makes you laugh do that !!! you sound a busy person and your body is probably more strssed than you think this does not help any of your conditions try taking celery seed, alfalfa sprouts and red clover and cut out onions it worked for me good luck x x
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| Re What you can eat on a gluten-free diet
| Posted by Beth on 2009-06-20 (message id=4181 )
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| Spelt Bread
| Posted by kurt on 2009-06-20 (message id=4180 )
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SPELT IS WHEAT! Contains gluten.
Read the following definition from the internet!
Question: Are spelt and spelt flour gluten-free?
Answer: Spelt is a species of wheat, so spelt and spelt flour are NOT gluten-free.
People who believe that spelt (scientifically known as Triticum spelta) is gluten-free and safe for people with celiac disease are mistaken.
According to the Food Allergen Labeling and Consumer Protection Act of 2004, foods that contain spelt or kamut cannot carry "wheat-free" or "wheat-alternative" labels.
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| Re: Breakfast cereals
| Posted by mandy on 2009-06-11 (message id=4175 )
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| Cows passing on wheat
| Posted by Keira on 2009-06-11 (message id=4174 )
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I and many people who come into our entirely gf store in Canada, have to eat only meat that has been corn fed or wild range. I was still ill for years after diagnosis and taking out gluten from everything in my diet. I find however, that I can drink milk and it will keep me healthy but the meat is a whole other problem. There are several places - farmers market like - that feed there animals corn instead and we all have no side effects from this meat. In my opinion, I think the gluten poisons the animal and in digestions aborbes like poison does and actually concentrates in them so when we eat it, it only makes us sick.
Maybe that's just us
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| Re: Wedding Cake HELP
| Posted by Nancy Lapid on 2009-06-10 (message id=4173 )
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On my website I have an extensive list of bakers in the US, Canada and the UK who provide gluten-free wedding cakes. I hope this list will be helpful to you. If you know of any companies that provide gluten-free wedding cakes but are not on my list, I'll be glad to add them.
Here is the URL:
http://celiacdisease.about.com/od/resourcesforceliacs/a/weddingcake.htm
-Nancy
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| Re: Fish and Chips
| Posted by S Brown on 2009-06-06 (message id=4168 )
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| Blood test alone diagnosis
| Posted by Patsea on 2009-06-06 (message id=4167 )
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I have that problem, but my doctor accepted it after he just calls me gluten intolerant instead of celiac. The main reason for the test is to persuade people they have to do a difficult diet to stay well. You are already persuaded
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| Gluten free and mirganes
| Posted by Peter on 2009-06-04 (message id=4166 )
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Migraines can be caused by gluten in the diet.
I won't do any harm to follow a gluten-free diet for three months to see if your migraine symptoms change. Note that a completely gluten-free diet is essential to see if this is the cause. half measures won't do
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| Gluten free and mirganes
| Posted by Caroline on 2009-06-04 (message id=4165 )
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hi, hope all is well i'm new to this fourm and it looks really good, can eating gluten make people ahve mirgains i suffed from mirganes sence i was 15, and there got worse over the last 2-3 years last months evern worse i having mirganes once a month and it dont go for days and make me really ill, so can gluten free our mirgains?
what do you all think?
thanks caroline
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| Re: TEFF GRAIN AND FLOUR
| Posted by Mark on 2009-05-31 (message id=4163 )
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I found a company in London that supplies Teff gluten free flour direct or through their stockists. Their flour is also available on prescription via you GP/Pharmacist.
Tobia Teff UK Ltd
Email - info -at- tobiateff.co.uk Website - www.tobiateff.co.uk
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| Re: Maltodextrin
| Posted by Mary on 2009-05-29 (message id=4160 )
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This is a further instalment. I was using the probiotic from the health store but not getting any better. In fact, the diarrhea and flatulence worsened. Then I discovered that the probiotic had maltodextrin in it
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| alcohol
| Posted by sally hendrix on 2009-05-26 (message id=4158 )
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i have been drinking cider as it is gluten and wheat free.but have just discovered it contains sulphites,which i am also allergic to.abd they tend to contain a lot of sweetners.hope that helps you
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| Flour Mixes
| Posted by Anna Jacobs on 2009-05-24 (message id=4156 )
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I look sadly at flour mixes for sale, because they all seem to contain maize/cornflour. My intolerance is to all cereals, except for flour, and I know quite a few others with this problem. I even know one woman who can eat wheat but not maize products.
This prolbem with maize/corn does not seem to be recognised by manufacturers, or even groups dealing with intolerance/wheat/etc problems.
Xanthan gum is made from corn/maize and it affects me badly too. No one in the UK (where we spend 5 months each year) seems to know about guar gum, which is OK for people like me and does exactly the same job. I have to bring my own guar gum with me from Australia each year.
I write emails like this to spread the word that not all intolerances are the same. Probably a lone voice crying in the wilderness won't do much good.
Anna Jacobs anna -at- annajacobs.com
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| Re: Whey
| Posted by CR on 2009-05-24 (message id=4155 )
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I am so glad there is a sight that has explained the "WHEY" ingredient that is found in products a Celiac person does eat.. For a while I was confused about "WHEY"
Thank you
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| gluten free bread using breadmaker
| Posted by patricia braithwaite on 2009-05-23 (message id=4153 )
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Has anybody made a gf loaf using the Glutafin gf multipurpose white mix because mine does not seen to have risen I followed the instructions one by one sent by glutafin but still not a success. Thanks
Patricia
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| Re What you can eat on a gluten-free diet
| Posted by Paul on 2009-05-19 (message id=4149 )
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Beers and lagers are generally made using certain grains, such as hops, barley and wheat. During this process, gluten will remain in the beverage after production. So, beers and lagers are generally no good for gluten free diets.
