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 Gluten intolerance and Pain  Posted by
Hello,
I believe that I may be Gluten intolerant and have spent alot of time searching the web for information to help me. This past year I began having severe joint pain whenever I ate alot of bread. I was making homemade bread at the time and discovered the connection when I went two weeks without doing this. I always had a mild reaction to MSG in restaurants. Now I am having more and more episodes. I need help understanding the symptoms. I show headaches, congestion and joint pain in my shoulders, elbows,wrists, fingers, knees and ankles.Symptoms show between 1 hour to 24 hours after eating a offending food. I do best when I don't eat bread but I am confused as to why I sometimes show these symptoms when eating other foods. The USA does not have many DR.s who recognise or do tests for this disease. Any help you can give me is appreciated!
Is there any list available for how to read ingredients on packaging to discover Gluten?
Thanks!
Sue

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 Re: Gluten intolerance and Pain  Posted by
HTML>Your symptoms are shared by many people who are intolerant of gluten. Joint pain occurs with a moderate frequency.
Variation in time between eating gluten and onset of symptoms is also common.

However there are many other conditions that can produce such symptoms, so do discuss this with your Doctor.

I simply avoid all manufactured foods that may have multiple ingredients and eat rice, potato, maize, meat, fresh veg, fish etc. This can be a very healthy diet and avoids the risk of unknowingly eating gluten from wheat, oats , barley or rye.
If all your symptoms clear after a month on this diet, then you have probably found the cause, but remember that a doctor can do blood tests for some gluten allergy before you change your diet, but not after.

Peter
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 Re: Gluten intolerance and Pain  Posted by
I was medically diagnosed in '94 by jejunem biopsy, and I too have excrutiating bone and joint pain. So bad recently that I had to go to A & E, the consultant I saw was knowledgeable enough of coeliac disease to want to X-ray my foot [source of current pain]. He said my bones were so thin [osteoporosis] that he recommended to get a bone density test done and that there is treatment. I have also read that osteoporosis can be reversed. Is this correct. Also, if so, will the pain reduce, or is it always due to inadvertantly eating product with gluten in it?
Regards
Jean Hill

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 Re: Gluten intolerance and Pain  Posted by
HTML>I try and make sure my calcium intake is high by eating fish with bones - cheap tin salmon and sardines, low fat natural yogurt and also osteocare tablets.
Calcium uptake can be reduced if the digestion is not fully recovered.

Peter
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 Re: Gluten intolerance and Pain  Posted by
Everything I learn here is so Helpful. I had test done for everything from Thyroid to Diabetes and everything was negative. I discovered my guten intolerance by a lucky chance! I have been Gluten free for 5 days total now and am feeling better than I have in 6 months! All the joint pain is gone and I am ready to return to the gym and get my health back! I gained 30 pounds during this "down" time.
If any one has a list of items that can be bought off the store shelves I would love to have it. I have found the health food stores a valuable resource but wonder what I can also buy at the store. I have started to inform myself with books and research. A site like this is so wonderful

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 Re: Gluten intolerance and Pain  Posted by
Hi, I am from australia, so I don't know how the food packaging and labeling system is in the US, But in Australia it is now compulsoy for companies to clearly label the ingredience in all foods. This is very handy for me, as I am not only gluten intollerant but insulin intollerant too. But I am guessing that all labels and food numbers should be the same. Look on the ingredience list and it should tell you. Avoid a product if it has items like modified maize starch, thickener 1441 (or a 4 digit number similar to that) I have also discovered recently that mars peanut m&ms (a chocolate covered peanut from the mars company) have glucose derrived from wheat in their chocolate, so now I am checking all mars products. Checking all the labels of the products you buy can take a while but it is worth it in the end. Also check the cosmetic and hair care products you buy, as the can also contain products (like wheat) in them.

Melanie

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 Re: Gluten intolerance and Pain  Posted by
I am exploring whether or not I am gluten intolerance based on a blood test and have further tests pending. What about pop and diet pop? Do they have offending ingredients

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 Re: Gluten intolerance and Pain  Posted by
I think that most pop is OK but avoid barley waters and cloudy lemonade

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 Re: Gluten intolerance and Pain  Posted by
how the hell do i loose weight..i am 183lbs at 5 7 and i look like a porky

