After a couple of months of serious illness that happily ended with my gluten intake, last year I discovered that I am celiac. The learning process was hard and I kept poisoning myself, but after a couple of months of trial-and-error and reading useful websites like this (thank you!) I managed to keep 100\% gluten-free. I am doing quite well now, feel 10 years younger, and do not miss any gluten-based food.
However, two weeks ago I prepared lamb kidneys and, surprisingly, managed to poison myself with gluten. The symptoms were unequivocal and I am 100\% sure that did not eat gluten from other sources as I cooked everything at home. Apart from the kidneys everything was “food as usualâ€.
I washed the kidneys well and removed the inner bits as required, but suspect that there were traces of lamb urine (sorry if this sounds disgusting). Would it be possible that this urine contained some gluten from the animal food? What are the risks of eating gluten from offal?
Thank you for your answer!
PS: I am also happy to help whoever has gluten-related questions!
I searched for a dietary cause for my severe migraines and discovered that a wheat free diet meant no more migraines for me.
I now know that I am coeliac as my IBS also stopped and a blistery rash I would often get on my buttocks also disappeared. I believe this is called DH.
For the last twenty years I have followed a gluten free diet and been well.
Many doctors in my experience do not connect CD to Migraine
Has anyone suggested to you that you may have Lyme disease? It is worth looking into. Don't be put off by doctors who are not familiar with Lyme. I don't know what area of the country you live in, but someone with Lyme needs to see a dr. who specializes in it, and I don't mean an infectious disease dr. The tests for Lyme are often negative when the person actually has it. Do you ever, or have you ever, had any rash or rashes? Do you know of a tick bite before you got sick? If not, don't let that put you off the possibility of Lyme as about half the people with Lyme disease don't remember a tick bite, and only about 30 percent of Lyme patients get a rash. It's a helpful tip, tho, if you have had the rash. So you must find a dr. who knows the specialty tests that will tell you for sure if you have Lyme disease or one who will make a clinical diagnoses based on symptoms, and you do have the symptoms. Treatment is an extended treatment of antibiotics. And not all antibiotics work for each case, as there are diffferent strains of Lyme that respond to different antibiotics, and it is sometimes a trial and error thing of getting the right meds. I am familiar with Lyme as my whole family has had it, and it can get very serious if not treated. My oldest daughter had untreated Lyme for 8years, and she was very sick and it took about 4 years of treatment for her to get over it. Many people if not treated early can suffer from it for a lifetime. Get on the internet and find out about Lyme. Go to www.lyme.org or www.lymenet.org. There are many other websites out there also. Good luck
maltodextrin makes me very ill... and as I read this I see that it just came on the market 2008... I thought i had some kind of food poiosioning.. Maldodextrin is made from echoli and that is exactly how ill I get.. as if I have food poisioning.
Does anyone have a list of current and popular foods that are now using it ??
My last exposure was the Welch's dark grapejuice... full of it !! Guess I won't be able to take communion anymore... hahaha
I too have gotten to the point where I can not move with out my whole entire body aching in pain.....symptoms of Fibromyalgia just like with what happens with Aspartame. I am going to stop using Splenda and see if my symptoms go away. Every muscle in my body aches and I truly think its the Splenda. A couple of months ago I ran out and was using regular sugar for about 3 weeks and looking back now.....I realize that my symptoms were not as bad and my depression lifted considerably. Lets face it.......we keep hoping for the perfect replacements for REAL foods and its just not gonna happen. If its not REAL FOOD than its not good for us
Just thought I should let you know as a coeliac you shouldn't be eating East End products there not gluten free thanks to contamination from processing, I phoned to check. Ive been looking for Sarghum/ Jawur for a while but although I can find it I can't find specific GF brands Natco I think do but I have no idea where there stocked (and neither do they
Hi, My daughter was diagnosed with RA but she did a food elimination diet and was much improved. However, due to a lot of weightloss she now is eating all the foods she shouldn't. My question is, did anybody actually feel worse before feeling better when eliminating gluten. I seem to remember that when she first eliminated gluten she was in so much pain but then it went away.