Whiskey and vodkas, and mainly any other distilled spirit, will be safe to drink, even if made from wheat. This is because the liquid is distilled, which leaves any gluten behind. Gluten cannot be distilled.
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| Flour Mixes
| Posted by shirley mills on 2009-05-17 (message id=4147 )
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| Birthday Cakes
| Posted by teresa herold on 2009-05-16 (message id=4146 )
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HELP SOMEBODY PLEASE! I can't find anyone to decorate me any party quality gluten free - casein free birthday cakes, any ideas out there for a 5 yr old girl and a 4 year old boy? God bless you all. I'm sure you have reasons if you have info.!! Mine are BOTH on the autism spectrum!! Thanks!!!! Teresa
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| Re: Maltodextrin
| Posted by Mary on 2009-05-15 (message id=4143 )
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I have an intolerance for lactose as a result of acute gastroenteritis 2+ years ago. My doctor is suspecting I may have celiac's disease because of the antibodies present, however, I have no problem eating gluten. I believe that the gastro has stripped out more than the lactase from my gut. The reaction to maltodextrin is probably a result of that and a bowel probiotic from the health store can deal with that, I believe
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| Drinks
| Posted by Barbara on 2009-05-11 (message id=4140 )
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When I was diagnosed over twenty years ago the advise was to avoid real ales but standard beers were OK. I have continued drinking bitter without any ill effects. However if I accidently consume something containing gluten I am violently ill.
When I have queried this before I was advised that by the time the beer had completed the brewing process, particularly with modern mass produced beers, no gluten would be present. Over the years I have become used to my gluten free diet and accept it without a problem but I couldn't imagine not being able to drink bitter.
Are there any other coliacs out there that are happily drinking beer?
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| Other Ingredients
| Posted by Lana Tresburge on 2009-05-08 (message id=4138 )
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What chocolate bars are gluten free?
Is anything like Galaxy, Dariy Milk or Mars gluten free?
I have quite a bad intolerance and i cannot eat oats so what ones are completely safe?
Please reply
Thank you
Lana Tresburge
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| Re: Bulimia
| Posted by Mina on 2009-05-08 (message id=4136 )
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Hi, I had a endoscopic biopsy to confirm coeliac disease yesterday. I wasnt prepared for them to find 2 stomach ulcers and a hiatus hernia, both I think caused by over a decade of bulimia. Neither serious if treated but neither expected in a 30 yr old female. I don't know why i vomit anymore other than my body just has to, and I don't know when bulimia became coeliac or vice versa, but I suspect they never were mutually exclusive. I hope that a gluten free diet will be the beginning of the end for both problems, but if i could just have one last sandwich
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| Re Facial rash
| Posted by jenny on 2009-05-07 (message id=4135 )
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Dermaid is the products name if you live in australia or any .05 cortisone cream.Once you have been gluten feee for several weeks it should clear without the cream this worked for me but you should see a doctor or dematoligist self diagnosis and associating everything with your celiac disease may mean you wont get the treatment you need
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| Glutenfree recipes for Feeding Children
| Posted by vicki on 2009-05-06 (message id=4134 )
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HI I HAVE A 13 MONTH OLD SON WHO IS IN THE PROSSES OF BEING DIAGNOSED WITH COELIAC DISEASE. IN THE MEAN TIME I HAVE BEAN ADDVISED TO PUT HIM ON A WHEAT AND GLUTIN FREE DIET BUT HAVE NO CLUE ON WHAT TO GIVE HIM, AS HE IS A VEREY FUSSY EATER. IF YOU HAVE ANY RECIPES THAT YOU THINK MAY HELP THEN PLEASE LET ME KNOW MY EMAIL ADD IS PONDY_16 -at- HOTMAIL.COM
MANY THANK
VICKI
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| Re: Maltodextrin
| Posted by Stephanie Martinez on 2009-05-06 (message id=4133 )
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So I"m not crazy... I have been trying to figure out for months what has caused my digestive symptoms.. Have been gluten free for one year, and since that time I have noticed an increase in food intolerances including dairy.. I also FINALLY traced my symptoms to maltodextrin.. I was eating peanut butter as well as soy ice cream and noticed that both gave me excessive gas and bloating.. I'm going to bet it's the maltodextrin... Wow, nice to know that someone else has same symptoms
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| Re: Maltodextrin
| Posted by Jeri on 2009-05-04 (message id=4132 )
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Taylor, the diarrhea could have caused a drop in electrolytes, particularly magnesium. Read up on magnesium deficiency and deficiencies of the other electrolytes including potassium, calcium, sodium and chloride. The impending sense of doom is quite common for someone suffering from magnesium or electrolyte deficiency just before their body shuts down electrically... you will find how the palpitations can relate.. read the book Sinatra Solution: Metabolic Cardiology by Dr. Stephen Sinatra - especially the section on magnesium
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| Re Eating out
| Posted by T Bell on 2009-05-02 (message id=4131 )
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The outback steakhouse has a new gluten free menu. The best part is their brownies are gluten free! You can also order a full sheet of them, just order 2 days ahead.
This menu does not have anything on it that could possibley be cross contaminated.
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Vinnie on 2009-04-30 (message id=4129 )
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Peter & Leila,
Wow...reading you posting has given me some hope. I was diagnosed with UC about 5 years ago and have been suffering the worse flare-up the past 15 months now. Three trips to the hospital more failed medications and now Remicade, which worked for 9 days and then stopped! I am going to be having a consultation with another GI doctor in NYC about a colectomy, but recently (today) started a gluten free diet. I am 100\% Italian and this will be an adjustment, the no regular bread and pasta thing, but one that I am willing to accept. Also about a week ago I started taking B-12, Omega 3 and vitamin C. Hopefully, the gluten free diet combined with these vitamins will avoid the trip to the surgeons table. Has anyone ever heard of cleansing your system with a natural herbal cleanse? I met a woman yesterday who told me that this will also help by removing toxins from my system?