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 Re: Gluten intolerance and Pain  Posted by
Hi to you in this forum.
I recognized some of your story Sue, also having a belief during the last few months about being gluten intolerant. For many years I have had suspicions about bread and wheat in particular not being the best thing for me, but ignored my observations. I have had severe asthma bronchitis for 30 years now (I am 45), and it started with very itchy blisters/hives. Still I often get those small blisters that are watery and very itchy. My bowl easily becomes irritated and I am frequently constipated. Irritations are also a common psychological condition for me, especially when feeling allergic and when there is this "burning" feeling of all of my skin. There are also some small areas of eczema. I have used terms like a general immune condition to describe what is happening. My arms and legs have from time to time numb and tingling. Although not severe it is sometimes like there is something wrong with my coordination or balance when I rise from bed or a chair. I do not know if that is a symptom of gluten intolerance or not, please tell me if any of you have information about it. I became slightly overweight a few years ago while also developing depression, fatigue and hypertension. Problems of concentration are not unfamiliar either.

The long list with symptoms have been attributed (by me) to other problems as candida albicans syndrome and lactose intolerance since my health have deteriorated when consuming milk and diary products. Today my diet is lactose free and I have learned a lot about boosting my immune system by curing yeasts. I cannot eat much salt, white sugar or drink coffee or alcohol because it troubles my health too much. Even though I do stick to this restricted diet and lifestyle (no tobacco, no perfumes) there are problems. This summer I changed my diet to ovo-vegetarian and after a few weeks the digestion got somewhat better, but not good. I had to continue my journey and have now stared on a gluten-lactose free ovo-vegetarian diet. It had immediate effects on digestion for the better.

I went on the Internet to pick up information about gluten intolerance and learned that some of my problems may be caused by mineral and vitamin deficiency as for instance iron, magnesium. Deficiency for Magnesium seems to fit the picture especially well. I will continue to stay on this diet for a few more months, take magnesium supplements and see what happens. And then I can try to reintroduce lactose if it works, and then probably some fish.

It is a lonely journey with these experimentations I go through to get a better life. I have learned much new stuff, but it is stunning that none of the medical personnel or docs (not even the specialists in asthma and allergies) never cared to mention that lactose, yeast, gluten or mineral/vitamin deficiencies may be factors to take into consideration as a part of the treatment. There has never been a single word about it, not even in one of many stays in hospitals for treating asthma or when taking some of many allergy tests.The lesson have been a hard one to pick up since I relied on and trusted the treatment I got with anti-histamines, Ventoline, cortisone/Predinson and antibiotics. etc. It really took a lot of suffering to come where I am today, and hopefully I will come even closer to good health.

Best regards from AT

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 Re Gluten intolerance and Pain  Posted by emma
hi ive just been diagnosed with intollerency to gluten and wheat and finding it extremely difficult to find a mars or snickers web page with dietery needs, according to a fellow friend with the same problem both these products are fine but im a little unsure, if anyone could help me out most appreciated. Cadbury Nutrition is a very good web and has a list of products that are free from this if any of you are interested, thanx hope to hear some feedbk em x

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 Re Gluten intolerance and Pain  Posted by Peter
Mars - all sizes
Snickers
Mars midnight
Bounty - Milk Dark
Milky Way all sizes
These are all gluten-free in the UK in 2005

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 Re Gluten intolerance and Pain  Posted by emma
thank you for the information great help x

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 Re Gluten intolerance and Pain  Posted by P Johnson
Please send infomation on recomended restruants that cater for people with this condition


With thanks


P Johnson

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 Re Gluten intolerance and Pain  Posted by j chambers
Hi, my daughter has not had an endoscopy done, but through other eliminatory tests has been determined to be gluten/lactose intolerant. she's only 11 and has a lot of pain and bloating. That's my problem because she suffers so and I cannot help. I live in the Caribbean and there is not a lot of help here in terms of product availability. She is on a herbal aloe drink that helps a little. My question is, how long does it take for the pain to go away even when u are not ingesting wheat ?

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 Re Gluten intolerance and Pain  Posted by Cathleen
I searched and found the perfect doctor. Try searching for a doctor using the term "functional medicine". To give you an idea of what you might want to see look at my doc's web site at
www.FM4Families.com.

Dr. Hart not only tested me for gluten but also did an LRA by ELISA/ACT Test ( a simple blood test), that tests for 375 types of delayed reaction allergies. web site
http//www.elisaact.com/nonhc/
I found out that I am not only gluten intolerant but also very highly allergic to tea! I started out every morning for over 40 years poisoning my body with simple tea and toast! I was really shocked.