Any help would be gratefully received, plus help with other foods to eliminate such as aspartame.
We booked with Inghams, and stayed in one of their snow houses. We were very pleased with the quality of the accommodation and the gluten-free breakfast. Gluten free Schar roles, jam, a selection of cheese and wurst.
Eating out in Mayrhofen is easy, but we are a little restricted by our gluten-free diet.
Our highest recommendation is the Grillkuchl, A-6290 Mayrhofen. They took the trouble to understand our dietary requirements, served two meals between three of us, and hot water without charging for it. Thankyou for some excellent meals.
The Kramerwirt Hotel also served excellent food with some low price options, and served hot water without charge. Again thankyou for an excellent meal.
The restaurant Edelwiess served us our hot water to drink - but then charged us 4.2 Euros for two cups of hot water. Very big black mark there!
We sat down in the Neue Post Hotel, 400 Hauptstrasse Mayrhofen, but the non smoking part of the restaurant was very smokey, and they wouldn't serve tap water with a meal, hot or cold, so we walked out.
I do take a laminated card with my dietary requirements in English and German
Gluten, wheat and dairy free Cakes and Wedding cakes
Posted by Charlotte
Hi!
I make any type of gluten, wheat and dairy free cakes, including wedding cakes. Please email me if I can be of assistance - I am London based and can ship - very reasonable prices too!
I have read that often people who have celiac disease also have sentitivites to foods like corn, fructose, dairy, yeast, soya and I've found all of these affect me in some way. Maybe you're eating more of something now and that is causing the depression
Hi there - i promised the NZ Coeliac society some feedback as they had limited info for me - here is my input.
As promised I have done a bit of research about eating in Singapore.
Being gluten free in Singapore causes some problems when you want to eat out cheaply at the local food centres or Hawker markets as they are called. Cheap meals are abundant at these Hawker centres – Singaporean style food halls –usually around $3.50 – $5.50. These are popular places for locals and visitors to eat. They are also everywhere – some catering more for the locals than visitors but both have their good points. Unfortunately they are predominantly Chinese cuisine so soy, oyster or fish sauce and wheat are in almost everything. You can sometimes find Indian, Thai or other Asian foods here too.
Luckily, for me, my husband was able to ask the Chinese language teacher if she could write something for me to show at the hawker centres. This has been a blessing on a few occasions when I have been stuck, even at the local where I have my chicken rice order understood, it helped them understand. They looked at the note and nodded away and then it was great. Showed it to a Malaysian waitress once by mistake – did not work, but she found the Chinese employees. What it can also do is get you talking to the right person – a chef or waitress/waiter who has better English or understands ingredients. I have a laminated copy of this note permanently in my wallet– unfortunately the sharp edges of the cut lamination cut through a Singapore $10 note – this is now invalid tender! Small price to pay for being able to eat more. Have attached a scan of it for you.
Other advice would be to say that you get very sick if you eat gluten – the very sick part is understood. If you say what you can eat e.g. I can eat, vegetables, meat, garlic, oil, sugar, rice and rice noodles – then the no soy or sauces it can help. You can get a fried rice meal or an omelette in this manner that is GF. It is hopeless to ask what is in different dishes as they don’t always understand you and they will say yes or no to anything. If in doubt move to another stall holder. The English of the food hawker stall operators can be limited. If you say no wheat or wheat flour they may well respond with “No, it’s plain flour”.
Chicken Rice a special Singaporean dish is often at Hawkers – I tend to ask for chicken and plain rice, though the special chicken rice tastes superb, I have been upset by some of these meals so there may well be traces of soy sauce or powdered stock in the liquid / flavouring in the cooking process of that special rice. I have got into the habit of saying plain chicken, plain rice and no sauce- no soy, oyster or fish. If I have greens to go with it I say the same thing or “just steamed vegetables – no sauce or soy sauce. Having said that now that I have been once or twice to local hawker centres they know and say it to me to confirm the order! Great to go back to the same places!
