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Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intoleranceactioning query
| How long for GF diet to work
| Posted by
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Dear All,
I have recently being diagnosed as having CD. I have read many of the site's questions/answers and found them helpful. What I would like to know though, is how long it takes for a gluten-free diet to begin to take effect? Weeks or months? I know it will vary from person to person but wonder what the average amount of time usually is. Can any one help? ( I have only been on the diet for about two weeks with no noticable improvement so far, although I think I am still juggling with 'hidden' gluten!).
Thanks.
Nessa
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| Re: How long for GF diet to work
| Posted by
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I was diagnosed at 57 & my mouth ulcers began to heal within a week of going GF but my villi were not showing as 'normal' (in a biopsy) until 2 years after starting GFD.
A biopsy at 9 months GF showed only 'little improvement' to villi.
I understand coeliac children heal faster (and more completely) compared to adults so I guess if you are a young adult you might heal more quickly than an older one.
Every so often I would notice things had got a bit better- eg my fingernails were less fragile, the migraines grew less & less, bone pain went - which presumably happened because the villi healed & my body had the chance of absorbing more nutrients properly.
I think the medics are sometimes more optomistic than they should be about recovery on GFD- especially for adults
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| Re: How long for GF diet to work
| Posted by
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I was only diagnosed 6 months ago and i have been on my new gf diet since then. I didnt notice much improvement, this was due to the development of a lactose intolerance diagnosed by my dietician. I havent been able to return to work full time as yet but I am hopeful. I still have bad days but the good days seem to be coming more often. My doctor was very supportive at first but now seems to be getting 'b
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| Re: How long for GF diet to work
| Posted by
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I was only diagnosed 6 months ago and i have been on my new gf diet since then. I didnt notice much improvement, this was due to the development of a lactose intolerance diagnosed by my dietician. I havent been able to return to work full time as yet but I am hopeful. I still have bad days but the good days seem to be coming more often. My doctor was very supportive at first but now seems to be getting 'bored' with me and says I should be fine now. I have no contact with other coeliacs so I can't compare my symptoms and healing time with anyone
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| Re: How long for GF diet to work
| Posted by
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It really can take a long time to recover but you should feel much better the longer you are GF.
If you are on UK there is a gluten free message board here:
http://members2.boardhost.com/glutenfree/
There is a lot of information for coeliacs here, also:
http://www.coeliac.info
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| Re: How long for GF diet to work
| Posted by
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After a 10 day Chinese herbal detox (pure herbs, nothing else) and following with strict diet of basically veg and fish, I noticed the difference within the 5 days of the detox.
The detox was vital as my system needed to be cleansed of all the gooey, globby garbage - the gluten residue is like rubber cement. Just drinking water wasn't going to do it.
The detox was very very gentle, hence taking the 10 days and all herbs. I ate veg soup, fish, gluten free crackers - nothing exciting, but didn't feel like much more. the detox doesn't allow alcohol, coffee, tea, red meat, dairy or sugar - so my body truly did get a cleanse. Start it on a Friday and by Monday, you will feel OK.
I don't know why yet, but dairy and sugar don't agree with me, so I have keep them out of my diet. It is amazing how good food tastes without all the garbage.
Good luck
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| Re: How long for GF diet to work
| Posted by
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I don't think you need to detox completely if you have CD.
Your body has been through enough trouble already, I think, and it will naturally need time on the GFdiet to recover.
The best thing to do if you have been diagnosed as having CD is to stay strictly GF.
You may become lactose intolerant with CD but if you are like me you will still be able to eat hard cheeses and bio yogurt and lactose-reduced milk, which are rich in calcium.
It is important to keep up your calcium if you are lactose intolerant and have CD since people with CD have a need for larger amounts of calcium than most people & without it you may get poor bone density.
You should check with your GP if you think you may have lactose intolerance.
Soy milk and soy desserts are usually GFand fortified with calcium so are good for people with CD and lactose intolerance.
Other non-milk calcium sources are green vegetables like broccoli, almonds, oranges, tinned sardines and salmon with bones and also dried pulses.
You can also have calcium and vitamin D (helps absorb calcium) supplements prescibed by your doctor.