Also found out that not only do we gluten intolerant folks not uptake minerals very well but we also can have difficulty removing harmful toxins. I have high levels of aluminum and mercury in my system. Found out through a hair analysis done by Analytical Research Labs. This test will also tell you which minerals you are deficient in as well. I take lots of mineral suppliments, as well as a thyroid/adrenal support suppliment.
Web site wwwarltma.com

I take the Perque brand detox pills that are making great head way at lowering my aluminium and mercury toxicty levels. (They are also immensely helpful if symptoms flare up due to a night at a restaurant where I get "something" unwanted in my food. The detox pills seem to speed the process along.) Also take Perque brand Pain Guard which helps with the swelling in my joints.
web site www.perque.com

After one year of working with Dr. Hart, I no longer have asthma, I don't even take allergy medication, nor do I have the terrible joint pain that made me feel like an old woman. I actually have a garden this year! I am loving life and eating as fresh and organic as I can. So to all who are searching I say
You can feel so much better too- don't give up!
best regards-
Cathleen
ps- Holidays can still be very speciaI. I purchased (an all stainless steel) chocolate fountain for speacial occassion- who needs need cake anyway?!
http//www.shopathometv.com/shopathome/network/jshop/shopdev/product/detail.jspBV_SessionID=@@@@1476712847.1122990905@@@@&BV_EngineID=ccdcaddffhimgekcefeceeedffjdfjg.0&OID=73320&catOID=-26041&n=0&sessionredirect=1

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 Re Gluten intolerance and Pain  Posted by Brenda
I'm trying to find any information on joint pain after the diagnosis of celiac. I have been gluten free for almost three months and for the last few weeks I wake up with extream pain and stiffness in my joints; especially in my hands. I'm just trying to find out if this is related to going gluten free.

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 Re Gluten intolerance and Pain  Posted by Peter
I can locate two papers related to Coeliacs and joint pain - both in relation to the relief of joint pain on the gluten-free diet. I don't have any information on the development of joint pain.

Peter

Arthritis as presenting symptom in silent adult coeliac disease. Two cases and review of the literature.
Source Scandinavian journal of rheumatology. (Scand J Rheumatol) 2000; 29(4) 260-3
Additional Info NORWAY
Standard No ISSN 0300-9742 (Print); NLM Unique Journal Identifier 0321213
Language English
Abstract We report 2 cases of adult silent coeliac disease (CD) presenting with arthritis of a knee and a sacro-iliac joint, respectively. In both patients the arthritis was relieved on a gluten free diet. The literature on arthritis in adult CD is reviewed.

Arthritis and coeliac disease.
Source Annals of the rheumatic diseases. (Ann Rheum Dis) 1985 Sep; 44(9) 592-8
Additional Info ENGLAND
Standard No ISSN 0003-4967 (Print); 1468-2060 (Electronic); NLM Unique Journal Identifier 0372355
Language English
Abstract We report six patients with coeliac disease in whom arthritis was prominent at diagnosis and who improved with dietary therapy. Joint pain preceded diagnosis by up to three years in five patients and 15 years in one patient. Joints most commonly involved were lumbar spine, hips, and knees (four cases). In three cases there were no bowel symptoms. All were seronegative. X-rays were abnormal in two cases. HLA-type A1, B8, DR3 was present in five and B27 in two patients. Circulating immune complexes showed no consistent pattern before or after treatment. Coeliac disease was diagnosed in all patients by jejunal biopsy, and joint symptoms in all responded to a gluten-free diet. Gluten challenge (for up to three weeks) failed to provoke arthritis in three patients tested. In a separate study of 160 treated coeliac patients attending regular follow up no arthritis attributable to coeliac disease and no ankylosing spondylitis was identified, though in a control group of 100 patients with Crohn's disease the expected incidence of seronegative polyarthritis (23\%) and ankylosing spondylitis (5\%) was found (p less than 0.01). Arthritis appears to be a rare manifestation of coeliac disease. This relationship may provide important clues to the role of gastrointestinal antigens in rheumatic diseases.