Any advise you all could pass along or even gluten free food recipies would be greatly appriciated. I will post again in a week to tell everyone who things are going with the gluten free! Thanks
Vinnie
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| 14 yr old
| Posted by Peter on 2009-04-26 (message id=4125 )
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The first question is how were all these things diagnosed?
After a person who reacts badly to gluten stops eating any gluten, recovery can be fairly rapid. However the sensitivity to a trace of gluten can go up dramatically , and in the worst cases can result in anaphalactic shock.
After a much longer period on a gluten-free diet the sensitivity can start to decline, but the gluten-free diet should be maintained indefinitely.
So yes, a trace of gluten in sauce could cause this effect.
(But note that 14 year old boys are particularly bad at sticking to diets away from home until they realise just how important it is to stick to the diet
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| 14 yr old
| Posted by Renee on 2009-04-26 (message id=4124 )
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I am digging around ont he internet trying to figure out why my son's symptson got worse, when they seemed to be calming down.
He has been doing the Gluten Free for 1 1/2 weeks, just dianosed that he is allergic to wheat, yeast, rye, eggs, milk, cheese, everything!
Again, it seemed like things were calming down and Thursday I have him some BBQ sauce with his chicken. The next day I am preparing to give it to him again and i re-read the label and find that wheat is hiden in the soy sauce that is an ingrediant in the BBQ Sauce. By Friday his symptons were so bad i was in tears.
Is it possible they only got worse because of the BBQ sauce, OR does the body go through withdrawls/detox and get worse before it gets better?
Anyone? I would appreciate any information anyone has. This is breaking my heart
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| Re: BABY: Diet changes do work
| Posted by Sharon Green on 2009-04-20 (message id=4113 )
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My son is intolerant of dairy, wheat, gluten and strawberries with a question mark over bananas!!
Can you tell me what you fed your son for breakfast as I am finding it really difficult finding variations for this meal. My baby is 8months and been prescribed Nutramigen. (on the waiting list to liaise with a dietician)
Your story gave me some hope
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| Re sticking to gluten free diet
| Posted by Peter on 2009-04-19 (message id=4112 )
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Your daughter seems to be developing a very strong adverse reaction to gluten. Unfortunately the Buscopan may be simply masking the symptoms, and not protecting her from damage.
There is quite a serious risk of developing anaphalactic shock reaction to the food if she persists.
Your daughter should stick to a gluten-free diet.
Advice I have seen for leaky gut syndrome is to avoid all highly refined flour and food. Eat fresh meat, fish fruit and vegetables, eggs,
potato but not potato flour
rice but not rice flour, and brown rice rather than white rice.
The intention of this is to force the food to be properly digested and absorbed slowly, rather than undigested particles being able to be taken up by the gut wall.
Cornflour doesn't seem to cause the same problems as other flours as it forms a jelly with water much more easily and can be used to make sauces and thickeners
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| Re: Maltodextrin
| Posted by Veronica Hughes on 2009-04-19 (message id=4111 )
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I sent a post to this discussion a long time ago and I am amazed to see how many other people since then have described the same reaction to maltodextrin or, in may cases, symptoms even worse than mine.
Since nobody's doctor seems to know anything about this, I am planning to print this whole discussion out and take it to my gastroenterologist with a strong suggestion he tries to investigate maltodextrin to find an explanation. Perhaps if we all do that we may make some progress?
I recently had treatment for bacterial overgrowth in the small intestine, which consisted of taking an antibiotic for 2 weeks to kill off the bacteria there and then taking probiotics for a long time to try to repopulate the gut with lactobacillus and other gut-protective bacteria. After this, I found my reaction to Maltodextrin and dextrose was much milder. It has gradually got worse again but I definitely think there could be something in this.
Has anyone else had a similar experience
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| Re sticking to gluten free diet
| Posted by olivia on 2009-04-18 (message id=4110 )
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My daughter had a bad case of gastro-enteritis some years ago,which left her with a 'leaky gut' and was advised, when eating afterwards to eat easily digested food, so she had pasta. Now, any food containing gluten causes bad reactions, bad stomach cramps,vomiting, diahoreah (I can't spell that!) and feeling rotten for days afterwards. If she avoids it she is fine, but sometimes if she wants to indulge (in profiteroles for example), she takes Buscopan first to help negate the reaction
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| Re: What you must not eat
| Posted by joan black on 2009-04-15 (message id=4103 )
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| Re: Malaysia and Singapore - Help
| Posted by Max on 2009-04-13 (message id=4102 )
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I have been to Malaysia a couple of times, it is not friendly for people with special diets to dine out. I am gluten and lactose intolerant. However, there are gluten and lactose free items available at leading supermarket like Jusco and you can also get gluten and lactose free items at organic or specialty stores.
It is not advisable to eat out because the restaurants or eateries are not trained and are not aware of such needs. Therefore, there are high chances of cross-containmination.
Another note is that you can get gluten free soy sauce at Jusco for RM29.90 (big bottle) or RM14.70 (small bottle). They have gluten free miso paste as well. Gluten free cereal can be bought at Jusco too.
