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Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intoleranceactioning query
Is one of the symptoms of Celiacs Disease extreme fatigue if you eat the wrong thing by accident?
Thank you
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| Re: Fatigue
| Posted by Peter
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It is possible, if you eat enough to inflame the digestive system, that you don't absorb enough food and so are short of energy.
Peter
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But if I have been extremely careful, can one instance knock me down to the points of headaches and fatigue?
Thanks
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Ward, from my own experience I would say yes
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ABSOLUTELY!!!!
This is something I've found to be absolutely true. I actually went to get tested for Mono at what point because I felt so chronically tired, before I realized that an integral part of my diet had contained wheat and I was being affected by celiac. It really knocked me out!
Fatigue is absolutely from celiac
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Many times over my twenties I felt like I was 94 years old. Now that I'm 30 and have been on the gluten free diet for over 6 months I feel much, much better. Like a normal human being should. I thought I was stressed out all of the time, but I dealt with alot of stress this past summer and was practically bouncing off the walls. Even my personality has changed...I feel like I did when I was in elementary school, but more mature of course! My sense of humour returned when I was less fatigued. t
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| Re: Fatigue
| Posted by Lyn
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If I accidentally eat gluten I have the usual reactions (feeling sick, bloating, pain, diarrhoea) but I also feel very very tired & just have to go to bed
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I seem to react very strongly to hidden gluten. I have been GF for 6 months I have also developed a lactose intolerance. I still get very fatigued. Im worried about returning to work as I've been off for such a long time and my job is very demanding both physically and mentally. Will I always have periods of ill health due to coeliacs? should I look for a more accommadating job? I just don't know how much this disease is going to effect me. I would be really pleased to have communication with other sufferers as at the moment I have none and I believe that it will help me and then in turn I could maybe help others
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| Re Fatigue
| Posted by yvonne
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I was told four years ago that i had Fibromyalgia and Celiacs disease by my doctor,Fibromyalgia is a condition associated with generalized muscle pain and fatigue,sleep disturbances,and many other symptoms,i was told not to eat potatoes,tomatoes,chillies,peppers.
with Celiace disease i was told not to eat wheat, oats,barley,gluten,i try to read the contents of the product i am going to bye to make sure it dosnt have gluten in it.it is hard to understand some of names that they use like' udon' (wheat noodles)
blue cheese (made with bread) ect
you have to beware of toothpaste and mouthwash,medicines,stamps,envelopes,sauce mixes,ice cream ect,i hope this may help others with these conditions.
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I get extreme fatigue in the afternoons almost every day. I've been on the gluten free diet for nearly a year now and haven't cheated once (I'm phobic of the stomach pains that I will get if I do). It really interrupts my day when I start falling asleep in school, bike riding, in the car, and even during PE. We've been to the doctor (or 5 doctors) several times and they have no idea what's wrong with me. My fatigue shuould have ended after a few months GF. They think I may have Lupus disease, but the only symptoms I have are the fatigue and low white blood count. Does anyone out there have any answers? I'm getting really tired of this...
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| Re Fatigue
| Posted by Peter
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Some people have a natural cycle of being very wide awake, then have a period of being very sleepy, then wide awake again.
Usually this sleepy period is in the afternoon, and in many countries many people will have an hours sleep during this period in the afternoon, and then be wide awake for the rest of the day.
In the next school holidays, or at the weekend, try going to bed for an hour when you feel sleepy in the afternoon, darken the room, and go to sleep properly. Set an alarm.
Give yourself time to wake up properly afterwards before you try and do anything else - you may feel it takes 15 minutes or so to wake up properly. Then see if you are wide awake for the rest of the day.
If you are wide awake for the rest of the day, then this is not a medical problem. Just your normal healthy body wanting a sleep after lunch.
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| Re Fatigue
| Posted by Debbie Henson
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I've been on a gluten-free diet - fanatically adhering - for six months. My doctor suggested it because of fatigue and joint pain. Well, my fatigue and joint pain are now WORSE than they ever were. I'm wondering if anyone else has had this problem. I've spent a lot of money on special food and not liked it a whole heck of a lot!
I'm tired, sore, and sick of my diet. Anyone else have this problem?
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| Re Fatigue
| Posted by Natasha
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Most likely you all are suffering from a severe vitamin B12 deficiency. This deficiency is common with celiacs as we don't absorb any nutrients out of our food, not until our stomachs have healed (which takes about two years).
Even after you have adopted the gluten-free diet, a couple of things are going on. Number 1, your stomach most likely hasn't healed yet, it takes about two years. Number 2, most people have a store of B12 in their bodies. We don't, so any that is there is used up pretty quickly. I find I still "crash"--today, for instance, I couldn't get out of bed so I stayed home from work. Number 3--I will theorize that we all got used to feeling like such crap for so many years that now, feeling good on the gluten-free, we really notice it when we feel badly.
I have started to take a sublingual B12 supplement and noticed a huge difference. I still suffer from exhaustion and the feeling that a thousand elephants have stomped all over me all night--but it's rare now, instead of EVERY DAY and it being rare that I feel good!.