There is information about calcium here:
http://coeliac.info/suppboard/viewtopic.php?t=398
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| Re: How long for GF diet to work
| Posted by
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My son was diagnosed with ulceretive collitis when he was three months old. I am desperate to find recipes for foods that he can eat, and to broaden his world as well. I'm tired of always saying no for cakes and sweets and even food that he see's around him. I am also interested in taking him to a homeopath and try a more hollistic approach than go the medical route, the doctors only option for him is a total colonostomy, wich I cannot bear.
thank you
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| Re: How long for GF diet to work
| Posted by
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Look into getting your son on to some quality products that will heal his intestines.
There are excellent products by a company called GNLD. I know of many people young and old with this condition that have been helped by these products.
The products of importance are the Aloe Vera Juice, Salmon Oil, Nourishake (protein shake) and a few others I am not sure of exactly.
Their products can be ordered on line or via phone as they are not available in stores.
They have a website www.gnld.com. or contact nadastgermain@aol.com and she can help answer any of your questions.
I hope this helps.
Diana
Toronto ON
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| Re: How long for GF diet to work
| Posted by
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Good quality Aloe Vera Juice, Protein Drink & EFA's will help to heal the intestines.
Look into a company www.gnld.com. They have superior products.
Diana
Toronto ON
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| Re: How long for GF diet to work
| Posted by Claire
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Can you help please.
My mother is 90 and became very ill with a low blood count, extreme exhaustion, constant pain, no interest in food, malabsorbtion, muscle wasting, diarrea etc. She blood tested negative for Celiac but tried a GF diet anyway. The results were amazing. She couldnt stop eating, gained 8lb in 8 weeks and became a different woman.
After 8 weeks the symptoms returned even though her diet hadnt changed. She also developed low sodium and protein. She quickly lost the 8lb in weight and became very tired again (not as bad as previously).
She has since improved due to taking sodium tablets and trying a lactose/dairy free diet. The biggest improvement is with her diarrea. She has continued with the GF diet but is no longer gaining weight and doesnt want to eat as much. Whats gone wrong.
She's vegetarian and eats quinoa for the protein deficiency, potato, sardines or pilchards, vegetables, soya milk.
We have had all the xrays to ensure that there is no other medical problem.
Has the GF diet stopped working for any other people.
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| Re: How long for GF diet to work
| Posted by Peter
|
If we assume that the changes observed are the result of the changes in diet, I would suspect that over the course of the 8 weeks you have made some other slight changes to the diet, and there may be something that you overlooked that has caused a problem.
If she was eating a reasonable quantity of dairy products through that 8 week period, then it is unlikely to be a problem with dairy. Soya is known to be indigestible, so if you have increased the quantity of soya in her diet then that could cause a problem.
Think about any other group of foods that you have increased in that 8 week period.
You can go over a threshold for what the digestive system will tolerate. Quinoa should be washed with boiling water to remove a bitter alkaloid from the grain - that can also cause problems if you eat too much.
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| Re: How long for GF diet to work
| Posted by Claire
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Ref: 1745 & 1746
Peter,
Thought you may like to hear that we have finally found out why my mother had stopped improving on the GF diet. It appears she is ultra sensitive to Wheat Starch. The bread, cakes and biscuits that we purchased all stated Gluten, Wheat and Dairy free. Since cutting these from her diet, she no longer has diarrhea and is gaining weight. I'm very surprised that wheat starch isn't clearly marked on the packaging.
You were right when you stated that it probably wasn't a lactose intolerance. We are gently re-introducing dairy into her diet with no adverse reaction. No more Soya either.
You asked us to think of other foods that we had increased in the eight week period which were, bread, cakes and biscuits.
We have now purchased rice biscuits but misses her bread. Can you recommend a 'soft' bread.
Many Thanks
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| Re: How long for GF diet to work
| Posted by Peter
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One possibility that suggests itself to me from what you describe is a 'leaky gut syndrome'.
This is where the gut will absorb very fine particles of food that have not been properly digested - mostly these are very fine flour and spices. These cause inflammation of the gut lining very similar to a gluten reaction.
The bread, cake and biscuits are all introducing this fine flour into the diet, even though gluten-free.
You could try a period without any refined flour of any sort, and see if that establishes a healthy baseline. I would also keep it gluten-free as well.
You can make a healthy snack from cooked rice, raisins,dates, nuts, but miss out the spices.
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