Hope this help
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| Re: Fish and Chips
| Posted by stuart on 2009-04-12 (message id=4101 )
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Does anyone know of a place that does gluten free fish and chip near to Gloucester? I know of one in Bradley Stoke South Gloucestershire and one in Chepstow, but is there anywhere closer
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| Re Fish and Chips gluten-free
| Posted by Sharon on 2009-04-10 (message id=4100 )
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| What you MUST NOT eat
| Posted by Nancy on 2009-04-10 (message id=4099 )
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Be very careful of Free From products offered by big stores such as Sainsbury's and Tesco. I have been getting migraines and could not identify the cause [I am gluten intolerant] so wrote to Sainsbury's asking what their Free From range contains. I received a reply stating that their products have been prepared to coeliac standard [which I cannot have]. I think all these types of foods need to go ont he MUST NOT list as a result
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| Black List
| Posted by Elizabeth Rivera on 2009-04-05 (message id=4092 )
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| Re gf bread using breadmaker
| Posted by Mick on 2009-03-31 (message id=4089 )
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Hi, Margaret, I saw your message on the gluten free site. I wondered if you could email me any recipies for gluten/yeast free bread/rolls scones etc please. I,m about to buy a Panasonic SD254 breadmaker. Does the bread /etc really taste good when cooked in these machines ?. Thanks. Regards Mick
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| Re: Maltodextrin
| Posted by Peter on 2009-03-31 (message id=4088 )
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There are plenty of people who are very sensitive to tiny traces of these substances in food.
The easy way is to only eat the basic natural foods - fresh fruit, vegetables, fish, meat. A very healthy diet. You don't need to eat food out of tins, packets or jars!!
Your body doesn't hate you. It doesn't like these substances! Don't fight it, look after it.
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| Re: Maltodextrin
| Posted by Sara on 2009-03-31 (message id=4085 )
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I became lactose intolerant in 2002 at the age of 22. Soon after I also realized I was still having horrible bloating, gas, cramping and diahrrea. I figured out that it was caused by foods containing dextrose and maltodextin. I have tried to cut it out of my diet, but it is in everything! I just realized a few wks ago that iodized salt has dextrose in it. I also don't eat out often because it is a risk. I just turned 29 and was diagnosed with Celiac Disease. I think my body hates me. I have the same reactions from doctors and other people when I tell them that I have an intolerance to dextrose and maltodextrin, they don't believe me. It's great to know that I am not alone
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| Re: Maltodextrin
| Posted by Sara on 2009-03-31 (message id=4083 )
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I became lactose intolerant in 2002 at the age of 22. Soon after I also realized I was still having horrible bloating, gas, cramping and diahrrea. I figured out that it was caused by foods containing dextrose and maltodextin. I have tried to cut it out of my diet, but it is in everything! I just realized a few wks ago that iodized salt has dextrose in it. I also don't eat out often because it is a risk. I just turned 29 and was diagnosed with Celiac Disease. I think my body hates me. I have the same reactions from doctors and other people when I tell them that I have an intolerance to dextrose and maltodextrin, they don't believe me. It's great to know that I am not alone
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| Re: Coeliac and wheat intollerance
| Posted by Julie on 2009-03-31 (message id=4081 )
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Hi. Was thrilled to find this forum...to know I am not going mad...Have had problems for a few years now with digestion and narrowed this problem down to wheat possibly. Stupid really, but eating a sandwich brings on rapid heartbeat, itching (mild) skin / scalp, severe bloating and feeling full for hours and hours despite not eating much. If I avoid wheat, my stomach stays bloated but the other symptoms disappear. Went to GP who said wheat intolerance was psychological / all in the head and wheat fibre too important to cut out. Have tried cutting down slightly but then I go back to eating wheat again and don't where where I am or what to do really. My friend mentioned Coeliac Disease but I always thought Coeliacs were underweight, but I now have weight to lose...it just won't shift despite exercise and careful eating. Any ideas anyone? I would be grateful for any pointers....Thanks
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| Re: What you can eat on a gluten-free diet
| Posted by Roberta on 2009-03-28 (message id=4077 )
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Hi, I am also gluten and wheat intolerant and I have Chrons and Lupus. Just recently I found I am intolerant to Maltodextren. You should research your Vitamins to see if there are any fillers in them. I had to stop my Prenatals because they have Maltodextren in them. They sneak this stuff in everything!!
I hope this helps
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| Re: gf bread using breadmaker
| Posted by jonathan cohen on 2009-03-28 (message id=4076 )
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| Re What you must not eat
| Posted by Sarah on 2009-03-28 (message id=4075 )
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My local Pizza place is very good I just take in a gluten free base and they do the toppings so I can still go out for pizza, I could cook it at home but mine never tastes quite the same
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| Australian Coeliac Food
| Posted by Sarah on 2009-03-28 (message id=4074 )
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There are lots of cheaper lollies that are gluten and wheat free, have a look at the sugar free brands and mentos use glucose from corn. You just have to read the packets. My favouirte though is an expensive licorice labelled gluten and wheat free the company that make it also do lots of pasta, Orgran
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| Re: Maltodextrin
| Posted by Beth on 2009-03-27 (message id=4072 )
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I have experienced the same thing. I have no food allergies at all and last year all of a sudden after eating ice cream which i have eaten my whole life, i got extreme stomach cramps, extreme sweating, extreme diarrhea and I tend to pass out usually which is scarey when i am on my own. I have narrowed it down to Maltodextrin because if i eat ice cream that doesnt have that ingredients im fine.
I am so frustrated because i am scared to even go out to dinner in case i get diarrhea from something. Not long ago my husband and I went to dinner at a restaurant and I was ok while we were out but not long after i got home I got so sick....imagine if it happened when i was out. Am i suppose to ask the waiter everytime i go somewhere if any of my meal contains maltodextrin???
Im very frustrated about it and it has changed the way i live. I am glad to know that i am not the only one. No doctor has ever been able to tell me whats wrong with me they just told me not to eat ice cream anymore.