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 Re Gluten intolerance and Pain  Posted by Diana Fernandez
Hi,
I have had several pain in my stomach during seven months, in the first month after conducting an endoscopy drs. have found the helicobacteria and it was eliminated with some antibiotics. After this happened new problems in my stomach and colon appeared, at that time I was having only fresh food and less processed food, drs. told me it could be colitis so I had to change my diet for bread, rice, and pasta -among others-, one week later after having changed my diet pains in my joints, bones in hands, knees, and feet appeared to the point I could barely walk and type, since two months the situation hasn't changed that much, drs. took to the hospital and conducted all kinds of tests but they haven't found anything so far, at this point and with the several change of my diet I am wondering if this could be related to gluten intolerance, I appreciate any advice. Thanks

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 Re Gluten intolerance and Pain  Posted by Peter
If your symptoms have got very much worse after increasing the amount of bread and pasta in your diet, then there is a possibility that the symptoms that you describe could be caused by the gluten in the diet. This is not always apparent from an endoscopy.

It would do no harm to try a completely gluten-free diet for a couple of months.
Since you are at present discussing your medical problems with your doctor it would be wise to discuss this with your doctor.

The intense course of antibiotics needed to eliminate helicobacter can also trigger latent intolerances to become apparent.

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 Re: Gluten intolerance and Pain  Posted by Emily Baxter
Hi, I work for the prescribing team in east kent, one of my GPs has asked if there are any hypertensive medications that do not have wheat or gluten used in the excipients available.

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 Re: Gluten intolerance and Pain  Posted by Kristin
Hi-

Im 15 years old and I have severe joint pain and have been through alot.

I had a ligament repair surgery a year ago, broken/fractured bones and much more. I also have had a lot of ankle problems i dont know if i could be allergic to wheat gluten i cant figure it out. My doctor originally diagnosed my wrist pain as growing pains but then 6-7 months later it ball ended up as two torn ligaments. I am still having pain all the time and i would like to figure out whats causing all of the pain!

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 Re: Gluten intolerance and severe joint pain  Posted by Peter
A gluten intolerance can cause severe joint pain, and the associated malnutrition from not absorbing nutrients from food can result in weak bones and low bone density.
It is one possibility that your doctor should be investigating, but there are many other possible causes.

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 Re Gluten intolerance and Pain  Posted by Scott
Hi Brenda

I was just doing a search on the net and found your email. It was astonishing, I too have coeliacs disease and have been gluten free for about 4 months. I too have extreme pain in my hands, even unscrewing a jar lid has become very painful.

I have no idea how old your email is but can you advise me what has happened since, has your joint pain passed? Any other side effects of a GF diet?

Regards Scott

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 Re Gluten intolerance and Pain  Posted by Susan
I had ulcerative colitis and learned that I should not eat gluten. Can gluten cause inflammation in colon and sharp pain in colon (also upset stomach

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 Re Gluten intolerance and Pain  Posted by Peter
Ulcerative colitis is simply a label for your symptoms.
An adverse reaction to gluten can cause inflamation anywhere in the digestive system, from the mouth, throat, through to the colon and rectum.
So gluten can be a cause of ulcerative colitis

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 Re Gluten intolerance and Pain  Posted by Janette Ingham
THANKS for this support!



My (previously healthy) 15 yo daughter has just been through 6 months of suffering beginning with a stomach wog, then prescribed Flagyl (antibiotics), then they discovered Blastocystis Hominus a relatively common amoebic creature, so she was treated with 5x loads of antibiotics inserted as an enema. Her symptoms only worstened, cramps, reflux, undigested bowel movements. Then I found the symptoms of gluten intolerance online (no doctor came up with it) and (praise God) after 4 days off it the pains have gone away. However, she's sad her diet has to change, I'm hoping it won't be permanent.



Regards, Janette

Date Nov 2009

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 Re: Gluten intolerance and Pain  Posted by Margaret Pickering
Hi, My daughter was diagnosed with RA but she did a food elimination diet and was much improved. However, due to a lot of weightloss she now is eating all the foods she shouldn't. My question is, did anybody actually feel worse before feeling better when eliminating gluten. I seem to remember that when she first eliminated gluten she was in so much pain but then it went away.



Any help would be gratefully received, plus help with other foods to eliminate such as aspartame.



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 Re: Gluten intolerance and Pain  Posted by yoon
Scott and Brenda



I don't have the answers but share the problem of joint pain which has become noticeable since going on the gluten free diet (diagnosed for about 3 months now). It also paticularly affects my fingers and wrist as well as knees. Frequent feeling cold in my knees too. There is a link between celiac and rheumatoid arthritis but I'm hoping its not that. Maybe just a withdrawal symptom to the gluten free diet? I'm supplementing zinc, magnesium and calcium at the moment as I don't seem to have enough calcium in my diet - still get reactions to milk/cheese etc so I think intestinal villi not recovered enough yet.



Thanks. Yoon

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