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Moderated discussion and help for gluten free, coeliac, celiac, wheat allergies or intoleranceactioning query
| Can you help me
| Posted by
|
Hi,
I'm currently carrying out a GCSE food technology project in England on the gluten-free diet and I was wondering whether anybody out there who follows this diet could answer a few questions for me:
*Do you have any difficulties with e.g. ready made meals, eating out etc.?
*What qualities do you look for from a gluten free product?
*Do you have any preferences for the meals you eat e.g. what nutrients you want?
*What foods do you want to eat but can't?
Thanks everyone,
Laura
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| Re: Can you help me
| Posted by
|
Eating out is always a problem as you are never quite sure what is in the meal. Wheat flour can get into almost anything - including chips!
Peter
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| Re: Can you help me
| Posted by
|
Eating out is always a problem as you are never quite sure what is in the meal. Wheat flour can get into almost anything - including chips!
Peter
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| Re: Can you help me
| Posted by
|
Ready-made meals are difficult because wheat/gluten masquerades under many other names (eg modified starch). Sainsbury's and Tesco are now labelling shelves and own-brand products as gluten-free or containing wheat, cow's milk etc, so shopping is becoming easier.
Eating out involves double-checking with the chef (waiting staff don't often know how the food is made). For a special meal, it's worth checking ahead with the restauarnt that there will be adequate selection on that evening's menu. Good restaurants don't mind making things to order, but many 'chain' restaurants don't have the flexibility.
Gluten-free products should taste just like the real thing. It's almost as bad as not being able to eat something at all when you try some of the filth they put on the market.
The things I miss are simple things like sandwiches, although in London, a select few shops are now making a limited range of wheat-free sandwiches (if you fancy travelling and paying the price). Corn/maize pasta is pretty good (especially if you find an Italian-made brand), but fresh ravioli is nowhere to be found.
Not being able to eat wheat used to make me very depressed, so much so that I felt like crying when I was doing my food shopping. Things have got markedly better as awareness (therefore product availability) has grown and the Internet is a great help as well. But you have to keep your eyes peeled for new products and get all your friends and family to keep a loaf of wheat-free bread in their freezer for when you visit. There's nothing like the smell of toast
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| Re: Can you help me
| Posted by
|
laura,
All my life i have had to live, on and off, on a gluten free diet,(constanstly from aged 5 until 17 when i rebeled) having been diagnosed as a ceoliac at the age of 5/6? about 1963/4.
i was used as a guinee? pig for about 7 years by the specialist Dr Mosely at St Marys Hospital Portsmouth, hants, im not sure, but i belive, we were the first family to have two ceoliac's in the same family.
As for your questions the foods and products available now are getting better and, more people and manufactures are aware of the food requirements, this is a lot of the reason why i can say i can live on or off the diet... a bit of a remmission.
Still can't eat pizzas without taking 3 days to recover.........
When i was first put on the diet i was not able to eat bread, cakes ,sweets, sugar, cereals, milk, any tinned or proceesed food, and there were virtuatly NO products available for sale, god bless my mum she really tried, but unfortunatly no matter how she tried, back then, providing for a gluten free diet was wheat starch for cooking and fruit, meat and veg, (lucky i liked them)
The diet has got a lot better and in fact, some resturants now have gluten free options on the menu, but i cant go out and eat food like most, i know that if im invited out for meals, rather than put the host under unbealiveable pressure to provide for my diet, I'll accept that i'll have the s***s for the next three day.
Laura, probably not the answer your looking for but its honest
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| Re: Can you help me
| Posted by
|
laura,
All my life i have had to live, on and off, on a gluten free diet,(constanstly from aged 5 until 17 when i rebeled) having been diagnosed as a ceoliac at the age of 5/6? about 1963/4.
i was used as a guinee? pig for about 7 years by the specialist Dr Mosely at St Marys Hospital Portsmouth, hants, im not sure, but i belive, we were the first family to have two ceoliac's in the same family.