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| Re: Millet Bread Recipe
| Posted by susan on 2009-03-26 (message id=4069 )
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My celiac daughter and I bought a loaf of Deland's Millet Zucchini bread today in a local health food store. As we had never had it before, we checked the ingredients and i made her a sandwich for lunch. As others on this website have experienced, within 5 hours she became extremely ill. I feel it is against the law (as well as morally unethical) to have in VERY small print "contains wheat, gluten or yeast" when NONE of those ingredients are listed. The only ingredients listed are all GF. Cross contamination can allow a label to say that it was processed in such a facility, but that is not what they are saying. And, in fact, they don't use wheat in their facility so the only cross contamination would be with oats, which many celiacs can tolerate. The degree of sickness which she is experiencing is much more than cross contamination. We have contacted the FDA and hope that others will do so as well
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| Chips,Salsa,Corn syrup
| Posted by laura on 2009-03-25 (message id=4068 )
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As of Dec '08 PACE SALSA IS OUT!!! It is no longer GF. That's the biggest bummer of my entire week. I have a big old bottle that I can't use sitting in my pantry. I'm DEFINATELY complaining
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| Re Fish and Chips gluten-free
| Posted by Pam Johnson on 2009-03-24 (message id=4067 )
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We are a cozy fish and chip shop in British Columbia, Canada called: Cozy Bay Seafood Cafe. I am the chef/owner and have been serving gluten-free fish and chips for about 7 years now. Even when we are at our busiest time, I am able to cook gluten-free *allergy meals for customers. It's tricky, but I can do it and have never had people say they've had any reaction, in fact we have lots of regulars as well that are not gluten-free intolerant and they order it as well. (gluten-free non allergy). I serve it in both cod and halibut and I also have a variety of bite-size pieces called "Sunken Treasures" which includes: sole, snapper, salmon, cod and halibut. Our servers are all trained to ask if it is an allergy or not because of special handling in the kitchen. If anyone is so inclined, they should check us out. So far, gluten free *allergy is still a specialty for people. I can't tell you how thrilled some people are to have discovered us. If we weren't so well known with our beer batter and other breaded fish and chips, I'd of started up a gluten free only fish and chips and seafood house... In the meantime, I'm just happy to make other people happy being able to enjoy fish and chips beer battered, breaded, or gluten-free
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| Re: Wheatfree = Gluten Free
| Posted by Dr. Trina Doerfler on 2009-03-23 (message id=4066 )
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Any allergen can produce excess fluid in the inner ear, which is where balance operates from..I commonly see balance problems with allergic exposures, whatever the allergen. The body produces the fluid as a protective mechanism, which then causes the balance issues....going gluten free should help, but also perhaps seek out someone that does a preocedure called an endonasal, where the practitioner tugs on the inside of the throat where the eustachian tube exits. This can drain the fluid into the throat and resolve he issue. Good luck
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| Re: chocolate mars bar
| Posted by louisette sant manduca on 2009-03-15 (message id=4059 )
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| Re TEFF GRAIN AND FLOUR
| Posted by sue rigby on 2009-03-13 (message id=4057 )
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We are very pleased to announce the availability of Teff grain in 1kg bags via www.innovative-solutions.org.uk.
These are naturally gluten free and can be added to baking, sprinkled on top of loaves during baking or to salads,muesli etc.
We have been asked to produce a Teff bread mix, and are investigating a seeded bread mix -like the ones produced in europe but we are concerned that it might be "surplus to requirements" as there are already several bread mixes in the GF domain.
Views please
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| Recently Diagnosed with CD
| Posted by ANITA MOTTRAM on 2009-03-12 (message id=4056 )
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Hi i was diagnosed with coeliac disease and dh five years ago at the age of 33 . I must say the benefits of sticking to a gluten free diet are huge.Looking back ive probably had this condition most of my life and nobody ever picked up on it.Funny you should mention anxiety and mood swings they caused me enormous problems throughout my life ,always being anxious and eventually resulting in panic attacks, so yes i would say this condition can affect your mental state .Although i must say a year on the g free diet reduced the anxiety such a lot not to mention the boost in energy and after just a month the ibs symptoms had more or less resolved .Adjusting to the diet change is strees full at first and often people dont understand your new needs but when you get used to were to buy what you want its actually much easier to shop as we dont get confused with too many choices. Dont hesitate to contact me should you need advice or want to chat .
Hope this is a help to you
Anita
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| epilepsy, seizures and gluten
| Posted by on 2009-03-12 (message id=4055 )
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| Eating out
| Posted by G on 2009-03-10 (message id=4054 )
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My mom and sister have the same problem. McDonald's has no gluten in their burgers and neither does Ruby Tuesday's.
Enjoy!!!!!
G
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| What you can eat on a gluten-free diet
| Posted by Laura on 2009-03-10 (message id=4053 )
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I have just been diagnosed with Coeliac and to be honest, im really worried! I'm a fussy eater anyway so this is going to be really difficult for me
My main concern is eating out with my friends, as I'm jsut a teenager, this is a really big part of my social life and so im worried about group meals to Pizza Hut etc
Can anybody give me a rough guidline of what i can eat out takeaway wise and what i cant
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| Perscriptions
| Posted by Sylvia Woolcott on 2009-03-05 (message id=4049 )
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Contact The Coeliac Society on line. They can provice you with a book which gives yoy all of the information on Gluten Free Products and also a list of prescrptions products
Hope this will help
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| Eating out
| Posted by joe White on 2009-03-05 (message id=4048 )
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I work for HOPS grill and Brewery in Matthews,NC. We have gluten free items availible. I am currently working on a seperate menu to help your dining experience. Just ask for me if you come in
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| Perscriptions
| Posted by sue rigby on 2009-03-05 (message id=4047 )
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Our products and relevant PIP codes:
PRODUCT WEIGHT PIP CODE
Pure Xanthan 100g 282 - 8572
Pure Blended Flour 1kg 282 - 8580
Pure White Rice Flour 500g 325 - 7904
Pure Brown Rice Flour 500g 325 - 7912
Pure Potato Starch 500g 325 - 7920
Pure Tapioca Starch 500g 325 - 7946
Pure White Teff flour 1kg 343 - 1483
Pure White Teff flour 3 x 1kg 343 - 1491
Pure Brown Teff flour 1kg 343 - 1467
Pure Brown Teff flour 3 x 1kg 343 - 1475
Tel: Innovative Solutions UK Ltd
Pharmacist telephones 01706 746713
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| Perscriptions
| Posted by Gloria Berlin on 2009-03-04 (message id=4046 )
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I would also like a list of gluten - free foods that I can get on prescription.