Indian food is usually safe and the Indian stall holders’ English is often better than the Chinese. Little India, an area in Singapore, has a large number of restaurants serving yummy food at good prices. My advice is to try a “dosa” or dosah” it can be called. These are like a large thin pancake and can be stuffed with a filling or plain. They come with dipping sauces/chutneys – usually a coconut, chilli or tomato and dhal. The dosa is made out of fermented rice and millet. They are good for those who like mild to no heat and all GF.
The Lau Pa Sat food hall – a huge Hawker centre, at the Cross St, Robinson Rd and Shenton Way intersection has an outstanding selection of Indian restaurants/stalls to choose from.
There are many restaurants that have more of the western cuisine – though these are often expensive, definitely more expensive than in NZ. I still here say no sauces unless it is abundantly clear that the person understands the gluten thing well. Once again going to local or returning to restaurants that cater for your needs is a great way to ease the difficulties. Having said all that there is a very reasonably priced steak and seafood restaurant handy that i sa nice change from spices.
Supermarkets have a few items. Some franchises more than others. You do have to look around everywhere – they don’t seem to have quite the same order to them as other grocery stores. Cold Storage has a number of gluten free items such as corn-thins and a range of products from Orgran and other brands. Check the health sections of the stores. Fair Price has a few items but less than Cold Storage. I believe Giant has GF as well. I say buy when you see (it may not be there next time you go!) and keep a supply of snack foods you can throw in your bag for when you get stuck and you do! You can bring any food you want into Singapore so do bring essentials. I’m bringing back GF flour and tamari sauce!
There are areas of Singapore that are populated more by ex-pats, Europeans – Holland village is one of them. These places tend to have more western food alternatives and more GF products in the supermarkets.
A handy snack is tapioca chips that are cheap - look a bit like potato chips, which are dear here. They are a harder in substance than potato chips so more chews per chip, but they are a great snack and often found in market place areas. These are far better, in my opinion than the light fluffy tapioca chips that look like polystyrene and melt into nothing.
Fruit and vege are not as yummy and fresh as NZs so be prepared. Bananas are a great stand by and always less than $2 per kg.
So be prepared for a bit of an adventure (have your own supply for a day or 2 while you sort out places) if you don’t want to eat expensively. You can certainly eat in the more expensive restaurants. Hawkers and Little India offer a variety of reasonably priced and tasty meals. You also mix with the locals which is great. I’d suggest if you are here for a few days find a good hawker centre and frequent it or head to Little Indian.
Now that we have settled here and the local food outlet operators understand my dietry needs meaning that I can eat a variety of cheap meals with everyone else. We are also getting to know more and more suitable hawkers centres to eat at. Friends and acquaintances are always on the look out for me even shared some GF liquorice with me. I am happy to answer any further queries from any one. I found it quite disheartening initially trying to find food I could eat and not being understood by the stall holders – so if I can minimise other people’s frustration I am only too happy to.
Have a Chinese note written with you it makes things easier!
happy to help anyone travelling here as i know how hard it can be.
I get the flour and wheat, the big stuff. It's the other stuff that I'm not sure on. When you look at ingredients they have these big words that you have never heard of and you can't pronounce! How do you know what is ok
I have been diagnosed with gluten sensitivity. I am finding it very hard.I hate the stores and am having a hard time to take the time to read labels. I basicly eat vegetables and salads and I am getting tired of them. Financially it is hard cause I hate to spend money on myself and justifying the difference in what I eat and my family eats is hard for me and my family likes the way they eat now. we've never eaten alot of junk per say, but we like our pasta! And the gluten free stuff is expensive. At least in Canada it is. I would love any input