As for your questions the foods and products available now are getting better and, more people and manufactures are aware of the food requirements, this is a lot of the reason why i can say i can live on or off the diet... a bit of a remmission.
Still can't eat pizzas without taking 3 days to recover.........
When i was first put on the diet i was not able to eat bread, cakes ,sweets, sugar, cereals, milk, any tinned or proceesed food, and there were virtuatly NO products available for sale, god bless my mum she really tried, but unfortunatly no matter how she tried, back then, providing for a gluten free diet was wheat starch for cooking and fruit, meat and veg, (lucky i liked them)
The diet has got a lot better and in fact, some resturants now have gluten free options on the menu, but i cant go out and eat food like most, i know that if im invited out for meals, rather than put the host under unbealiveable pressure to provide for my diet, I'll accept that i'll have the s***s for the next three day.
Laura, probably not the answer your looking for but its honest
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| Re: Can you help me
| Posted by
|
I have been told I have Celiac. It is life long diet that one should not cheat on. The diease goes into remission if you stay on the diet. Eating out is a real challenge. You never what the chef has put into the food. It is best to stick with plain cooked meats and potatoes. Take your own dressing for the salads.
Going to the grocery store is a real nightmare. You have to read every label for gluten free ingrediants, and the list of possibilitys are endless.
I really crave sweets, donuts, pie ,cake, candy ect. all the snack foods.
I hope that helps.
Stan
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| Re: Can you help me
| Posted by
|
Hi Laura,
I was diagnosed with coeliac disease only one year ago after years of pain. Just after starting my gluten-free diet I felt so happy and energetic, I could wake up early in the morning and do sport every day without feeling fatigue. Even though the diet implied giving up nice food, the physical energy I discovered in me compensated for that. I really miss pizza, gnocchi, lasagne and especially freshly baked bread and croissants...
After a year I realise that coeliac disease improved my health, but made my social life really difficult. Eating out is always very risky, and I advise you to join the local group of the Coeliac Society in the UK for information on local restaurants supplying gluten-free food. If you are invited for dinner at a friend's, make him/her aware of your condition, you will see that they will be happy to meet your dietary requirements. You can help them by bringing your own bread or sauces with you. Also, I always keep gluten-free snacks in my handbag when I travel, as it is not easy to find gluten-free food in train stations or airports. By the way, if you like shopping like I do, IKEA and John Lewis stores have restaurants and bars supplying delicious gluten-free cakes...shopping and cakes...what a nice combination!.
Hope this useful!!! Grazia
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| Consider yourself lucky
| Posted by
|
I have had Celiac since I was an infant....I did not know about the disease growing up, so, consequently, I ate everything....I was always sick, but did not know why.In addition to this disease, I have several food allergies, including a big one, I cannot ever, ever, and have never eaten, EGGS....or poultry....or turkey....So, therefore eating out, even eating home is a big deal....The only way out, is to prepare everything myself....from scratch...Also, I find that the celiac way of life, made me gain weight.....(besides dealing with menopause)....I was eating lots of potatos and rice and corn....now, I am afraid to eat those foods, because of gaining weight...
So, consider yourselves lucky....
Have a great day...
Arlene
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| Re: Consider yourself lucky
| Posted by Amie Houze
|
Hello,
I am also currently doing G.C.S.E. coursework on the gluten-free diet and i also wondered
* Do you think there is a good variety of gluten free products in restaurants, shops etc?
* Do you find it difficult to maintain a healthy/nutritious diet?
Thank you
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| Re: Consider yourself lucky
| Posted by
|
I am still totally frustrated.....No eggs, no poultry, no wheat, rye, barley and oats....If I eat things with salt, I retain water....if I eat too many carbs, I gain weight.....After a while, one can get crazy with all of these restrictions.....In addition, if I eat alot of tomatos, or tomato products, I get serious heartburn....