Look forward to hearing from you. Many thanks
Gloria
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| Buckwheat Bread
| Posted by c slunder on 2009-03-03 (message id=4044 )
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Thanks to you Alan my bread did not burn . However this bread did not rise very much at all . I added souring agent to it because they forgot ,I used vingar so the soda tartar mix would react. i also reduce the temp to 400f it cooked in 28 min so temp could be reduce agin maybe. the falvor is good , i wonder if it could be shaped into a loaf ? i will try that next time hope this helps
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| Buckwheat Bread
| Posted by c slunder on 2009-03-03 (message id=4043 )
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Thanks to you Alan my bread did not burn . However this bread did not rise very much at all . I added souring agent to it because they forgot ,I used vingar so the soda tartar mix would react. i also reduce the temp to 400f it cooked in 28 min so temp could be reduce agin maybe. the falvor is good , i wonder if it could be shaped into a loaf ? i will try that next time hope this helps
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| Re: baby and diet changes
| Posted by Andi on 2009-03-01 (message id=4040 )
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FYI: Most doctors are not very well informed regarding celiac disease. Your doctor is wrong. I have celiac disease and I personally know families who have young children (3, 5 and 6 years old) who have celiac disease. Your best source for information about celiac disease is a local support group. Those who have celiac disease have to be informed for their own good, have researched it and are very willing to share what they know with others in hopes of helping them. I have learned so much from researching online and reading books about it. Another important thing to know:
Celiacs are much more susceptible to having other food intolerances/allergies and sometimes after eliminating gluten from their diet will still have digestive issues. I know I did and NONE of the doctors could help me. I discovered this on my own, took my concerns to an allergist, was tested and the tests came back positive!
Many additives, preservatives and food dyes are the culprits. For me it was carrageenan and MSG! You must read food labels faithfully and become familiar with generic names for these things. Eliminating gluten from your diet is important BEFORE serious complications occur such as infertility, Barrett's esophagus,
asthma, etc. Be your own advocate
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| Re: Sorghum and Garfava flour in the UK
| Posted by Jackie on 2009-03-01 (message id=4038 )
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This may be an old post but am replying just in case someone else gets routed this way. I have just bought Juwar (sorghum) flour via internet. www.theasiancookshop.co.uk I also got cassava flour. I cannot tollerate gluten and am looking forward to using these flours. They have masses of other lovely stuff too - worth a look
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| Glutenfree recipes for Feeding Children
| Posted by Louise Jackson on 2009-02-28 (message id=4037 )
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Hi,
I have found out today that my daughter has an intolerance to gluten. My daughter is 16 months and i'm looking for as much advice as possible. Do you have any recipes that you could share with me?
I look forward to hearing from you.
Many Thanks,
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| Re: tempura batter
| Posted by on 2009-02-28 (message id=4036 )
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| gf bread using breadmaker
| Posted by Cherry on 2009-02-27 (message id=4035 )
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I'm afraid the Panasonic is the only breadmaker that is always successful. I have had friends who have bought much cheaper brands and have had to go on to buy a Panasonic. It is by far the best machine so I would advise you to sport the money and start making lovely bread. Occasionally they are on offer for £70 so you might be lucky in finding a shop that has this machine on sale. It makes dough for rolls which you bake in your conventional oven - very successful. Also all the speciality breads are delicious
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| What you can eat on a gluten-free diet
| Posted by Misslizzy on 2009-02-27 (message id=4034 )
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I eat Quinoa (pronounced keenwa) for breakfast. It is really nutritious and keeps hunger under wraps until lunch time. It's gluten free, obviously and for a seed is really high in protein (and amino acids) and calcium. You cook it with water and can eat it plain of with fresh fruit pieces or berries. Have tried rice-based porridge with nuts and raisins but I was hungry after 1 hour. We boil our pot of quinoa on a low heat every morning while we're getting dressed. You can have it instead of rice or potatoes with your dinner too. I eat it plain with poached eggs and bacon at the weekend too. I thought I would never be able to enjoy a cooked breakfast like that again but the quinoa has soakage even though it's not sticky. Hope this helps someone
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| Fish and Chips
| Posted by c barford on 2009-02-27 (message id=4033 )
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there are fish and chip shops that do gluten free fish and chips
on special days
check out chelmsford coeliac society
there is one in basildon and one at gt wakering Nr southend
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| Equipment
| Posted by Charmaine McLeod on 2009-02-26 (message id=4031 )
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Cuisinart makes a Bread Machine with a Gluten-free cycle on it. I bought one but have not used it yet. My daughter, who is Celiac, is away at college and will be home in Sept. and then I will start to use it
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| glucose syrup
| Posted by Peter on 2009-02-26 (message id=4030 )
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Tesco used to sell glucose syrup in the cookery section.