The other deficiency could possibly be a calcium/magnesium deficiency (you have to take these together for the calcium to be absorbed in the system). This is another common celiac absorption dysfunction. These minerals help you to sleep, and sleep well. I am now off of my heavy-duty doctor-prescribed sleeping pills once I started taking these. A good, solid, thorough sleep will aid you in healing your body and getting rid of exhaustion (obviously).
To view all the effects of these deficiencies, please google it and you will be amazed (celiac + B12 + deficiency, for instance).
-Natasha
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| Re Fatigue
| Posted by Elizabeth
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Hi Natasha
Thank you for your counsel. I experience something similar to yours. Somehow I feel the food producers, restaurants , the industry decision makers have yet to prove themselves in ethical standards instead of manipulating certain markets.allowing organic food accessible to certain localities and price quotas and the issue of 'organic' food labelling.
Stay in good health!
Best wishes,
Elizabeth
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| Re Fatigue
| Posted by Paul
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When your body fights an infection you get tired/fatigued with any illness and ingested Gluten is seen as an infection that your body needs to fight off i.e you produce antibodies. As your body concentrates all it's effort on fighting off the infection, you are left with no energy. Well it's a possible explanation anyway
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| Re Fatigue
| Posted by Mikey
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I suffered only occasional bouts of severe nausea before i was diagnosed coeliac.
once i changed my diet and excluded gluten, things got WORSE. fatigue, dizziness, more nausea, bloating, wind, constipation, diarrhea, moodiness, less cognitive ability, brain fog, etc. these all occurred in a seemingly random way.
after almost a year of thinking i should put up with these things in the short term before i get better, i changed to a different gastroenterologist, who had me do some breathe tests which show i have an intolerance to both lactose and fructose.
removing these from my diet during my second year of being gluten free meant that almost all the problems decreased. but sadly even with the special diet, i have been unable to overcome continuing fatigue, moodiness and depression. there is a big loss of confidence involved.
as yet i have no doctor or medical practitioner who has been able to help me overcome the fatigue. i have been coeliac and gluten free for two years now and am not sure what to expect of the future
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| Re Fatigue
| Posted by Peter
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The symptoms you experience after starting a gf diet suggest that there is also somthing in the new diet that you need to avoid.
Often the main culprit is soya. This gets into a lot of manufactured gf foods, but a significant number of coeliacs react very badly to it. Also avoid all milk and milk products.
I would suggest avoiding all manufactured foods, and make your meals from the plain ingredients - rice, potato, fresh meat, fish, fresh fruit and vegetables. Avoid any unknown oils. Use olive oil or corn oil. Avoid dried fruit that contains any added oil.
Avoid chocolate that contains soya lecithin.
Try this for 4 weeks and see if you note any improvement
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| Re Fatigue
| Posted by joan black
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i am the same still feeling really tired .now been told i have osterperosis i was very fit till i went on a gluten diet so i wondering when the good time has i been told will come
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| Re Fatigue
| Posted by joan
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hi natasha i have since been told that cealiacs could also have lactose intolerance so you would think they would test you for it as well i have felt really poorly .but keep getting told you should feel better now can i ask you do you take iron tablets thanks x
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| Re: Fatigue
| Posted by joan black
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can anyone please tell me if they felt better on a gluten-free diet and any advice on what vitamins to take i am on calcium at the moment thanks joan
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| Re Fatigue
| Posted by joan
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just had my first cealiac book realise couldnt have modified starch which i been eating in dolmio bolognesse what is modified starch thanks
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| Re Fatigue
| Posted by Kelly
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Have you had your Thyroid Checked
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| Re Fatigue
| Posted by Judy Coleman
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Has anyone suggested to you that you may have Lyme disease? It is worth looking into. Don't be put off by doctors who are not familiar with Lyme. I don't know what area of the country you live in, but someone with Lyme needs to see a dr. who specializes in it, and I don't mean an infectious disease dr. The tests for Lyme are often negative when the person actually has it. Do you ever, or have you ever, had any rash or rashes? Do you know of a tick bite before you got sick? If not, don't let that put you off the possibility of Lyme as about half the people with Lyme disease don't remember a tick bite, and only about 30 percent of Lyme patients get a rash. It's a helpful tip, tho, if you have had the rash. So you must find a dr. who knows the specialty tests that will tell you for sure if you have Lyme disease or one who will make a clinical diagnoses based on symptoms, and you do have the symptoms. Treatment is an extended treatment of antibiotics. And not all antibiotics work for each case, as there are diffferent strains of Lyme that respond to different antibiotics, and it is sometimes a trial and error thing of getting the right meds. I am familiar with Lyme as my whole family has had it, and it can get very serious if not treated. My oldest daughter had untreated Lyme for 8years, and she was very sick and it took about 4 years of treatment for her to get over it. Many people if not treated early can suffer from it for a lifetime. Get on the internet and find out about Lyme. Go to www.lyme.org or www.lymenet.org. There are many other websites out there also. Good luck
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