Sometimes, I do not feel like cooking...but, the options are very slim....Amy's has a few products that are gluten free...but, they are spicey and with lots of tomato sauce....If I had my way, I would eat meat and potatos, and salad....but, we all know that is not practicable....I have found stores that sell cookies and crackers....and also, found many, many websites to do gluten free shopping....But, most of the gluten free food has eggs....(of course, I am aware of the egg free products)...I would like to order everything, but that would mean gaining lots of weight....
Sometimes, I wake up and literally do not know what to eat.....
Yes, I would admit, I have much issues with eating....
Thanks for listening...
Arlene Tumminello from Ft. Lauderdale, Florida
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| Re: Consider yourself lucky
| Posted by Jenn
|
I have recenlty started a gluten free and dairy free diet,... I mainly stick to fruit, veg meat and fish,... I have rice cakes instead of bread, rice/soya milk instead of cows milk... but dont really enjoy soya milk dont really like the taste!!!
I do feel very limited sometimes ,.. especially when eating out, the choices are not great in menu's, I have to take gluten free pasta with me to some places, and have to ask what is in in food, (sometimes I feel really crappy when all my friends are eating chocolate cake, ice-cream etc for dessert and I have to sit there with a choice of melon or a fruit etc)... lucky for me the make gluten and dairy free chocolate and cakes in the supermarket because I have a sweet tooth :O)
The Supermarckets provide foods for all different kinds of diet, they have a gluten and dairy free range in tesco.Even Walkers crisps let you know which crisps are suitable for celiacs... making me feel like there is a chioce of things to eat. as for ready meals,... I havent seen many that are suitable.
Nutrition,... I feel that this is a very well balanced diet ,... not as much junk to eat ( pizza, McD's etc) and I'm getting all my vitamins etc from the meat, fish, fruit and veg, I feel healthier overall...!
I dont know if this will help you at all,... but hope it will ... Jenn
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| Re: Consider yourself lucky
| Posted by
|
My son who is 12 was diagnosed with coeliac just a week before christmas 2003.
He is also diabetic on insulin since he was 4.
shopping and trying to balance the foods is difficult, and going out to eat is even harder because I find people in the food industry do not have enough knowledge about coeliac.
They will prepare a gluten free meal for you but how do we know it has not been contaminated eg,
same knife in differant butter dish,gluten free bread in ordinary toaster you get the picture of what I am on about
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| coeliac
| Posted by Amanda Huson
|
i am also doing my GCSE coursework on coeliacs and was wondering if anyone could help me anseer my questions.
*do you find it hoard to eat a balanced diet? what problems do you face?
*do you find food much more expensive than "normal" foods?
*wat problems do you face when going out to eat socailly?
*do you find gluten free products hard to cook with and how do you find the taste?
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| Re Consider yourself lucky
| Posted by Kathryn Bowers
|
Hi, I'm on a wheat-free, gluten-free diet. I feel so much better now that all the pain has gone so I never knowingly eat my "forbidden foods". Going to friend's houses poses no problems because I take my own foodstuffs with me to make it easier for my hosts. Sainsburys and Tescos have extensive gluten-free ranges so the choice is getting better, but a lot of the food is too expensive. I resent paying say £1.85 for spaghetti when the normal stuff is about 50p. Life's unfair enough for us coeliacs without making us pay more for unadulterated food. OK, I love Walker's crisps as my snack food. Luckily for me, I like eating meat, dairy products and vegetables, Indian meals, Thai food so I have quite a varied diet within my limitations.
I don't eat out socially any more. I can't take the risk. I used to wonder why I was ill after eating chips. Chips = potatoes in my book. Then another coeliac told me that most chips were coated in flour and then fried in a blend of oils including wheatgerm. In some restaurants they coat steaks and roast potatoes with flour during the cooking process. Some staff won't tell you the truth what's in your food either because they want to make a sale or because they're afraid of upsetting a potential customer. I'm young enough at 28 to socialise by just going out to the pub without the worry about food. At the end of the day, I have to look after number one and I explain this to people who question why I eat different food to them.
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