You should be able to get it in Boots are other chain of chemists
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| glucose syrup
| Posted by pauline on 2009-02-26 (message id=4029 )
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Please could anyone help me. My son is a diabetic & we use glucose syrup when he has a hypo as he is allergic to the hypostop that is normally used for this. At the moment we can not get hold of any in the chemist. If anyone knows of where i can get some i would be very grateful & dont mind buying over the internet
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| Re: What you must not eat
| Posted by Gloria Steltz on 2009-02-26 (message id=4027 )
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I just ordered bread from this website last night. Can't wait to see what this will taste like. Can't find glutten-free bread in our area.
http://www.glutenfreemall.com/catalog/advanced_search_result.php?keywords=chebe+frozen
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| Re What you must not eat
| Posted by Gloria Steltz on 2009-02-26 (message id=4026 )
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I'd be interested in the kind of wines as well. Is it only Red we ware allowed to drink or is white ok as well. I like the fruity ones but not sure about them. I too have been just diagnosed and it is extremely difficult to find out what you can and cannot have. I so miss my pizza..lol
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| Re Fatigue
| Posted by joan on 2009-02-26 (message id=4025 )
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just had my first cealiac book realise couldnt have modified starch which i been eating in dolmio bolognesse what is modified starch thanks
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| Re: What you must not eat
| Posted by joan on 2009-02-26 (message id=4024 )
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i h ave been diagnosed with gluten intolerance i bought gluten free spaghetti and dolmio sauce which i now realise has modified starch can cealiacs not tolerate it
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| Re rash on chin
| Posted by Miss S on 2009-02-26 (message id=4022 )
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Hi guys,
I had exactly the same problem two summers ago (I was a student working through break in a confectioners factory), and after weeks of trying to cure this patch of inflamed tiny spots on the surface, almost in a cluster with hydrocortisone, spot treatments, moisturisers etc, i found the answer.
I was alergy tested (by a professional kinesiologist) who found that i had become intolerant to the sugar that surrounded me every day during the three months at my summer job. I had began to consume a little more sugar than usual (being a keen health enthusiast!) whilst working there, and this had triggered the reaction on my chin.
I was ordered to stop eating all refined sugars and stop working at the factory, and low and behold, the spots vanished!
I now know that, at this point in my life, my body just cannot cope with sugar. My skin is radiant, and I have a good feeling, that if you manage to do the same, you will see a remarkable difference.
Good luck,
Miss S
x x x
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| Re: Fatigue
| Posted by joan black on 2009-02-23 (message id=4021 )
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can anyone please tell me if they felt better on a gluten-free diet and any advice on what vitamins to take i am on calcium at the moment thanks joan
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| Re: gluten and clinical depression
| Posted by joan on 2009-02-23 (message id=4020 )
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hi i have very bad sleep problem .i can fall asleep watching tv but when i go to bed wide awake has well has cealiac i was just diagnosed in dec i have anxiety due to losing my sister best wishes joan
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| Re Fatigue
| Posted by joan on 2009-02-23 (message id=4019 )
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hi natasha i have since been told that cealiacs could also have lactose intolerance so you would think they would test you for it as well i have felt really poorly .but keep getting told you should feel better now can i ask you do you take iron tablets thanks x
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| Re Fatigue
| Posted by joan black on 2009-02-23 (message id=4018 )
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i am the same still feeling really tired .now been told i have osterperosis i was very fit till i went on a gluten diet so i wondering when the good time has i been told will come
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| Re: Gluten Intolerance and Ulcerative Colitis
| Posted by Karen Johnston on 2009-02-23 (message id=4017 )
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My sister has had ulcerative colitis for about 4 years now. She sticks to a gluten free diet but finds that potato starch is a real problem, including the potatoes. Dairy and chocolate seem to agrivate it too. My brother had it for not quite a couple of years before the steroids almost killed him. He lost his colon and we almost lost him. He, however, didn't want to listen to her about going gluten free and paid the ultimum price. She suffered a couple of hospital stays and bloated up like a balloon from those disgusting steroids. They are poison. They may serve their purpose temporarily but her face was blistered and swollen. She now keeps in under control. Sometimes she goes a bit astray and pays the price. It shows up in her face first. See how you go when you eat potatoes and check all ingredients when buying your groceries. I have a intolerance to rice which gives me dermititis on my face, similar to hers from potato and wheat. I too can't eat wheat as it causes great cramps but I don't have coeliacs or ulerative colitis thank god. Hope this helps
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| Re rash on tops of feet
| Posted by mandy on 2009-02-22 (message id=4015 )
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hi, ive just been diagnosed too and it was this little red rash on my face that started the ball rolling.
ive never had problems with my facial skin before i was such a lucky teenager...... but it comes and goes if i eat wheat
i can still see it under my skin and it rises if i eat wheat but my docs just think its my bodies reaction to the wheat.
i also get it on my hands and feet.
if you are going wheat free im sure like me it will clear up. just give it some time.
im 6 months down the road now and its hardly noticeable... but the split second (within 5/8 minutes) of injesting wheat its there and itches like mad.
just give it some time!!!
If not persit with your doctor.
However, i must say that since ive gone wheat free even though my symptoms have gone, my sensitivity to stuff i touch has gone through the roof. i used that hand gel in the hospital last week when visiting my dad and the nurse was horrified when my hands swoll up infront of her. thankfully she let me bathe my hands in cold water and i took an antihysti pill and it goes as quikly as it comes.
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| Do others have problems with white wine
| Posted by mandy on 2009-02-22 (message id=4014 )
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ive never been able to drink/eat white wine lager or pizza, never really thought anything of it, just stayed away from it cos It gave me cramps.
However, ive just been diagnosed with a wheat allergy and those were the 1st 3 things my doctor told me to stay off.
try ice cold perry / babycham. ive never had a problem with that. its weird pear cider is all the rage at the moment and Ive been drinking it for 25 years.
young lads think its the NEW cool drink until you tell them is just a form of babycham!!!! lol
The other thing I drink is Holston Pils, this doesnt bother me one bit.
Bar staff think im odd because I ask for holston not pils or lager.
But it has to be holston other pils or lagers are a nightmare.
hope this helps
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| Facial rash
| Posted by mandy on 2009-02-22 (message id=4013 )
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hello, ive just had the test for my rash the doc was thinking it was Dermatitis Herptiformis. mine is on my hands face and chest and she said that even thought its brought on by eating wheat its not dermatitis herptiformis because its in the wrong places on my body.
I dont know if thats any help.
I must admit other than the constant itching it was the rash on my face that prompted me to go to the docs. however even though I have been diagnosed with a wheat allergy they are hoping as they have caught it early, it will not progress but only time will tell
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| Re:A coeliac diet is really healthier than a normal diet
| Posted by Margaret Nealon on 2009-02-21 (message id=4012 )
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What you must remember when being a coeliac is that you must cook everything fresh, vegetables, soups,stews,meat balls, croquetas made of ham,cheese or chicken. sauces for pasta. Hence, a healthier diet,you cannot buy processed food as it may contain hidden gluten,ex. processed cheese and ham contain fillers so they are harmful to coeliacs.It is not difficult to cook gluten free using fresh food and there is a wide range of gluten free pasta on the market,so all you have to do is make a delicious sauce to accompany it. You must avoid ice-cream as well as it may contain ingredients to thicken it, even ice-cream served in restaurants can harm coeliacs.There is a wide range of bread, biscuits, cakes and jam on the market so all we need to do is learn to cook and make tasty meals from scratch.If anyone is interested in learning how to make some of these dishes please get in touch with me
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| Re: gluten and dairy free
| Posted by Sheila on 2009-02-19 (message id=4009 )
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I have products, I was looking for stats on cecliac disease when I came across this site, the producys are gluten, yeast, dairy,and soy free. The name is sonshines mixes (my web site is sonshinesbread.com) there is hemp seed bread, sweet bread, pancake, pastry/ cookie, pizza and brownie. Being diabetic you could have the hemp seed,the pancke, the pizza and the pastry/cookie mixes. Just use agave nector for sweetener it is diabeticly friendly. My products are only in Ontario right now but I will be expnding.I am not trying to advertise you would have to get back to me and I could send you samples, I care that your having a hard time finding somethings to eat
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| GF Babies
| Posted by Peter on 2009-02-19 (message id=4008 )
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A recent survey of 168 children under the age of 16 diagnosed as Coeliac in Canada reported that 8\% of them had an initial diagnosis of gastroesophageal reflux before the coeliac condition was confirmed.
Title: Celiac disease: evaluation of the diagnosis and dietary compliance in Canadian children.
Source: Pediatrics (Pediatrics) 2005 Dec; 116(6): e754-9
The abstract of this paper follows:
Abstract: OBJECTIVES: We sought to characterize the clinical features at presentation as well as the associated disorders, family history, and evaluation of compliance with a gluten-free diet in children with celiac disease from across Canada. STUDY DESIGN: All members (n = 5240) of the Canadian Celiac Association were surveyed with a questionnaire. Of the 2849 respondents with biopsy-confirmed celiac disease, 168 who were < 16 years old provided the data reported here. RESULTS: The mean age when surveyed was 9.1 +/- 4.1 years, and 58\% were female. Median age at diagnosis was 3.0 years with a range of 1 to 15 years. Presenting symptoms included abdominal pain (90\%), weight loss (71\%), diarrhea (65\%), weakness (64\%), nausea/vomiting (53\%), anemia (40\%), mood swings (37\%), and constipation (30\%). Almost one third of families consulted > or = 2 pediatricians before confirmation of the diagnosis. Before the recognition of celiac disease, other diagnoses received by these children included anemia (15\%), irritable bowel syndrome (11\%), gastroesophageal reflux (8\%), stress (8\%), and peptic ulcer disease (4\%). A serological test was performed to screen for celiac disease in 70\% of those in this population. Eight percent had either type 1 diabetes mellitus or a first-degree relative with celiac disease. Almost all respondents (95\%) reported strict adherence to a gluten-free diet, and 89\% noted improved health. Reactions after accidental gluten ingestion developed in 54\% of the children between 0.5 and 60 hours after ingestion with a median of 2.0 hours. Reactions included abdominal discomfort (87\%), diarrhea (64\%), bloating (57\%), fatigue (37\%), headache (24\%), and constipation (8\%), and most displayed > 1 symptom. Although most adjusted well to their disease and diet, 10\% to 20\% reported major disruptions in lifestyle. Twenty-three percent felt angry all or most of the time about following a gluten-free diet. Only 15\% avoided traveling all or most of the time, and during travel, 83\% brought gluten-free food with them all of the time. More than half of the families avoided restaurants all or most of the time. Twenty-eight percent of the respondents found it extremely difficult to locate stores with gluten-free foods, and 27\% reported extreme difficulty in finding gluten-free foods or determining if foods were free of gluten. Sixty-three percent of the respondents felt that the information supplied by the Canadian Celiac Association was excellent. Gastroenterologists provided excellent information to 44\%, dietitians to 36\%, and the family physician to 11.5\%. When asked to select 2 items that would improve their quality of life, better labeling of gluten-containing ingredients was selected by 63\%, more gluten-free foods in the supermarket by 49\%, gluten-free choices on restaurant menus by 49\%, earlier diagnosis of celiac disease by 34\%, and better dietary counseling by 7\%. CONCLUSIONS: In Canada, children with celiac disease present at all ages with a variety of symptoms and associated conditions. Delays in diagnosis are common. Most children are compliant with a gluten-free diet. A minority of these children experience difficulties in modifying their lifestyles, and gluten-free foods remain difficult to obtain
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